Epstein Barr and MS ?

[Deja101]

I have Chronic EBV. I was diagnosed 19 yrs ago during a pre op.It was pretty bad that they had to reschedule my surgery ( hand surgery) for 3 months later.12 yrs ago just after my 2nd child(months after birth), I developed a sharp pain on the base of my head in one spot. I had a CT and was told to immediatley go to ER there appears to be bleeding on brain. At ER I had an MRI , that showed NOTHING ?!?! , my doctor had the resutls read by 3 other radiologists and found nothing. The pain subsided . After 1 yr after same birth I developed numerous - 10 - 15 small pea sized nodules up and down ankles. They were biopsied , benign so doctors pushed it aside with an , I dont really know. About 2 yrs after the same birth , my salivary gland swelled and was extremley painful , my Family doctor said it could be an infection and gave me antibiotics that took about 5 days to work and 8lbs lighter cause I couldnt eat . This salivary gland happened 3 x's after. 6 weeks after my 3rd child, I was napping. I woke up with extreme pain and swelling in my fingers.From the day of napping until today (5 yrs later) I have had the following : vision problems(eye doctor said the nerves in my eyes are very large but thats it) headaches, dizziness, severe joint pain, rib cage pain, terrible nodules up and down chins as well as top of feet .I had an MRI done about 2 yrs ago and was told there appeared to be 2 lesions (same spot as pain amny yrs before) I had an MRI done again - NOTHING !?!?! - Chest xrays.. nothing, blood tests by rhumetologists showed (only once) elevated sed rate , but neg on everything else . last yr I had blood work done again to find my EBV was so badly elevated my doctor was concerned and put me on a healthy diet with viatmins. I get B12 shots every 2 weeks and have for the past 3 yrs .
So finally my question . Could EBV cause all these crazy symptoms ? Could MS be an underlying factor but not diagnosed yet ? Is it true that EBV has a link with MS ?

[PlateletGal]

Hi gina,

Sorry for my poor grammar (above). I'm glad this gives you hope.... there is hope. I have found healing for my condition, although treatment for CFS is controversial and so is the illness. (its ridiculous what we have to go through, isn't it ?).

Anyhow... you may want to click on my profile and find the link to the new Whittemore Peterson Institute in Nevada. Because the CDC (my opinion) has failed us, many non-profit organizations are trying to come to our aid. Mrs. Whittemore Peterson's daughter has CFS.

[ginak]

Hello Platelet,

Thank you for this information. This is very interesting and at least gives me hope.

[PlateletGal]

Many CFS and fibromyalgia also have very low vitamin D titers. The similarities between MS, fibro and CFS are very many and that is why the new Whittmore Peterson is probably doing research on what they call "atypical MS".


Discussion: M.E. (CFS) vs. MS:

http://www.medhelp.org/posts/show/760781?personal_page_id=25453

[ginak]

Hello Deja,

I can really relate to what you are going through. I too have the fear of this being MS. My neuro was the one to tell me about the link between this and MS. Its been a year since I had mris and I am going for more in a week. I have gone through every symptom that you have named. Hang in there and know that you are not alone. When I asked my neuro if MS could be the underlying factor, his answer was certainly, especially with the strong possibility of high EBV titers being a common factor in MS. I also have a low vitamin D so that is not a good sign either. Its been a very lonely place for me as well, but I certainly wish you the best. I wish more physicians and more people knew about the true horrors of EBV.