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Epstein Barr Virus (EBV) Community
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5066091 tn?1363087932

Reactivated EBV

I was recently diagnosed with a reactivated case of EBV.  On the CDC website is says that most people do not experience symptoms with reactivated EBV.  I can't seem to find much information about people that have symptoms with it.  I definetely have symptoms, just like when I had mono back in 1996.  However this time I am  experiencing all over body pain along with the fatigue.  I am basically just existing...doing the bare minimum at home, work and life to get by. I am at least one month into this episode.  Hopefully it will not last long, because I have a boss that truly does not understand and I am not sure that my boyfriend gets it either.  I have a high threshold for pain and illness, but this has totally wiped me out.  I am using my last sick day today and won't get any more until June.  Can anyone tell me about their experience with reactivated EBV?
10 Responses
Avatar universal
I had EBV in '03 and it reactivated in 2006. I had symptoms both times, but the 2nd time they were a bit more mild. I still could not go to work for several weeks, and it took just as long to get better the 2nd time as it did the first...but it WILL get better. I just did my best to manage my symptoms and try to just rest and be patient.
5066091 tn?1363087932
Thanks.  Being patient is the hard part.  Did you experience pain and weakness?  I don't recall having that the first time.  Unfortunately, I don't think my doctor understands how extreme the fatigue is.  I guess it is one of those things that you can't comprehend unless you experience it.
1 Comments
I am currently going through a reactivation. I did not have pain, just extreme fatigue. Is this what you had?
Avatar universal
You completely discribed word for word what I am going through now, I have had 4 reactivations with 2 of them inthe last 4 months . The 3 was dec my levels were back to normal in Feb.  And 2 weeks ago the symptoms came back and showed "a new infection" im so frustrared, I cant find any doctors who truely understand this. I too am just making it through the day . If you come across any info please please let me know ,
Avatar universal
I have a reactivation of EBV with similar symptoms.  I have heart palpitations, extreme fatigue, anxiety, low stress tolerance, body aches, headaches, head pressure etc.  I have many more symptoms but won't go on and on.  I only found relief when I saw a Naturopathic Doctor which is a N.D.  She ordered the correct blood tests (a Viral Panel) on the first visit which revealed a reactivation of EBV.  A Naturopathic Doctor in your area might help!  I had seen many M.D's, a cardiologist, General Practitioners, Psychiatrist, Therapist etc. After seeing about 5-6 M.D.'s over the course of about 1 year I still had no relief and was getting progressively worse that I had to go on medical leave from my job.  Only after seeing the Naturopath did I start to see results of feeling better.  A Naturopathic Doctor in your area may provide the help needed! You can Google them to find in your area.  
1 Comments
what kind of treatment did u receive?
Avatar universal
Hi,
My 21 year old daughter was diagnoised with micoplasma pnemonia 3 years ago, since then she is sick every 3-4 months.  Throat gets swollen, red, white patches ect.  She just got her blood work back and now  she has ebv her number was 33,695, which is really high. She was also exposed to the swine flu in 2009 on a senior trip to mexico.  I am waiting to see an ID doc. I guess i am driving myself crazy online researching all kinds of things keep coming up, the scariest is lymphoma.  I guess they are all connected, I just want her to feel better. Any positive supportive info would be appriciated.
Gerry
Avatar universal
I currently have reactivated EBV. Going on 6 mos now. I had it back in Junior High. I am 53 now. I was exposed to mono back in June probably. The girl I was seeing told me she tested positive for mono and at that time I had woke woke up one morning feeling so fatigued I thought I was dying. I went and tested and was positive for active mono. I tried to continue to strength train on my good days and was a mistake. I was worse for 3 days after. i am better now but not 100 percent. I have an oesteopath who is familiar with the virus...most doctors aren't. At the moment I am riding it out and doing everything I can do to boost my immune system...to suppress it back into a dormant state. 92% of the population carry it in a dormant state.  My life has been hell for the last 6 months. I office out of my home so I am able to work. If I had a 9-5 job I had to go to I would be on sick leave. I truly believe this can be overcome through building the immune system up and suppressing the virus back into a dormant state. i take loads of GOOD powder vit c...and do Myers Cocktails every couple months. Find a doctor familiar with the virus. Do everything you can to boost your immune system. There is hope.
Avatar universal
Also I have found...for myself...STRESS and SLEEP DEPRIVATION are EBV enemies.  I was fine for 4 weeks (Oct) and I got so stressed out over midterm elections and slept maybe 3 hours a night...and it came back....I'm assuming never left but I had been back to normal. i am working on these things. i have to take xanax to sleep and for me it works. I am also taking things in stride and trying to live stress free.
Avatar universal
Hi there’s a great website full of information on ebv and how to treat it and overcome it. I am posting it here. There are 5 posts to it so read all 5 and tell me what you think. I have ebv too with many horrible symptoms. I’m slowly improving. https://www.breakingwithwhiney.com/post-one/
Avatar universal
Fatigue...seems to get better over time.  Rest as you can, try to eat well.  Hydrate.  
Avatar universal
I came down with mono in the early 1990's..EPV ...has reactivated..i have been fatigued for months..wake up several times a night..wake up tired..energy is not there..at 66 yrs old..i am already tired
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