op

[MEKO60865]

okay here i go. i have had a mri and spinal, and blood work , i have had left eyeball or orbital pain for 1 year now. told it was pseudotumor? on prednisone. imflammation? okay what causes it? i cant live in this pain any longer. the neuro siad to ask my eye dr why i have so much pamadilla edma?? whatever in myeye behind my eye? optic nerve swollen? feels like sinus pressure and er and jaw pain  and my left eye feels like it has a migraine, not my head? what could this really be? i dont wanna loose my eye? the eye neuro seems not worried or too busy to get back w me/.
? what kind of dr can i see? imflammation of the eye?i cant even go to work, im depressed!!! confused? and angry.. i cant live on predisone? dont i nd a fluif pill? diamox?or what? feels like my eye is buldging some?i scared. ive been to this eye neuro since 10-07. do i need a different eye neuro. i hate starting over. he has my mri and all test from the regular neuro and has not called me yet? damn i hurt

[John C Hagan III, MD, FACS, FAAO]

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[boop1]

I had a biopsy? now it really hurts!

[boop1]

thanks

[John C Hagan III, MD, FACS, FAAO]

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[Giveypup]

I concur with the ophthalmologist's recommendation that you should consult with some of the above-mentioned excellent eye institutes; Estelle Doheny, however, is at USC not UCLA.

You also mentioned that you hate starting over.  I quite understand your reluctance, frustration, and fatigue, but all doctors are not created equal, and you owe it to yourself to find a neuro-ophthalmologist who can help you.  

Finally, all of your scans, tests, biopsies are your property, so don't let that yoke you to an ophthalmologist who isn't working for you.

Best of luck.

[John C Hagan III, MD, FACS, FAAO]

You need to learn as much as possible about this problem you have. Use search and archives to access the discussions we've had on these two eye forums.

This is a decent reference:

http://clickaword.info/CAWWebMDCache/Layman/cl567016.html

You only have two options:
1. Continue with your present neuro-ophthalmologist but demand better communication and some sympathy and empathy.
2. Transfer to a differnt group of physicians. The Department of Ophthalmology at a nearby medical school would be a good place to go. Ask your family GP about a referral. You can also go to www.aao.org and find one near you.
3, Go to a world class eye center like Mayo Clinic, John Hopkins-Wilmer Eye Institute, U of Miami Bascom Palmer Eye Institute, Emory University in Atlanta, Estelle Doheney at UCLA, etc


A recent article I read in the eye medical journals recommended an orbital biopsy. If you have not had one you might want to discuss it with your team.

JCH III MD