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Avatar universal

Canada Pension Plan Disability

I am wondering if there are any Canadians out there that receive CPP Disability. I applied and was denied. I have put in a second try. They said I should be able to work somewhere even if I can't go back to my work. I can't use my hands for more than about 15 minutes and they start to throb like an infected tooth. I can't stand for more than 10 minutes and then my back feels like it is going to break. I can't sit for more than maybe 45 minutes. I asked the lady what kind of job I am suppose to look for with all my problems and she replied it is not my department. Can anyone give me any ideas. I wrote them a 5 page letter with all of my problems.
19 Responses
Avatar universal
You may want to check out the following web page and browse the site in general a bit as well.  I have CFS and I'm a few months away from having to apply for disability, so I'll be very interested in hearing how it goes for you.  Anyway, here's the page:

http://www.mefmaction.net/Patients/Disability/CPPBenefits/tabid/158/Default.aspx

Honestly, I can't imagine ANY job you could possibly do with your limitations, and I think that very much needs to be reiterated.  It sounds to me like you got a very prejudiced review by people who have probably seen far too many fakers...or at least have decided that they're all fakers.
Avatar universal
It will be very difficult to get CPP disability  for fibro or CFS........My deceased husband was partially paralyzed after a stroke.....and he appled many times and was always turned down....the man I am with now has Progressive M.S. and he got it without a blink of an eye.....because his M.S. is incurable and a death sentence for him and he will only get worse.....but if you are thought to be able to do some form of work......you will unlikely get CPP disability.  It is impossible to get it even from the province ODSP for fibromyalgia, CFS and even for Crohn's Disease as all are considered to being able to do some form of work.  You will definately have to have your doctor fill in your medical part of your application for CPP disability...and if you have other disabilities other than Fibro,CFS....then they can also be focused on......it really all depends on what your doctor says in the application.....as to ...how far you are able to walk without sitting down for several minutes, or that you cannot walk at all or do you use a cane....etc.etc.
It has to be pretty bad before you can get CPP disability....
741900 tn?1235164218
Hi, I'm on CPP Disability. I have been for close to 19 years. I  have Fibro. but also Lupus, Anti Coagulating Blood Clot Syndrome, Raynauds and a few others. When I was diagnosed with Lupus, I had to leave work. Started on Short term disability but had to go to long term because of my health failing. I applied to CPP Dis. with every letter, notes from all my doctors. Hospital visits (there were many) anything to prove that I couldn't go back to work. I was approved right away.

Keep applying, get your doctor to fill out the medical forms. Letters from all your doctors. Don't give up.

I wish you all the best......
Avatar universal
Thank you for all your comments. I have been denied once already. I was working in an office for the past 18 years. The Rheumy said I have probably had it for the past 24 years. I was diagnosed with Lupus then told no I don't have it, then it was Hepatitis B then no I don't have it, then it was Rheumatoid Arthritis, then no I don't have that either. Then they did a bone scan & was told I had Arthritis in my hips & shoulders. This flare started in October 2007 & hasn't let up. Did a bone scan & a miracle happened I don't have Arthritis in my shoulders or hips either. Absolute bull on the doc's part. I was diagnosed in Jan. 2008 with FM & he said it was probably always FM. I was put off of work in Feb. 08 as I can hardly use my hands for more than 5-10 minutes before they start to throb like an infected tooth. I am not good at discribing my pain. Both doc's of mine said I can't work the specialist said I have a severe case of FM & can not work, & so did my family doc. I asked the lady that called me, if I can work at something please explain what when I can't use my hands for more than 10 minutes, can't stand in one place for more than 5 minutes before my back feels like it is going to break, can't sit in one spot for to long & I am absolutely worn out after having to go get the mail at the end of the driveway or go for groceries. I said please tell me what kind of job to apply for & her response was that is not my department.
Avatar universal
Have the doctor's ruled out all of the other stuff like M.S.  etc.  I really hope that you can get CPP .....a suggestion Is to keep on trying and applying......hugs
Avatar universal
Yes they have tested me for everything even vitamin defisincy ( spelt wrong) and all came back okay. I have 18 of the 18 tender points. I have been suffering since Oct. 07. I have appealled, I guess the next step after that is tribunal?
Avatar universal
I have had severe Fibromyalgia since Nov 2008.  CPP has turned me down Twice and I have a hearing date with the Review Tribunal Board on May 30.  Just last week, CPP sent me a 3rd denial letter and a request that they deny my appeal.  They just ignore everything my Dr. says and dwell on things that point to negativities.  They are weighing my case on the word of a nurse that I saw one time for less than an hour over the word of my Dr. that has been treating me and is very knowledgeable in Fibromyalgia.  It is so rediculous.  Forgive me God, but I do wish severe Fibromyalgia on those CPP medical adjudicator for maybe a month.  Maybe then they will consider changing their minds.  I take 17 pills a day for FM, my pain and IBS, sometimes more.  I can't do any land exercise or get my 5 year old off to school some days.  BUT they think I can work.  Who do they think they are!
1530171 tn?1448133193
Get in touch with retired prof. Donald Scott in Sudbury.
He helps FMS sufferers with their diability claims, as he's kind of an expert
in this field. He's in Sudbury,On. just do a search.
Please read some of my recent posts in regards to helpful suggestions,
regarding FMS (or like conditions) improvement.
Or pm me for details.
Blessings,
Niko
509215 tn?1363539423
Hi there, it's been a while since I've written to you. I was just wondering if you know of any exercises that someone with fibro as well as many other conditions could do to help lose weight and to get into shape. I am already doing physio for my arms and back but it doesn't seem to be enough to push my body into gear. I know I don't want to over stress my body but there has to be something I can do. I changed my diet long ago for medical reasons so it probably could use a little bit of tweeking but over all, it's pretty good. Any infor you may have or suggestions would be greatly appreciated! Have a great week!
1530171 tn?1448133193
Hey supermomma531,
Nice to hear from you!
Where do I start? Sometimes a feel I can write a whole book when replying.
Low impact aerobic slower paced exercises, would be best suited for FMS,CFS and like conditions. Long walks, recumbent stationery biking , aquacise, slow swimming, mini trampoline gentle bouncing and walking,easy yoga without over-stretching.
Any aggressive/strenuous type of activity results in the production of lactic acid, not a good thing when it contributes to more fatigue and tiredness.

Visit the normal breathing website to learn about retraining your brain
to breathe normally. Most people with chronic conditions are shallow
breathers, thus contributing to even more lactic acid production.

Extra virgin coconut oil is a God-sent Functional food. Replacing your cooking oils that cause inflammation when heated, with EVCO that does NOT ALTER in higher temperatures, will result in higher metabolism and more energy-as it converts fast to energy and does NOT store as fat!
It is also anti/ fungal-microbial-parasitic-viral! Look it up at the coconut
research center website. Also check out Oil Pulling with EVCO.
Hope it helps!
Time for my long walk now.
Cheers!
Niko

509215 tn?1363539423
Thank you so much for your info! I'll have to look around my area for a salted pool rather than a chlorinated one as it affects my breathing big time! I do a lot of walking when I'm out for appointments and for work, but I guesss a little more wouldn't hurt! At least I hope not! I would love to get back into biking but can no longer bike cause it hurts to sit on a bike and ride for a while. Up unitl a few summers ago, I would go biking with my neighbour a few miles but found that my inner thighs and behind bruised way too easily therefore leaving me really sore and unable to do too much for about a week after, so I haven't been biking in a few years. Believe me if I could do biking again, I certainly would as I love biking! We do use extra virgin olive oil when needed. I've been thinking about getting a trampoline but also have to think about my 3 kids who weould more than likely take it over then fight over it! Kids are crazy! Lol! I've heard about yoga but have never tried it ao I will look for yoga classes or something to try. I also hve to think about the restrictions I'm on due to my arms and back. But I need to do something. I know part of my problems is when I go to aerobics, I try to keep up with them then end up burning myself right out so that is something I have to work on. Thank you for your help and knowledge! Have a great Monday!
1530171 tn?1448133193
You are most Welcome!

Olive oil is great - I grew up with it!- however, only fresh drizzled over
salads and veggies but NOT in cooking. Heat renders it like rancid not as bad as some other oils but still is subject to some damage,
it oxidises and in the body, just like all other oils, helps produce
free radicals and in time this causes inflammation.
You don't need more of inflammation for sure!
Coconut Oil does not alter chemically with heat, as it is a medium chain
fatty acid. great Energy and metabolism booster. Start with 2T daily and gradually go up to 4 daily. Check out the "Oil Pulling" online.
One the highest suggestions for wellness! I do this for years now and I get no more infections and my oral health is great.
Trampoline- make a schedule for your kids to take turns at different times.
You only need to do this 5-10 minutes max each time.
It helps tremendously with stimulating the lymphatic system!
Recumbent STATIONERY biking in your home at the easiest setting.
Try at a gym first when the have free trials/passes and see how you fare.
Yoga- get a video for soft and easy yoga. Your body is taxed enough. lol!
And you too have a great Monday and a great week!
Niko
Avatar universal
Hey, this ME/FM Action Network is awesome.  I live in Southeast BC and contacted them by email on Saturday evening.  I already had a response by the time I awoke Sunday morning.  I am in touch with an advisor already.  He's from Edmonton so we are communication via phone, email and fax.  If my Review Tribunal hearing would have been in Calgary, he would have been able to attend and it's only 3 weeks away.  It's a little far for him to be able to attend.  Thanks for the link RobinHood.  Everyone in this thread should check it out if they are applying for CPP.
2154176 tn?1336599130
Hi, I have had fibromyalgia for over 10 years now, I am working part time right now in a department store and having a really hard time with it, I am trying to find out about getting some kind of disability, really dont know what to do or how to go about it.  Can someone please help me with some info?  I would very much appreciate it.  thanks Lori
1530171 tn?1448133193
Hi Lori.

Just read my earlier reply on this thread.

I live very close to Sudbury and the  Fibromyalgia expert,
retired Professor, form Laurentian, Don Scott-
lives in Sudbury too!
What a small world!
pm me directly if you need more details.
I know  a lot  about fibromyalgia.
Take care,
Niko
1530171 tn?1448133193
Hi Lori.

Just read my earlier reply on this thread.

I live very close to Sudbury and the  Fibromyalgia expert,
retired Professor, form Laurentian, Don Scott-
lives in Sudbury too!
What a small world!
pm me directly if you need more details.
I know  a lot  about fibromyalgia.
Take care,
Niko
Avatar universal
So I figured everyone talks on here so maybe I'll tell my story and since I never got the chance too.

I would just put mine as well,i started working when I was 15, I have asthma and anxiety. The doctor wanted me to take anti depression pills for just my period and birthcontrol for the fact it was unusually heavy and the anti depressions so my hormones wouldn't be so imbalanced. Because of my period my was also anemic.( still am) anyways I worked my way up just like everyone else made it to a managers position by time I was 20.

However I then started having seizures, everyone was calling them something different, grand mal or Sudo . I was having about 10 or more a day. I wouldn't remember having them. After awhile I knew when I came around to it from how I felt. But went and saw lots of doctors went to the hospital lots of times. Got the whole I see something come back oh it was nothing in my MRI so there normal but unconclusIf.
The weird part is my hands would lock or stiffen on there own and I told the doctor a lot about how much pain I was in, my knees always looks bruised.and I went from 220 down to 135 in about 4 months time. I went in one day Andy doctor said where is the other half of you. I was ( am) always tired. Anyways I lost my job, the demoted me from my position and actually wanted to fire me for dependability issues. ( you can help when your going to have a seizure)
Anyways years go by still same stuff and I try to get on cpp because I have seizures, anxiety, personality disorder, post traumatic stress disorder, copd and other kinds of anxiety disorders,and cpp denied me saying it wasn't a prolong illness but I applied when I was 24 now I am 27 still with all the same ****, but then find out why I am always in pain I have fibromyalgia. And I am waiting to find out what is going on with my pelvic because there checking me ovarian cancer. Every 6 months I have to go because I have now for the past 12 months abnormal cells and painful overies , so ya and I just found out today about fibromyalgia. Anyways that's me getting my frustrations out. Thanks and ya even tho I am 27 and have all this I still try everyday to make it count. And  take lots of pain killers. Lol
6577573 tn?1385008376
Get your frustrations out often! They dont tend to ease off completely, ever. I've been ill with every number of illnesses over my life and approx.12 surgeries. FMS is awful. I wont go into the rest other than to say I am currently going through the process of withdrawing from Oxycodone after being on them and other stronger narcotics for pain, for over 14years. Pain is going to occur regardless of the meds. You need to be asking about NEW meds specific for FMS and do it now.  
Please keep being as active as you can...but PACE. That means active a while, rest a while, active and rest. Use a timer and set yourself accordingly so you don't overdue it. There is a great book called Strong Women stay young- use it!
Order, buy: HOPE & HELP for Chronic Fatigue Syndrome and Fibromyalgia by Dr. Allison Bested. (NUMBER ONE DOC IN CANADA)
Get to the library and read CURRENT books on FMS and Chronic Fatigue  Get tested for Lyme's Disease if you life in an area or get into areas infested with tics. REALLY!!
Eat healthier choices and be gentle with yourself. Getting into a hot epsom bath will help as well as getting into an Arthritis Pool Program or a hot tub to ease achiness.
Gentle hugs.
Avatar universal
Zumba!  I started doing Zumba dance last May.  Overweight, felt awful, dozens of big health issues.  I love to dance, you can be young or old, fat, skinny, in between, and move to your own abilities.  Great music and support at these classes.  I lost 12 inches, most from my big tummy..  (Zumba Gold is for those of us out of shape).. Take care, Cheryl
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