Fibromyalgia and RH negative blood group

[sislevi]

Hi

I'm interested to know if there are many FMS sufferers who have a RH Neg blood type.  I have seen quite a few people on forums who have FMS and are also RH Neg.  Does anyone know if there is a connection?  I would be very interested to find out.

I have been diagnosed with FMS and also have a RH Neg blood type.

[SweetMeadow]

I'm 29, was diagnosed at 23, after my 2nd c-section. Before my beautiful babies, I was alright. But my legs would ache pretty badly once in a while. When I was diagnosed, all I could think was I'm too young for this crap. I'm also O-, fibro, arthritis in hands, knees, starting shoulder, and ankles, completely exhausted but have a hard getting to sleep at a reasonable hour, anxiety, seizures, bi-polar, headaches, crs (can't remember s***), and extreme aches and burning in my thighs and knees, feels like my bone is going to just burst, but that is "not consistent with fibromyalgia". I've been on so many meds, have every test done under the sun, and am beginning to lose hope. Depakote, Cymbalta, Trazodone, and Neurotin. Well, I'm definitely not freaking out all the time anymore and am a bit happier, I guess(or zombified from the meds) but wish they could figure this pain out in my legs or help make these days bearable. I don't care what other people or any doctor says, this isn't in our heads. It is real and just hurts inside and out.Sorry,way way longer than I thought it would be. But that blab fest felt great:)thank you guys for keeping this one going! Fingers crossed that there's help on the way sooner than later!! ♡ ♡ ♡

[Loops1980]

I have the same pains with my leg, I've been suffering from it for around 8 years now with no diagnosis. It is ridulous, I've had all kinds of tests with no resolution. I am A RH- blood group, I was interested in you post as my symptoms seem to be genetic as my three sons all with the same blood type have one by one complained about the same pains. We have been fobbed off by doctors stating that they are simply growing pains. But there is too much of a coincidence. I am very interested to know if similar pains are brining felt by other members in your immediate family with the same blood group. Hopefully there is a doctor out there that can help us.

[Glo_bug]

Look up Hyperparathyroid

[CS1964]

I have Fibromyalgia and am O-.

[Ennahoj]

Not sure if this thread is still live.
I have fibromyalgia, chronic fatigue, anxiety & ankylosing spondilitis and I am rhesus negative. also had miscarriage when younger.

[Ronilynn822]

Wow!!! Amazed why this isnt being researched!! I too have FMS and am RH-. Ive been doing some personal research in this field. Just a quick question, what us everybody ethicity? Anybody born with Red hair? Anybody have alot of food allergies? Ive heard some theories about all these being related. My heart goes out to all my fellow FMS family. Just take it one day at a time. May God give you strentgh to get through your days.

[Pittshug]

I know this post is very old, but I think it is odd how many of us have Fibro/CF and are Rh negative.  I am O negative also.  Wonder why more research has not been done on this!

[Brighteyes907]

I have RH negative blood (O-) and have been diagnosed with FMS, anxiety, chronic fatigue, chronic pain, nerve damage in neck,adult acne, migraines. I have severe back pain with multiple big knots that don't seem to ever go away. The first massage I had at 16 my physical therapist stated I had bigger and way more knots in my back then older adults she has seen with years of back problems. I have a terrible immune system as I am always sick, even with vitamin supplements and other preventatives. My memory is poor. I have a difficult time trying to keep up, my body feels old and tired. I feel as though I'm getting worse and it's all throughout my body as everything hurts, breaks out or takes forever to heal. I am 35, I have birthed 4 children, getting the RH shot with each of them. I have seen many doctors and tried many medicines and/or treatments. I have received many answers but none seem to work for me.

[Brighteyes907]

I have RH negative blood (O-) and have been diagnosed with FMS, anxiety, chronic fatigue, chronic pain, nerve damage in neck,adult acne, migraines. I have severe back pain with multiple big knots that don't seem to ever go away. The first massage I had at 16 my physical therapist stated I had bigger and way more knots in my back then older adults she has seen with years of back problems. I have a terrible immune system as I am always sick, even with vitamin supplements and other preventatives. My memory is poor. I have a difficult time trying to keep up, my body feels old and tired. I feel as though I'm getting worse and it's all throughout my body as everything hurts, breaks out or takes forever to heal. I am 35, I have birthed 4 children, getting the RH shot with each of them. I have seen many doctors and tried many medicines and/or treatments. I have received many answers but none seem to work for me.

[ScorpioAneg]

I'm not sure if this thread is still active but I wanted to post I'm 37, A- and have been suffering from TMJ, fibromyalgia, migraines and insomnia progressively since around early 20's.

[ScorpioAneg]

"&#39" = apostrophe

[JanuaryB]

Sorry for the double post.

[JanuaryB]

Ive just been diagnosed with Fibro too DSPD, Hypermobile joints, Raynauds,mild Osteoarthritis in knees and theyre doing tests to check for Inflammatory Arthritis and Connective Tissue Diseases  and any underlying pathology, im 47 and im O negative.

[JanuaryB]

Ive just been diagnosed with Fibro too DSPD, Hypermobile joints, Raynauds,mild Osteoarthritis in knees and theyre doing tests to check for Inflammatory Arthritis and Connective Tissue Diseases  and any underlying pathology, im 47 and im O negative.

[joannemuise]

I am rh - also with fibromyalgia ocd and dyslexic...i was left handed until school...then the nuns made me write with my write hand...i do everything else left handed..today i work in a shoe store and when i have to put shoes back in the box i get confused....sad...i can't do puzzles or shop at some stores if things aren't in order....anyway i get by...some days are worse than others

[lbland4099]

Very interesting, i am also O neg. And have fibromyalgia. Maybe i should do my doctorate thesis on this link.

[fmsgrl]

I have fibro and I'm A-. Very interesting.

[luvicecream]

I am also RH-.  Had the "shot" after first child born.  Developed fibromyalgia,
a few months after second child born.  For 18 years have been dealing
with fibromyalgia, chronic fatigue, tmj, endometriosis, gerd.  
Have recently developed raynauds real bad this past winter.

Also have recently developed longitudinal melanonychia in fingernails.
Dr. says low vitamin D.  Had complete blood labs done.  Everything good
except vitamin D a bit low. It was at 25.

[hurtz]

I also have RH neg blood type, and was diagnosed with CFS following a strep throat, and flu shot....this was years ago, and now I have severe chest pain, anxiety and was hospitalized...only diagnosis doctors could come up with was severe indigestion......yet my chest muscles are weak, and still sting and burn..I feel like I have the flu.....bummer.

[krum449]

Me too, O RH D Neg. I too have fibromyalgia
How many of us could there be.
This needs to be investigated. I have often thought my FMS is related to some sort of blood problem......

[painometer7]

Hi Thanksgiving, how are you?  I have not been on this for a while, just quickly on to say thank you for the last post and advice you gave me, I am in so much agony, the pain is getting worse.  I am still waiting on the pain management team to contact me, it's been a while since I was last at my GP, she has resigned herself to the fact that this is all in my head.  It makes me feel like screaminng at the doctors that I am not insane but I will go insane if they continue to fob me off.  The pain is constantly burning in my chest, expecially after I eat.  I am going to try cutting out all the carbs including, bread, cookies, cakes, certain fruits, crisps (potato chips), also, certain meats and cafffeine. The list of all the foodstuffs you listed that you have sound yummy.  I think my symptoms flare up and are certainly worse after eating, I am sorry if I am repeating myself.  I started a new job a month ago.  I am a lab technician and there are a lot of things to learn and remember, the thing is, I keep forgetting things that I have been told, and I am scared to mention to my new employer the extent of my fatigue, pain and memory problems.. I had the opportunity to include all of this information when I signed the contract and occupational health questionaire, but I didn't because I was afraid I would not get the job.  I am looking into all the links you gave me and others that I have seen on this regarding Rhesus negative, auto-immune diseases and fibromyalgia, I will take your advice and look at the mononucleus. I fear every night when I am propped up like a wee old lady in my bed (I am 39), that I will have a heart attack and die during the night, I keep telling myself that I will survive,m because the doctors said that there is nothing wrong with me.... I also remember when I was doing my studying at college and brief time at university, that when people have overgrowth of yeast in their body, the spores can attach themselves to other organs, for example the heart and the lungs, and when we feed the organisms with their foodstuffs they need, such as all the ones that I should avoid, then they will continue to grow and give off toxins into our blood, which causes the pain and burning and aching and fatigue....these organisms apparantly are not shown up on scans and xrays as they do not have endosceletons, could you maybe confirm this for me?  Anyway, i will have to go as I need to get up at 7.30am and it is now 01.12am in GMT, London...Good night and thank you and hope you and all our fellow sufferers get through another night.  I will be in touch soon x

[thanksgiving]

I am A- and am ADD, think I have Ehlers-Danlos, hypermobile joints, hypo-thyroid and most of my family have one or the other of ADD, ADHD, Bi-polar, vascular disease. I do think that negatives are more prone to these issues. My brother is positive, and so are his children, and neither of them have these things. It is very difficult to get medical people to look at this, and it is very complicated and involves more than just blood. I believe that the negative blood is just an indicator of a lot more. Keep searching. My son is ADHD and he has really had a struggle all of his life with various issues. Hang in there and let us know how things are going.

[hyperactive]

hi i have cfs/ me and FM and asberger and think i have ADHD but get no help with ADHD and just told i have A -

[thanksgiving]

Hey, I am in a hurry, so will get back later, but from all I have read (many yrs of research) there is an overlap on this stuff, and sometimes the Rheumotologist are not too good with this stuff, I am going to a geneticist for the final answer. Keep looking, yu are on to stuff, like I say my husband is saying "Let's go" will get back.

[NanaBerg]

Thank you so much for the information. I never heard of EDS till this forum mentioned it. It is something I need to look up on.I often wondered if EDS is something my Mother had along with the Lupus. Guess i will never know, but will wonder about.

I will be seeing my Rheumatologist this week, and I am going to be asking her a lot of questions EDS being one of them. Have you ever tried Lyrica, My Rheumatologist does not want me taking it because its side effects are wait gain. Guess maybe I'll weight more then 140 pounds ....with my decreased appetite I don't think its going to matter.

Well, thanks again for the info. and I will  be back on here soon. I only sleep a few hours last night so its time for a nap. It seems like sleeping for me is a thing of that past. What about You? Hope your having a good day.

Blessing,

Kathy

[thanksgiving]

Here is a place you can get some answers to these issues,
http://www.rhnegativeregistry.com/autoimmune  And another one that is just the site for negatives that is good is
rhnegativeblood.ning.com These are great web sites, and I could be wrong but I am ABSOLUTELY convinced that there is a connection, all this stuff is in my negative family, and I have been studying this for yrs. It sounds like you are really struggling, and I am so sorry about that, my heart goes out to you. It is important that people like you be pro-active in researching this and giving feed back where ever you can because the medical field is just not with it, although there are some places that are actually looking into this. A lot of people who have hypermobile joints, as my self, have Fibro, and the Rheumatologist told me this, but I believe mine goes even farther and have Ehlers-Danlos which is a collagen problem, that weakens the connective tissue, ligament, tendons and muscles. The place to get the answers is a Geneticist. Most Rheumatologist are not to good in this area.
There is another site I go to which is called *********** which deals with a lot of things you speak of. Contact me any time.

[NanaBerg]

Hi,

I have been diagnosed with FM and CFS since 2006. Both have gotten progressively worse. I cannot work anymore or carry on with daily chores. I have been taken several medications like, Savella, Lyrica, Hydrocodone, Trazodone and Baclafone. Just to name a few... the list goes on and on!  I feel like a Zombie most days but have to start living my life before I loose it. Oh, by the way I am only 43 Years old! I have read all the post to this discussion and also believe that RH negative blood may have something to do with FM and CFS. I think someone should do a thesis on this!  Both my parents had RA and I believe my mother had RH Negative  Blood. She was diagnosed with Lupus at a Very early age, like 20ish and she passed at the age of 61. My son has the same signs and symptoms as we all do, and was born without a immune system and has been fighting viruses and illness all his life. He has had Singles 23 times and he is only 21 years old. I might Add That this Forum is Amazing! Thanks to Everyone who has submitted their stories, It has helped me greatly. Blessing to ALL!