Looking for doctors specializing in Axenfeld/Reigers Syndrome

[KELBENDAVMAR]

I have a sister who is in her mid-50's and a nephew who is 16 both of whom have Axenfeld/Reigers Syndrome.  Both have undergone extensive treatments and surgeries on their eyes due to severe glaucoma.  They are under the care of a highly qualified opthalmologist specializing in glaucoma treatment.  My sister underwent a routine procedure last week and since then has had considerable vision loss.  Ultimately, we are looking to get our hands on as much information as we possibly can about glaucoma as it relates to Reigers.  We are interested in reading any writings by a physician(s) who has extensive knowledge about this syndrome and perhaps even consulting with him/her.  Do you know of such a person(s)?

[JodieJ]

Try googling "glaucoma Axenfeld/Reigers Syndrome".  Then scroll down to the "Yahoo Answers" link about this condition.  This seems like an excellent place to begin your reading.  The answer must have been written by someone with technical expertise, and the page contains links to other websites.

You may eventually want to check out some of the other links that Google provides.  You could also check out the latest professional articles on the topic at pubmed.  (Google "pubmed" for the address.)  By then, you will probably be an expert yourself about the condition.  

[Michael J Kutryb, MD]

For starters, I suggest you contact Wills Eye Hospital in Philadelphia or Wilmer Eye Hosptital in Baltimore.  If you are on the west coast. UCLA Medical Center.  In Florida, contact Bascom Palmer Eye Institute  in Miami.  Any excellent glaucoma specialist professor at these programs, should be able to help.

MJK MD