Dear Deb1raw,
I would recommend that you speak with a neuroophthalmologist or pediatric ophthalmologist to determine whether any procedures may be able to assist you.
Dr. Feldman
Sandy T. Feldman, M.D., M.S.
ClearView Eye and Laser Medical Center
San Diego, California
I'm so sorry for your problems. It seems that you have a complete third nerve palsy at the very least. I have a patient now with the same exact thing. First of all, you need to know that effective treatment for this is very, very limited. It may end up that your best option is to leave it as is since the droopy eyelid will cover the outturned eye and relieve the terrible double vision you would have it the eyelid was open. I would consult with a board-certified pediatric ophthalmologist in your area and see if he has any surgical options to at least make things a little better where the eye might at least look nearly straight ahead (although proper movement would be impossible.) This is a very tough situation and in my experience, not much was done, but be sure to get a opinion from the expert in strabismus/pediatric ophthalmology.
MJK MD