Jkj-
Have you tried Keppra? My 15 yr old son had a closed head injury and developed epilepsy. We have been thru several meds; tegretol, depakote,carbitrol, and topamax, and finally keppra. He too has nocturnal seizures arising from his frontal lobe. These meds come with terrible side effects, good luck finding the right one for your son. I know that on topamax my son had issues with memory and concentration, he couldn't even spell "if" when he was 12 ! I knew that something was wrong! Not all meds are gonna work for your son, but try more until you find the best one. Summer is a good time to try new meds. Research meds online -Keppra works great for us-it changed our lives!
Good Luck to you and your son-kimE
Hi JKJ,
I have a similar case of frontal lobe epilepsy with similar pattern of seizures occurring only during sleep, a male patient, 14 years of age, who has been on oxcarbazepine i.e Trileptal ( oxrate here in India) for the last few months and we did observe disturbances in his memory. The episodes of memory disturbances increased as we increased the dose, but it wasn’t so worse as in the first instance. We already tried Tegretol (carbamazepine) for him and it didn’t work.
Once we started oxrate, the seizures are under control and the memory disturbances are seen only when we increased the dose. He is stable at that dose of 900mg twice a day and right now his memory is alright as well. Apart from a bit of disorientation we haven’t observed any other side effect.