I would like to talk to you as I too have MCTD and eye pain diagnosed a mayo as trochleitis w trochlear migraines. I also have raynauds, dry eyes, vasospams. Have had 5 trochlear injections. I don't know how to find you. So if you go to YouTube and type in 'trochleitis research ple...ase" you can rech me there. Ggw
No I have no suggestions and you're at a world class center.
JCH MD
Hello,
I have MCTD, combination of Lupus, Scleroderma, Sjogren's, raynauds, vasospasm, vasculitis, etc et cetc, and after NUMEROUS visits to Bascom Palmer, the finest eye hospital in the country, the ultrasound tech found the cause of my suffering... not the doctors. I am grieving because I've suffered so long without knowing the cause. Now on 60 mg oral pred and pred eye drops, the acute phase is subdued (I also had an episode of episcleritis immediately prior to this flareup) but I've been suffering for years, and they just called it migraines and post-concussive syndrom from accidents and whiplash. It's like having a baby out of your eyes, you all know the pain.
I intend to save the shots for sever flareups, but I want to be able to read again. i have already applied for disability but still want to be able to function!! Any suggestions for practical life therapies??!!
Thank you,
hypopottiepie
No I have not had a patient with trochlitis treated with neurostimulation. you are at a world class center. You might ask about seeing a rheumatologist and trying oral immunosuppression (pills)
JCHMD