Dear Dr. Kutryb ,
Your simple comment is a good summary for the case . Thank you for that strategy.
Prof. Sinno treated carefully my daughter and now she is in her 2nd Grade at one of the best schools in Lebanon. She 's now 7 years old and asking many questions about her ocular albinism case . Prof. Sinno retired and I can't find a doctor at the current time able to start a genetic research here in Lebanon because no one takes care of such cases or they have different plans for more advanced reseach . I'll try to upload some of her photos to this web where you can see her and if you know a fellow member of your community in Lebanon , qualified to discuss the case ,please tell me .
If he truly has albinism or ocular albinism, it will not improve on it's own. Someday, genetic treatments may be available but I cannot say how many years down the road. Ocular abinism usually causes the patient to have nystagmus where the eyes flutter or twitch back and forth,usually side to side. This is called nystagmus and these type of patients are certainly not blind but are visually handicapped. None of us at present, know what exactly your child has, so I was just listing a few things about true albinism.