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ebv is horrible

let me tell u people ive had it for a year now. the symptoms you read about is only a quarter of it. my symptoms include white tonge, painful swollen lymph nodes , skin problems , testical pain , burning in buttocs, leg pain , lower back pain, hot flashes, mouth ulcers, dhiarrehia, red skin areas , all kinds of numbness and tingling in the body including the genital area. also eye

Ebv resembles all kinds of cancers and stds. i was brushed off and ignored by docs because they did no the seriousness of this virous and how long it actually affects you. i found it takes up to 2 years to go away after the age of 25 im 29 years old. I was treated very poorley at ers and doctors offices. There first assumption is aids , cancer or an std. when the docs tell you it goes away in 2 months its bull thats only  the beggining. maintain a good diet and multi vitamins everyday.
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Avatar universal
Hi. I'm 18 and recovering from mono too.
In the acute phase (september) I had tiredness, neck stiffness, feeling like something was stuck in my throat it wasn't sore though, numbness and tingling on legs, swollen nodes in neck below ears collarbone and groin, stuffy/runny nose, white coating with little red spots deep in my tongue, my tonsils were swollen/red but there wasn't any white coating in it.
But the weirdest symptom was yellow stool (gross, i know, sorry) it made me lost 16 lbs. Should I worry about it and dig on something else? I have read like 2-3 people saying they had it too but still it isn't very common.

Now I still have white tongue, leg pain, stuffy nose, lymph nodes and feeling constipated sometimes.

Probably got infected in August 1st by a girl . I even remember the taste of some kind of mint-like remedy on her mouth but she didn't tell me. She didn't seem to have suffered like I did. But her mom was in the hospital back then i think she had it too.
Hope my family have had this before I don't want to infect them.
Helpful - 0
Avatar universal
Hi. I'm 18 and recovering from mono too.
In the acute phase (september) I had tiredness, neck stiffness, feeling like something was stuck in my throat it wasn't sore though, numbness and tingling on legs, swollen nodes in neck below ears collarbone and groin, stuffy/runny nose, white coating with little red spots deep in my tongue, my tonsils were swollen/red but there wasn't any white coating in it.
But the weirdest symptom was yellow stool (gross, i know, sorry) it made me lost 16 lbs. Should I worry about it and dig on something else? I have read like 2-3 people saying they had it too but still it isn't very common.

Now I still have white tongue, leg pain, stuffy nose, lymph nodes and feeling constipated sometimes.

Probably got infected in August 1st by a girl . I even remember the taste of some kind of mint-like remedy on her mouth but she didn't tell me. She didn't seem to have suffered like I did. But her mom was in the hospital back then i think she had it too.
Hope my family have had this before I don't want to infect them.
Helpful - 0
Avatar universal
Hey guys it is so relieving to hear that many other ppl are going through some of the same issues I am going through with ebv. I also have rash, fatigue and a foggy mind sometimes. I used to be so hyper now I'm pretty calm. I just worry about infecting my family. I've had ebv for about 8 months now and the symptoms are not as bad as they used to be so just stay positive ppl. I know its hard at times, for me as well but we have a beautiful life to live so live it. I'm 23 by the way and I'm going to try the 3 garlic clove thing. Hope everyone's symptoms get better. God bless
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Avatar universal
I asked 4 different doctors regarding the swollening at arm close to elbow joint... All said its fiboma
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Avatar universal
Hi Vicky
Are you sure they are swollen nodes and not something else?
It is very unusual to have swollen lymph node on your back. In fact , I am not sure if there are even lymph nodes located there.

What do the doctors think could explain this?
Helpful - 0
Avatar universal
My exposure was at Nepal 14 months ago. i tested with  hiv duo/ combo at 2 and 3 months and antibody at 6 months all negative... Syphilis negative too but hsv 1/2 igg positive at 6 months. i have swollen nodes in mid of arm, below ear, chest and back - highly confused why the nodes swollen. also sometimes neuropathy pain- burning lips, arm and face
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