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Fibromyalgia Community
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Avatar universal

Fibromyalgia Newbie

I am only 25 and have all the symptoms of fibromyalgia, CFS and MCS. I am unable to get out of bed some days but because of my young age my doctor is not seeming to take me seriously. He tests my thyroid and iron levels and many other things, but has not sent me to a fibromyalgia specialists. Also I have not been able to get disability cheques, so I am on government assistance:(. Does anybody more experienced have any advice for me? This can be quite stressful.
5 Responses
1530171 tn?1448133193
Hi Brittany and welcome to the forum.

Could you please tell us more of your medical history and background?
Also include any test results regarding thyroid and iron (lab ranges also), and anything else medical or related.

How long have you been experiencing these symptoms, how did it all start
and what are the most predominant symptoms?

How do you sleep at night and are there particular times of the day that you feel drained?

What are your relationships like, family, friends, bf ?

What is your typical diet, your favorite foods and are you able to do any physical activity, such as walking, hiking, yoga, swimming etc?

Do you often feel stressed or anxious?

Any injuries,  surgeries or serious illnesses in the past?

Sorry about the... 20 questions, but I think it will be helpful if you can answer them.

I will be looking forward to your reply.

And hang in there, there are many things that can be done.
See this as a new beginning  instead of a dead end.

You must be having a lot of doubts reading this and I respect the way
you might think, because I used to be in your shoes a long time ago.

Obviously not any more, as I took health matters into my own hands
and managed to completely turn my life and my health around.

I have to forewarn  you that I'm very persistent, I have no patience for medical "bleep" and I'm a quick study.
It's a long story and one of these days I'm going to do a journal entry on this here, so anyone can read it.

Best wishes.
Niko





Avatar universal
:)hello. My iron was ok, I remember my doctor saying that in my thryroid tests, it came up as being a bit hyper. My symptoms started 4 years ago, thought no doctors would help me properly. I had developed deficiencies from a vegan diet, and I was given antidepressants, and was many times accused of anorexia ( i was very thin). I had a rough time with family and friends understanding my MCS sitiuation, and that inhaling chemicals would cause me mental problems, such as anxiety, depression, confusion.

I improved for a while, but for the last year and a half I've suffered greatly with fatigue, pain, food sensitivities ( I am well aware of a leaky gut) and a great intolerance to any stimulants. my energy levels fluctuate from hyper to extreme fatigue, and this depends greatly on my easting habits, or stress.

I often don't sleep well as I have severe gastritis which i have had for 2 months.

when i was 15 i suffered from this and presumably ulcers for almost a year.

I do exercise probably a bit too much, as i walk many places. Im trying to rest more, and just do some stretching or short walks.

I eat very healthy: fish, fruit, nuts, some meat, healthy fats/oils, lots of veggies. kefir. gluten free, usually grain free.

I have good relationships, a great boyfriend, and family. though i often still become depressed now and then. i become so fatigued, and i lay in bed until the afternoon with pain, heart palpitations, a very sore throat, and very low motivation most days.

I'm expected to look for work, so I do. I fear being cut off my government assisance, though when i try to help my boyfriend with his tree company, i can't do much at all and i'm tired. I suppose I will need an advocate to get disability.

Thank you for your concern, also I was tested for heavy metals and i cam up high so Im starting on magnetic clay baths.:)

Brittany Schluter
1530171 tn?1448133193
Hey Brittany.

Hmm, it seems that overall, you're doing the right things.

There might be a concern with a few possible deficiencies

Cholesterol would be one, which automatically causes difficulty in vitamin D
absorption (it is fat soluble and very low in people with low cholesterol levels), and low D in turn may cause low B12!

Hormone production is highly dependent on adequate cholesterol levels.
I think total cholesterol should be about 200mg/dl

Low cholesterol may alter the way neurons & nerve cells function, affect serotonin levels (low serotonin is linked to depression, mood disorders etc).

Your B12 levels in the event that your gastric acid levels are low, would be also low, due to the low intrinsic factor, vital for B12 absorption.

Do you know the cause of your gastritis? The majority of cases os gastritis are because of helibacter pylori
1530171 tn?1448133193
Continued,

I'll post again another time, as something just came up, but meantime, you may post again soon with any comments or questions you may have.

Take care.
Niko.
Avatar universal
i could very possibly be b12 deficient due to not having intrinsic factor. I'm not sure the cause of my gastritis. i always thought i have a weak lining. i am a low acid producer so perhaps i am slightly protein deficient (amino acids)?

i do eat a lot of cholesterol normally. is there anything that would affect absorption of that?

thank you for your info:) I continue learning a lot about this
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