Eye muscles get infiltrated and thickened in this disease which prevents them from performing their normal contractions/movements. It is one of the most frustrating eye problems to deal with but with the right doctors you may find some relief. Don't rule anything out until you see the specialist.
HV
Thank you so much for the information. I am going to see a specialist on April 1st so hopefully I will get more information at that time. I really don't want to have decompression surgery if it won't help the movement. The entire thing is very upsetting and I just want my eye to look and work properly again. I don't understand why the muscle quit working in the first place. Thank you again for your help.
Terry
Decompression surgery is called for in cases where the eye is very dry from exposure or there is pressure on the nerve. It will not fix the eye movement but may be a first step before needing eye muscle surgery to fix the double vision for straight ahead vision. Unfortunately, in most cases full motility does not come back to the muscle as it has lost it's regular functions. If you have doubts about the need for surgery, see an oculoplastic specialist (eye MD with training in plastic and reconstructive surgery) for a second opinion.
HV