baby seizures...

[Ace78]

my 20 month old healthy boy had his first seizure this past sunday  out of nowhere ...no fever no extra stress and all test prove nothing eeg/mri/spinal tap/cat scan/blood work......God...what can i do to stop this?

[Terrena]

Some news.  Yesterday I emailed the Ped Neuro at  Los Angeles Childrens Hospital (part of USC Medical). I have a client who is a nurse there who suggested I do so.  In 25 yrs has never seen the type of seizure my grandson had.  I was so impressed she responded quickly and told me what my grandson is having is NOT a seizure.  It mimic's one but it should not be classified as a seizure and that it is a shudder attack.  If they look like this

http://www.youtube.com/watch?v=Y5erLHDX1h8&feature=channel_page  

it may be the same thing

then you need to find a doctor who is familiar with these.  They are very different.  The Dr. at Childrens has given us a refferal of someone at UC Davis in Northern CA where my daughter is.  My grandson is having these about once a week.  Also my daughter found someone whose child was diagnosed with this also and hopefully will be seeing their doctor as well.

I work in acadamia and Dr.'s at Universities are studying the latest and greatest on medical advancements.  Find a Dr. that is teaching at your best Medical School and make an appointment. Especially if all your child's developmental growth is average.  

One thing that surprises me is that so far no ones doctors have tested these children for food allergies.   I have a co-worker who has seizures from fresh tomatoes...who would of thought of  that and it was something that developed as an adult in her 50's.  It took a year before they figured out her cause..actually it was her husband.  No one ever asked what she had eaten but he started to notice that she had had them every time.

My brother has had epilepsy for 40 yrs and before a Dr pegs you into this diagnosis you need to be sure.  So I have been around seizures since the day I was born and I am 49 and seen many different types and I was certain this was a type that I just hadn't seen.  I was wrong and so were the 4 doctors he has seen in just 2 weeks.  

Its not to be taken lightly and it is very scary especially when we find nothing in traditional testing that gives answers.  There someday will be a test to tell us what seizures with normal EEG readings mean but they have to be testing for the right diagnosis.  My daughter had a tumor in her spinal cord.  They tested her for so many things and couldn't figure out what was wrong.  Then they prescibed treatment.  I rejected it because I told them how can you treat something you don't know what it is?  Finally weeks later a different Dr order the correct test....it was obvious what was causing her pain.  Had I taken the first treatment she could have been paralized for life. So I probably am a bit more cautious to accepted default diagnosis because of my personal experience.  After 3 kids and now a grandson I have chalked up a few :)

[vickilynnpurdy]

absence seizures only last about 10-30 seconds. They are a form of generalized seizure. They are in the same catagory as atonic, tonic, myoclonic and they are real seizures. Short duration, not always eye movement....But they are a real thing! I am not saying t hat either of these sweeet babies have epilepsy, obviously, I DO NOT KNOW!! I  am just passing this info on so that you will know that not all seizures are the clonic tonic kind that most people identify as epilepsy! The atonic are just a glimpse in time. last about as long as it takes to fall to the floor, but are so very very dangerous!!

I wish for you all the very best!!!....Please let everyone know what you all find out!!! Blessings to you and the sweety!!

[Terrena]

my grandson at 6 mos had what looks like a seizure and is what's call shudder attacks.  He is healthy and normal and he has had them when he is nursing or sleeping.

These mimic seizures but what is different is they last only 5 to 15 seconds and they do not have any eye movement...just kind of go on doing what they are doind and seem unaffected but it is very scary to see.   Is this simular to what happened

[vickilynnpurdy]

epilepsy and our children....sorry!!  Glad that I caught that! ....check it out. Hope it helps!

[vickilynnpurdy]

Facebook has a group now called our children and epilepsy. You can join facebook and then the group. It is all free and you will find other Moms on there, like Myself, that totally understand what you aregoing through!!
Our 21 month old has been having seizures since he was just a few months old.....come to facebook and check us out! You'll be glad that you joined the group!!

[debbiechele]

I understand how you feel, my baby of 3 mos has suffered already 3 seizures and is seeing a specialist, its very scary and I have never experienced what a seizure is until my little boy had one. He is taking phenobarbital and its under control now but we always have to prepare just in case. I am looking and learning for other info. and also trying to discuss this with others who are going through what we are. Always think positive.

[dyan139]

It could be structure.

Ask Dr. Kellas, or Dr. La Beau, or Dr. Fogelman @
www.kprz.com 9am - 10am Saturdays PST. Health Talk Live. 45 minutes of the show is call in and these doctors are awesome.

They found that an infected root canal was causing my seizures. No other doctors could find anything abnormal.  Your baby might just need a structural alignment if his blood and other tests have all come back clear. A good chiropractor (Dr. Fogelman) who works with infants, can correct what a rough trip down the birth canal may have caused.

Good luck getting the right answer soon. God bless.