Fibro is a deep muscle pain; knees are bone, not muscle. I've seen a lot of people mention knee pain and I tend to wonder if they have arthritis, I have arthritis in some of my joints which include my knees but I never consider that pain as my Fibro pain. That always hits me hard in the thighs and hip areas. Just to sit on a toilet can be very painful. The siatica nerve can cause a very sharp pain in the back and down the leg, but that is a different type of pain as opposed to Fibro pain.
Hello, all.... I've been posting around the MedHelp site for a bit now, but have just landed here in the Fibro forum.
Before I post my question, I want to speak to LindaTX's question.
I saw my rheumatologist, who has been practicing for probably 35+ years, just four days ago. He and I got into a bit of a heated discussion about how to differentiate arthritis pain from fibro-m pain, and in the end, he said that whatever one calls it, pain is pain, and that in his practice, he's seen symptoms of osteoarthritis and fibromyalgia (I have both) overlap. He and I have a long-standing professional relationship and have developed a good rapport over the years - I don't think he was being "smart" or dismissive when he told me that. I don't know if that's of any help, or if it only made things more confusing!
To my question.... I have been working through my second titration package of Savella since Monday, (switched from Lyrica - can't take the lethargy and weight gain any longer, PLUS, I am not certain that Lyrica ever helped me with the pain).
After day four with the first Savella pack (25 mg. a.m. and p.m.), I punched the pills through the holes and flushed them. I was SO jittery, I felt that I just couldn't stick it out through to the ultimate 100mg./day dose.
Now, I am determined to try to bear with it, I'm "lucky" in that I've gained only 20 pounds during the seven months I had been taking Lyrica, but because my osteo-arth is so bad, I can't afford to add a single ounce, much less an additional pound. Not to mention plain old womanly vanity! LOL!
Soooo....my question to those of us who may be using Savella - has anyone settled on an effective dose lower than the customary maintenance dose of 100 mg./day?
I understand that everyone is different; nevertheless, I would very much appreciate any input anyone can offer me about this.
Thank You! :), and my very best of all of my fellow sufferers.
I think a lot of Rheumatologist want to place us in either two categories, the "has inflammatory arthritis category" or the "crazy fibro patient category" (especially true if you are under 45 years old). My doctor even has specially colored cards for each type of patient for check out when making your next appointment.
Now this is bad because I refuse antidepressants and also because I have moderate osteoarthritis on top of the fibro plus sciatica and nerve damage in my spine and DDD, so I need anti-inflammatories in addition to whatever else my doctor may try to push on me.
I do take an anti seizure med. I used to take Lyrica, but I too gained tons of weight, so I switched to Topamax and actually lost a bunch of weight. This works much better, but you have to be on a high enough dose for it to work. Also, a lot of doctors don't use this med for pain, but Keppra also works well too and it's a good alternative to the funky antidepressants they have out there. My thought is- I am not depressed- I am in pain. Enough said.
My thought is- I am not depressed- I am in pain.
I SO agree with that. At this same appt. on Monday, we also talked about total knee replacements. He said not to allow my "depression" to guide me in my decision. I told him that I am NOT depressed - more like irritated and fed up by the physical changes in my body, but not depressed.
The fits all depression umbrella - soooo annoying.
grendslori is right, about Fibro being a disease of the muscles, however it also can directly effect the nerves. Or it has in my case. And there are muscles and nerves connected to the knees to allow for feeling and movement.
So, if your pain is from Fibromyalgia it could be centered in the muscles, tendons, or even nerves in the knees.
My personal experience is that every joint feels like a dull ache with it being tightened in a vicegrip. This disease effects, tendions, ligaments & muscles. The scientific community is still trying to make headway as to what may cause this disease. Some theorize that it is hereditary while others believe that if you've been inflicted with a rhuemtoid disease in your past such as rhuematic/scarlet fever you are more susptible to contracting Fibromyalgia.
I'll continue to pray for all that have been inflicted with this as they don't seem to know a cure for us.