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CFS Advocacy
How to write to CFSAC - deadline October 15 for submissions
For those of us who have CFS and who have witnessed the CDC do some questionable things, such as cut funding for CFS research, etc., we have a chance to submit our testimony and let the government know that there is something very wrong when one out of every ten people now are being diagnosed with CFS after they have mono. If we don't stand up for ourselves, then who will ?
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the Department of Health and Human Services, Office of the Secretary Office of Public Health and Science, U.S., will hold a meeting October 29, 2009, in Washington where the public is invited to participate and/or submit printed material for the meeting. Submissions can be five typed pages or less. The submissions are copied to the members of the CFSAC in advance of the meeting and are also placed on the website (one can say one doesn't want to do the latter as far as I know).
People from outside the US can give written submissions to the CFSAC meeting. The deadline for submissions is October 15. The details are in this: http://edocket.access.gpo.gov/2009/pdf/E9-21334.pdf Basically submissions have to be sent to: ***@****
For those of us who have CFS and who have witnessed the CDC do some questionable things, such as cut funding for CFS research, etc., we have a chance to submit our testimony and let the government know that there is something very wrong when one out of every ten people now are being diagnosed with CFS after they have mono. If we don't stand up for ourselves, then who will ?
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the Department of Health and Human Services, Office of the Secretary Office of Public Health and Science, U.S., will hold a meeting October 29, 2009, in Washington where the public is invited to participate and/or submit printed material for the meeting. Submissions can be five typed pages or less. The submissions are copied to the members of the CFSAC in advance of the meeting and are also placed on the website (one can say one doesn't want to do the latter as far as I know).
People from outside the US can give written submissions to the CFSAC meeting. The deadline for submissions is October 15. The details are in this: http://edocket.access.gpo.gov/2009/pdf/E9-21334.pdf Basically submissions have to be sent to: ***@****
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