I have ME/CFS and what you describe sounds so similar to PEM (post exertional malaise). I had testing done at the Pacific Fatigue Lab in Ca, and they did say that the burning is a lactic acid response, and that ME/CFS sufferers, for some reason, should never do aerobic exercise as we build up lactic acid, unlike other people who can maintain low levels of aerobic exercise for long periods. Since fibro and ME/CFS seem so closely related, I suspect it is a similar problem.
Thanks for responding. They do sound similar. I found many doctors stating exercise will help with the fibromyalgia pain. But it sounds like it would feel worse. So like aerobic exercises like running, swimming, walking would not benefit but actually make us feel worse? It sounds like we can't tolerate long exercises like 30-60 min ones because we have increase lactic acids levels. And thats what doctors always suggests. Anaerobic exercises, one that do not need oxygen is like a few second sprint, running up stairs, or weight training. Very interesting. It starts to make sense to me why the longer I use the muscles, the worse I feel. I never heard of post exertional malaise but I will look that up. Did you see a rhematologist to be diagnosed?
In my search for answers I've seen the lactic acid issue mentioned. It was suggested that when starting any kind of exercise that we start very slowly and then slowly work up. Some people can only handle a minute to start. Easy on our bodies exercises like walking and swimming are the best for us. We need to look at how athletes handle their exertion. Stretching is the best thing and then utilizing heat &/or ice on our muscles can help. We must be aware of our limitations. I think all of us are guilty of overdoing it on a good day only to pay for it dearly.
In my (limited) understanding, I believe that gradually increasing exercise is recommended for FM, but it is the opposite for ME/CFS. ME/CFS is all about pacing, keeping heart rate down, etc. I don't know if this fits your experience, but I liked this article
Well, its been a year since the original post. Any good news - lactic acid wise?
I'm looking into lactic acid and muscle pain relations as I have Hashimoto (autoimmune low thyroid) and always had muscle pain after exercise that took days to heal. This always bothered me since ive been somewhat athletic all my life. Continuous light exersise helps as maintenance to prepare for more major exercise. But its a fine line between enough and to much. Like you I also have vitaligo. Now that I finally have my thyroid symptoms under control, its evident that I still have some abnormal muscle tightness.
I did learn trigger point therapy or (myfascial muscle release), which helps relieve but not prevent the tightness. I do that mornings and night when needed. It helps a lot.
I had no idea you could get lactic acid tested - that's one thing I need to do. I read that sodium bicarbonate lessons the lactic acid - what body builders use sometimes. - I cant take that with thyroid med though, and no one should on a regular basis.
I just read that lactic acid build up causes fibro fatigue. The best remedy is moderate exercise. When you feel the burn from the lactic acid, it is time to stop.
Google "foods to prevent lactic acid build up."
Anything that interests me now a days is more on the natural side.
People it's called chronic metabolic acidosis. It's easily treated with baking soda water. 3x a day 3/8 tsp. morning none and night. Don't take with food allow one hour before or after meals. That's it. There's your cure it will take about two. Weeks to be back to yourself.
Check our Dr.Mark Vink's paper on his CFS and his research on himself.
This theory is very interesting. Oddly enough I just read that apple cider vinegar can be useful after exercise to break down lactic acid build up. I have had fibromyalgia for 10 months now and having read that about the vinegar it made me wonder about a connection, I googled it and here you are making that exact point ( though far more intellectually). Hate to gross anyone out but due to temp. fluctuations I sweat, the sweat doesn't seem right, it kinda smells strange even though clean and fresh and urine tends to have an odd odour much like that after eating asparagus. I suffer anxiety also and feel at times like I am full of toxins, just like an infection making me wonder if this is more about organ function than symptomatic
as my stroppy gp claims ( my gp has been very unpleasant since admitting it it fibromyalgia).
Has anyone else had dry red patches on their shins for a long while before their first flare up?
You are so right. I do exercise and it does help me. However, I have to be very careful not to overdo because there is a fine line between not doing and doing too much and the repercussion is severe.