I have been experiencing a variety of symptoms over the last few months. Some of the more troubling include ear pain/pressure/popping, painful pressure in my head/back of throat/roof of mouth which is worse with walking, spasms in neck and back, difficulty with coordination, blackouts, neurological symptoms (cold hands and feet, trouble swallowing, numbness in extremities, incontinence, trouble speaking and thinking of words, pains/tremors in face and tongue), voice hoarseness, weight loss, vision change, bloody tinged mucus in nose, drainage in back of throat, and fatigue.
I've had a brain and neck MRI, an ENT exam, blood work, and a urine test. All of the tests have been normal so far. I also just tested positive for a cancer predisposition syndrome associated with soft-tissue sarcoma, breast cancer, leukemia, osteosarcoma, melanoma, etc. Meaning that I have a 50 percent chance of developing cancer by age 40 and up to 90 percent by 60 years old.
The only other thing that the tests have shown is that I am positive for EBV (VCA IGM-1.13, VCA IGG-1.63, EBNA IGG-4.60). My doctor said that the mono is causing my symptoms. I find this to be odd because my symptoms seem mostly neurological and I do not have a sore throat, swollen glands, or a fever. Also, I had a severe case of mono ten years ago which was documented with blood work. My doctor said that this is impossible because you can only have mono once.
I'm concerned because research I have found says a reactivation of latent EBV can occur in immunodeficient patients, I'm having all of these symptoms, and I'm at a high risk of developing certain types of cancer. Also, certain types of cancer are associated directly with EBV.
If anyone could give me more information on this, I would appreciate it. Thanks.