I get burning sensations, and sometimes my shoulders have the burning pain you're talking about. I also get definite neuropathy in specific places, like my scalp. I also have the typical burning on the tops of my thighs. I don't know exactly what the neurologist is talking about, because neuropathy and parasthesia ( I have both) are both a big part of FM. And, the thing of it is, you could have FM and something else, because this is extremely common with FM patients, so I would say that's what is most likely going on here. I don't believe it is one or the other, because most of the FM patients I know have multiple dx.
Just wanted you to know that I get the burning sensations in my neck and shoulders on and off. I have the pins and needles type sensations in my feet and sometimes randomly through my body but I was tested positive for peripheral neuropathy. Did your doctor actually do any tests for that? I would ask again or get a new doctor.
I also experience burning sensation from neck and back of head.
Tingling sensations as well on side of face.
As well as headaches and neuropathy in the scalp>
Aside from this, pains at the back,shoulder blades,chest,buttocks,and lower leg pains.
I still do not know what is my problem.
No doctor can identify these symptoms.
Please respond anyone.
A year ago, I was experiencing burning sensation all over. I am an FM patient. It was a combination of meds I was on, I was having allergic reaction. When I stopped one particular med, I was fine.
Can you advise what are your meds and how do you take them.
And what is the med that you particularly stopped.
No specific meds as of now for me..
Trying to gather info.
My burning sensation was directly related to my peripheral neuropathy which is caused by my active Epstein Barr Virus. I am on Gabapentin 100mg 3xday for that and it has worked. I would be curious to know which med you stopped taking too Inga. as for Jon799, what doctors have you seen? I would think with your symptoms, that you should be seeing a neurologist. Have you seen one?
I was taking seroquel at night in combination with a muscle relaxer called orphenine compte forte (can't remember spelling-I am out and about). When I took the two together I had burning sensation all through my body-mostly chest, mouth, head, arms. I ended up in hospital over it-very scary. I can take seroquel alone in a low dose tho- just not with that particular muscle relaxer.
When I was hospitalized, i was diagnosed with peripheral neuropathy without tests counducted.
Neuro ruled this out due to, tingling and numbness in lower leg and face.
Gave me neurontin but I stopped due to side effects.
When I had stopped this, I still experienced all the symptoms but has lost recently my appetite, Is this due to the withdrawal.
I was on Neurontin 2x daily for 7 days.
Any thoughts please.
What is Epstein Barr virus?
I was never tested for this.
Thats why I told I was diagnosed with peripheral neuropathy without tests.