scerlitis

[Je26]

have finally been diagnosed with scerlitis, after suffering for the last ten years. Now I have thinning of the scerla and the cornea.I'm only 28! I have had pretty much every test done. I have seen two RA a GI and cornea sp at the mayo.My next step would be Miami, I worry about them not being able to help me either?Do you think I should make the trip down? My eye doctor thinks I might not every find out what it is from? How hard should I look for the cause? RA said, benign hypermobility and mild degeneration of the SI joint. Lopus is in my family Do you think I should do CAT? Thanks for listen!

[John C Hagan III, MD, FACS, FAAO]

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[Je26]

At least mine has been off and on for the past ten years,it used to be once a month and now it's like twice for a duration of about 4days each time. Good luck thursday! Have you heard of Dr Foster (www.uveitis.org) I have read really good things and he's in Boston maybe closer for you.talk to ya soon.

[ME147]

My RA , Neuro and Eye Specialist all finally spoke with one another and came to the conclusion that I have to have the lumbar puncture.   I was scheduled for tomorrow but just received a call postponing it until next Thursday.  I really hope that this will show something so that they can properly treat this.  My eye is still red.  Since July of 2006 I only had about 3 weeks of a white eye, and not all at the same time either.  I think that after this if I do not get results I too will be going to Miami.  Keep you posted.  Good luck to you and I would go see a Neuro again if I were you, it can't hurt and perhaps it may help!

[John C Hagan]

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[Je26]

sounds like you have had as much luck as I have with scerlitis. Have you had much luck with your neuro, I have thought about going to another one I went about 4yrs ago before I had a name for my eye issue. He did do a MRI and everything was normal.Do you think I sould try again? I'm not a doctor but from all of my research I think you should do the lumber puncture to try to rule out the lymes again I have read that could cause this. My next step is to go to BP in Miami I hope they will have some answers. good luck!

[John C Hagan III, MD, FACS, FAAO]

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[ME147]

I have been diagnosed with this over a year now and no one seems to be able to tell me the cause.  I have had blood test after blood test, MRI's, Cat's and nothing.  The next test they want me to take is a lumbar puncture.  Waiting for my RA and my Neuro to speak with one another.  My eye specialist from NYC suggested the lumbar puncture.  My RA even suggested Humira.  At a stand still and my eye is red since July of 2006.  I hope you have better luck!

[Je26]

Yeah! I guess I would rather not know, then have some sort of autoimmune issue. Thank you for your time.

[John C Hagan III, MD, FACS, FAAO]

They don't get any better than the Mayo Clinic. It is not rare to be unable to find a distinct cause of scleritis, in some cases the cause becomes evident years down the road when some sort of collagen, metabolic, myeloproliferative, infectious or other disease develops.

If you want to go elsewhere I would simply ask the doctors at Mayo's what outside opinion they would value most.

As for a CT scan some sort of orbital study either a CT or MRI would be helpful if not already done.

JCH III MD