Hi Bill,
I'm glad you are here. I was a also a teenager when I had mono and after I had mono.... I always told people that it felt like I never recovered. It took me many years later before I was finally diagnosed with Chronic Fatigue Syndrome. Today, my EBV titer is still off the charts.
From the CDC's website:
A CFS diagnosis should be considered in patients who present with six months or more of unexplained fatigue accompanied by other characteristic symptoms. These symptoms include:
cognitive dysfunction, including impaired memory or concentration
postexertional malaise lasting more than 24 hours (exhaustion and increased symptoms) following physical or mental exercise
unrefreshing sleep
joint pain (without redness or swelling)
persistent muscle pain
headaches of a new type or severity
tender cervical or axillary lymph nodes
sore throat
Other Common Symptoms
In addition to the eight primary defining symptoms of CFS, a number of other symptoms have been reported by some CFS patients. The frequency of occurrence of these symptoms varies among patients. These symptoms include:
irritable bowel, abdominal pain, nausea, diarrhea or bloating
chills and night sweats
brain fog
chest pain
shortness of breath
chronic cough
visual disturbances (blurring, sensitivity to light, eye pain or dry eyes)
allergies or sensitivities to foods, alcohol, odors, chemicals, medications or noise
difficulty maintaining upright position (orthostatic instability, irregular heartbeat, dizziness, balance problems or fainting)
psychological problems (depression, irritability, mood swings, anxiety, panic attacks)
jaw pain
weight loss or gain
http://www.cdc.gov/cfs/cfssymptomsHCP.htm
If your son has these symptoms....I hope that you will stick around and invite him to join MedHelp. I've posted a link below to our fibro / CFS board... I am one of the Community Leader's in the forum. What the CFS experts are saying is that if someone has CFS, that it is important to get treated right away. There ARE treatments out there.... feel free to send me a message and I can only tell you what I've learned in the years of having this illness.
Fibro / CFS board:
http://www.medhelp.org/forums/show/44?personal_page_id=203319