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Epstein Barr Virus (EBV) Community
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One Doctor

Like everyone else, I have been dealing with EBV since Dec 07 or so they say.  Have spent many $$$$$$ on MRI, Chest X-rays  Blood Test etc.   Have come to the end of my rope,   Everything but the EBV panel is negative.  Back of the head pain sometimes, Lightheaded just about every day,  Light pains that move around sometimes stomach sometimes chest (have went to a heart doctor as well (acis reflux or so they say)   Does anyone have ONE Type of doctor that might be the ONE to talk to about this??   From what I read there is NOTHING that can be done>
61 Responses
Avatar universal
stilol have no clue I think it is cfs but no real dx yet for me I do have EBV and chronic candida all my symptoms are the same *** HIV but I have tested negative for 2 years (took about 13 or 14 HIV tests so HIV is unlikely)
Avatar universal
Took your advise and ask my doctor to refer me to a Ifectious Diease Dr,  After submitting ALL the test I have had run (heart, Chest Xray, Blood work,)  He called my Dr. back and said there was nothing he could do for me,(SO no appointment)  If it was EBV as indicated back in March than no other choice but to ride it out,  BOY WHAT A DOWNER,  
Avatar universal
"If it was EBV as indicated back in March than no other choice but to ride it out," not true there are antivirals like (ACYCLOVIRE) that sometimes help with EBV also they can treat the symptoms and diet changes are supposed to help too then there are some homopathic remidies that allot of people swear by. FIND A DR WILLING TO GO OUT OF THERE WAY TO HELP YOU (they are rare but some people find them)
Avatar universal
Thanks for your help, Live in a small town and the doctors are for the most part in tune with one another, would have to travel far to probable get the same results.  Hope to get better soon,  Go back and see my primary MD in 30 days hope for better news than maybe my EBV Panel will come down from 600 to whatever normal is.
Avatar universal
Also what are the homopathic remidies you are aware of, All my MD;s say rest is the only cure.  Thats not hard see as thats all I do.
Avatar universal
I have heard some of the anti candida remidies are helpfull as is the anti candida diet (cave man diet meat and vegies onlt type)  and there are several EBV remidies (no personal experiance sorry) I take ACYCLOVIRE but it does not do much for me SORRY I am not a lot of help because no one really seems to know much about EBV for example I have had a very experianced ID DR tell me I have chronic EBV but then a university hospitol immunology dept tell me no it is a past infection only I tend to believe the ID DR because if it was a past infection only then why would my EBV titers be going up not down
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