Your problem does not lend itself to seeking answers on the internet. You sound like you're in good hands. Get your information from the Wake Forrest MDs.
i am seeing specialists dr yatts at wake forest but know one knows what it is am i trying to find out any other information about this that i can headache
Well it looks like you have orbital disese that was DX as thyroid but later changed to pseudotumor of the orbit. use the search feature and read the posts about orbital pseudotumor, also read the section on same on emedicine.
Its a serious problem and the cause is not understood. You need to be under the care of a neuro-ophthalmologist or a oculoplastic surgeon.