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Swollen lymph nodes: normal or cause for concern?

I've been dealing with EBV for at least two years now and I hate to admit that I think I have chronic EBV.  I'm male, late twenties, active, able to hold a job, try to stay health conscious with food, exercise, am a non smoker.  I've experienced many crazy symptoms since getting EBV and after being tested a year later my EBV levels have not decreased at all since the beginning.  Symptoms have included: tingling, numbness, foggyness, fatigue, spreading/ traveling ache or malaise, change in physical stamina and muscle definition, swollen lymph nodes in groin, armpits (but not directly inside) buttocks, stomach I think too.  I do have medical insurance and have tested my CBC regularly every 4 months or so, tested my liver function every four months or so, and with those things consistently coming back fine/ normal, my primary physician is satisfied.  Of course, I don't want to spend money needlessly if my doctor is right and once you get EBV, you let it run its course, and if it is chronic, you just have it for life....but statistics suggest that 90 % of the population has EBV, so don't worry.  But on the other hand, I do have medical insurance, thank goodness, and don't want something like a cancer forming lymphoma to take over this body or to catch me by surprise.  Right now, the lymph nodes in my groin and armpits are full and have been for a while.  Would anyone suggest me pressing my doctor about this?  Do many people with EBV out there, do you currently not have any swollen lymph nodes? Is it possible that my body would be healthier if they were removed? I know only a doctor can really answer the last question, but I've heard of people removing lymph nodes and I thought it helps trap and stop the sickness in the body.  Thanks for anyone's and everyone's help.    
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Avatar universal
Hi All! Research Medical Medium. He is a lifesaver and people swear by him!!!
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Can we please get an update on this situation. I am experiencing similar symptoms.
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Hi

My these tests are positive

Cmv  igg  postive
Ebv igg positive
Hsv1 igg positive
1 year ago I had very small hpv wart on thigh which was removed using laser.

All above positive since 2009 after a protected sex with sex worker in 2009.


All igm negative
Rest all std test negative

I am not able to get rid of from below systems since long-

Sore throat
5 Swollen lymph node on neck- they are very small

Penis fungal infection since 1 year- recurrent

Sometime I feel chill in hot day

Tiredness

All doctors are saying that all igm  are negative. Don't worry. Live your normal life. You have depression and anxiety.


Please help me to tell that how many more years I can live with these viruses.

I am thinking to suside of I don't get better in sometime

Please help me.




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Hi
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Hey stephen_kid do you or anyone esle have an update on this? In particular about swollen lymph nodes in groin area?
Thanks!
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1 Comments
Selt, I'm 25 years old and have had a mystery illness for months that has taken my life away from me. I had to quit my job teaching 1st grade. Blood tests, MRIs, X-rays, lymph node biopsy, all normal. I have lymph nodes in my groin, under arms, and neck. Got an ultrasound of the ones in my groin last week and they are benign shotty nodes. An integrative doctor ordered bloodwork on EBV last week and it is showing past infection, acute primary, and reactivated EBV all positive. Haven't talked to the doctor yet. Hope this is what my problems are and not some kind of cancer. I don't know how to deal with it though or if I will ever feel better.
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Could anyone else comment on this? I'm experiencing similar things.
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Any update on what was going on? I am experiencing alot of the same symptoms as you and also very concerned about my swollen pelvic lymph nodes. It has caused testicular pain for me which is very scary as well. I have had ultra sound, cat scan, blood test, xrays to check for anything in my body with no results or answers, it is extremely depressing way to live. I went from competing in bodybuilding competetions to not even making it to the gym and having a hard time just getting out of bed to go to work, more because of me fearing my symptoms then actual fatigue. Although i am very fatigued dont get me wrong. Please any feed back would help.
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1 Comments
Like Micheal said,  you are not alone I  also have EBV accompanied by the same symptoms including swollen lymph nodes in my groin area and underneath both my under arms since February of this year. I had test done and turns out my Vitamin D level was really low.  My Doctor says that with EBV, the symptoms can last for a long time. I started taking black seed oil and prescription vitamin D about a month ago and I no longer feel achy.  I also jump on a trampoline for 10 mins twice a day because I've read that it can help with your lymph nodes.  Also just found out about belly breathing,  it can help too. Thank God for the for the internet. If you have not checked out your vitamin D, ask your Doc to get a blood test and look into black seed oil.  Oh yeah,  a 20 min warm bath with backing soda and epsom salt twice or three times  a week can also help with pain and ridding toxins.  Any way dont' worry,  think positive and I hope you feel 100% better.
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Does anyone with EBV taken any antiviral meds? If so what is it.  I thought acyclovir/ valacyclovir combined with ribavirin could help
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I was diagnosed with EBV last May. The doctor said I was going to have it from 3-6 months but I still have a swollen node in my neck, still get fatigue regularly, and sometimes run a low grade fever. You mentioned having the node removed. Sometimes I romance the idea of sticking a needle in my neck and extracting everything from the node. Kidding of course, but I feel your pain on this one. I've even named the node...Fred. Anyway, I have been a runner for quite a few years. As this disease continues beating me up, I find that I hike more than run now and I try to get a full night sleep. The mid-afternoon timeframe is bad for me and I actually feel worse when I pump up on vitamins. Crazy disease and it will surely contribute in the death of me but I will keep being active and stay off of the lazy boy as much as possible. Fred and I wish you the best.
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Avatar universal
I have chronic EBV and my levels last I checked were off the charts. I have swollen lymph nodes under my armpits and ears. It's been a rough road but I have found exercise has helped me tremendously. I really only feel the nodes really swell up and the fatigue kicks in heavy if I don't exercise for a few weeks.
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650547 tn?1271773198
Hi, sorry to hear what you're going through!  I really don't have any answers for you, as I haven't been through chronic EBV... I'm more just trying to "bump" this thread so more people have a chance to see it.  Have you made any changes in your lifestyle due to your symptoms (specifically, are you trying to rest as much as possible)?  The only other possibility I can think of is Chronic Fatigue, but I'm not entirely sure how your symptoms fit in with that.
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