This is a 4 year old thread!
I don't know whether lambus is still around the forum or not.
My suggestion is you start a new thread by posting questions and/or your comments.
Cheers,
Niko
Hi, hope things are going ok, have you had any more news? Interested as I seem to be having the same symptoms as you, and with same response! I have just had a mri and been told it's clear, now waiting to see what happens next... I have just noticed that my foot has got worse and I'm tripping more. I seem to have good days and bad but mainly bad with the pain.
X
wow, I don't think I've ever heard of those blood tests! (I think I've only had just regular blood work done) I will have to look into those! Thank you for the info! :)
Hey iambus.
I can almost sense your pain and frustration in your post!
Have you done the 24 Holter ECG Test and the Blood Volume Test?
These are preliminary Pathogenic Mycoplasma tests and affordable.
As the above tests are not 100% "medically" conclusive- one must understand that this is a very specialized area of medicine with very few scientists and Doctors are familiar with it-the ultimate tests are:
Polymerase chain reaction test (DNA breakdown and Regrowth of Damaged DNA components) Specialized Blood testing (Dr. Les Simpson). A blood sample is sent to New Zealand for this test.
My suggestion is -if you haven't done so yet- is to get in touch with Dr. Garth Nicolson the expert in Pathogenic Mycoplasmas research and treatment. www.immed.org
These pathogens, when active, can take over the immune system and your life!
The greatest difficulty is detecting their presence, as they camouflage themselves wrapped in borrowed cell membrane. Very few tests and labs in the world are pertinent to this.
99% of Fibro sufferers have Pathogenic Mycoplasma co-infections.
And it is not exclusive to Fibro. It is connected with CFS, MS, Cancer, Aids, Parkinson's
Alzheimer's and more.
Please do a careful search on this. The vast majority of MDs including Rheumies, are either NOT familiar with this or...???
Hope you find the answers you are looking for.
Blessings
Nikodicreta
I saw a rheumetologist almost 2 years ago who told me that (before doing blood work) that my symptoms were all in my head :/ I've been tested for Lyme, lupus, sjorjens, thyroid, diabetes, plus the usual blood panels for everything (many times in the past 12 years) yet no diagnosis. I had a GP who said my symptoms sounded like MS or fibro but after doing a (partial) MRI that came back clear he told me I had depression (even though I told him I definitely was not depressed!) I don't know where to turn to :/
Getting a fibro diagnosis is a long process because doctors first have to rule out life threatening conditions. They will usually order blood work and x-rays- if all those are normal that's when they will start looking into a fibro diagnosis. I would suggest seeing an Internal Medicine doctor or a Rhumetologist(sp)- in my case, I was diagnosed by my family doctor... All the best to you
Hey iambus.
Please read my response to"Why are there so many doctors who do not beleive in fibromyalgia? earlier this month. You may find some helpful information there.
Take care.
Blessings
Nikodicreta
Thank you for your response :)
I have all of those symptoms with fibromyalgia except for tripping a lot and it is very rare that my foot does not work like the way I think you are describe but once in awhile it does happen.
When I was getting diagnosed, I didn't actually realize just how bad they were until the rheumy checked it for me, but I still felt pain in that area and sometimes I can really feel them.
I hope they are able to find out what you have.