Update: Saw retinal surgeon 2 weeks ago. He recommended a series of at least 3 Kenalog injections every 4-6 weeks. Confirmed CME persists and noted a "fine" epiretinal membrane. First injection scheduled for tomorrow. Crossing my fingers. Vision in right eye continues to be problematic.
I am posting this update to my CME situation in the event the information may be helpful to someone else. Last week I had my third Kenalog injection for the chronic cystoid macular edema. I also had an OCT scan. The scan results were favourable! The inflammation is decreased by roughly half. Yay! I am not sure if my vision will improve after so long with this condition. What I have read indicates it may not. But if it doesn't get worse, I will be content. The plan is to continue with the injections every 6 weeks for possibly three more.
Dr. Hagan. Thanks for the repost with all the good information. I think I have made most of the lifestyle and dietary changes I need to help my eye health, but it helps to have someone like you nudge me to see if I am getting slack in any area. I am going to look at the AREDS 2 supplements. Part of my daily routine for some time has been to take flax seed oil and fish oil, but I don't take any supplements developed specifically for eye health.
Hi pinhole, Thanks for sharing your experience. I think now it is the CME causing the discomfort rather than the scleral buckle. Or maybe it is the combination that is causing the problem. I have tried lubricating drops, but they didn't relieve the discomfort. Resting with my eyes closed helps the most. I have been prescribed Durezol and Acuvail at various times in the last 14 months but, so far, no significant change has occurred. I am keeping my fingers crossed that my retina will flatten out. I really don't want surgery if I can avoid it. I get a little discouraged looking at the OCT scans and seeing the retina raised and cystoid. I am philosophical about it most of the time though. At least I can see and I have one good eye. I volunteer in a hospital and this keeps me aware of how lucky I am when I see what others have to cope with.
Thanks again.
Dr. Hagan, Thanks for your response. I have not had anyone mention the high risk factor for my other eye, so thanks especially for that. I think I was mostly looking for reassurance. I am retired and live in a rural area. I travel 2 hours for my ophthalmology appointments and six hours for the retinal surgeries. I did have an eye injection last spring of keterolac and had slight improvement for a time. I am hoping for the best with this CME but trying to prepare for the worst. This new life "adventure" is hard to explain to my friends and family so it is reassuring to read the posts of others on this forum. Again, thank you.
Use the search feature and archives and read the many posts by people that have had RD surgery and scleral buckles. Redness and pain lasting many months is a common complaint. Persistent CME is also a common problem. You may well need injections of a VEGF inhibitor such as Avastin, Lucentis, or Eyelea or you may need intraocular steroid injection for the chronic CME. You might try seeing another group of retina surgeons for an independent second opinion. Remember to take excellent care of the other eye as it has a high risk of RD also.