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Fibromyalgia Community
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Avatar universal

Fibromyalgia

Iam a mother with 2 young children and I was diagnosed with fibromyalgia 4 years ago.  Since then I have been suffering with extreme pain that never lets up.  I am curious if anyone else has ideas on which medicines work better for pain.  I also suffer from depression and anxiety issues.  I also have difficulty sleeping,  I feel so alone, because neither my family or friends understand my problems.  They think I do not really have medical problems.  I appreciate if anyone replies!  Thanks friends!
17 Responses
Avatar universal
I can't really answer your question as I do not take pain medications  but I noticed you live in a lyme endemic state and was wondering if you have had lyme disease ruled out.  It can cause all of the symptoms you listed and is treatable.
Avatar universal
I know how hard it is to live with FM and try to raise a family. I feel for you. I have 6 kids from age 5 to 19.  I am lucky that my family and friends have been supportive and have never tried to act like I wasn't really sick. Thank God! I hope that your family comes around and gives you some support in the near future.

I take Opana ER which is an extended release pain med and I take percocet for breakthru pain. I also take Lyrica for nerve pain, Trazadone and Flexeril at night to help with sleep and muscle spasms, and I am on Zoloft and bloodpressure meds.

I went a long time with no pain meds then to Tramadol then to Lortab, etc.... I have very high pain levels on a daily basis plus I have a high tolerance to meds so the weaker ones never worked well for me. The meds I am on now help more than anything else ever has and I am so thankful! I still have pain but it is a lot easier to deal with now.

I I really hope you are able to find something that helps you soon!
Avatar universal
thank you so much for your well wishes, I have been seeing a rheumatolagy doctor, but he is so hesitant to try percocet.  then when I bring the prescription to the pharmacy, they make you feel like an addict or a criminal, I am in so much pain on a daily basis, and I do not know what other doctor to go to see.  Iam so frustrated that I have a medical problem and can not get the medicine to help me.  What type of doctor do you see?  Thank you very much, sending you my good wishes
1000946 tn?1253807847
Im also a mom and I have 4 kids.........I didn't get Fibro until after my 3rd child was born and it was really difficult to be able to play with the first two and not so much the 3rd baby.  I went into a "remission" for a few years and  I was back to being my normal self for a few years and then BAM it came back with a vengence!  I also have an Anxiety disorder.

I turned 40 and a month later found out I was pregnant!  Now I had to go thru a pregnancy and labor with Fibro........it was bad!  And with this baby I got Gestational Diabetes too.  My fourth pregnancy was torture!  

So, your not alone..........its hard having little ones and having this disease.  I do have help though because my kids are older.........I have a 18yr old, 15, 11 and the 8 month....yes HUGE age gap lol

So if you need someone to talk to that can understand Im here.........just leave me a note or send me a message!
230948 tn?1235844329
hi i am a single mum to 3 young kids and i have had fibro since 2007 my gp does not believe this is all i have so on top of trying to cope with the pain she is sending me for tests i have found it so hard as like you are in so much pain on a daily basis. I find bacolfen helpful for spasms fenntanal patches for the pain this is an opiate and 80 times more stronger then morphine and sertraline an andidpressant.

If you suffer from anixty and depression cymblatta cant spell it but its an andidpressant good for anixty and nerve pain, i tried requip,lyrica and all had no effect and lots of side effects.

pm me anytime your not alone i dont have any family who can help and only the odd friend can help as they busy and got family of there own.

what are you on at the moment?
Avatar universal
Hi, this is 123 reddevil (Cheryl), thank you both for writing back to me.  I have tried cymbalta, paxil, elavil, lexapro, zoloft, prestiq, flexeril, soma, lidocaine patches, creams, most sleep medicines do not work for me.  I can not sleep or stay asleep.  I am so frustrated that doctors do not take me seriously or think that Iam a drug seeker.  What type of doctor do you see?  I can not seem to find a pain management doctor where I live in Brooklyn, New York.  Thank you for writing to me and I wish you all the best as well.  talk to you soon!
Avatar universal
You have to find a Pain Management doc in order to get decent pain meds. Usually your GP doc has to refer you before a PM doc will see you. But, you have to have a decent general doc that believes in the pain of FM so that he will send you to a PM doc. There are PM docs there you just havent found them yet and a lot of them dont advertise themselves too much. I guess they dont want the "real" drug seekers to bother them. Your general doc knows who the PM docs are....
230948 tn?1235844329
Have you tried fentanal pain patches these are an opiate and they are 80 times stronger then morphine you change them every 3 days it has helped me i would be bedridden without them. I have not been sent to a pain management place have you?

sam
Avatar universal
Hi, uk 2, thank you very much for writing me back.  I will try to find a pain management doctor. I have not tried the fentanal patches, the only patches that they gave me were called lidocaine patches, but they do not help me at all.  Is the morning the worst time for all of you.?  I can barely move and in so much burning pain in the morning.  I wish you all the best and keep in touch

                                               Love, Cheryl
Avatar universal
I dont know of any regular(non-pain specialists) doctors where I am from that would give the Fentanal patches. Doctors are supposed to have a special lisence in order to give strong narcotics to the same person on a regular basis. That is why I suggest a pain doc. They will give out pain meds more freely and on a monthly basis. That is what they do. And, you cannot go the pain doc without a referal from your family doctor... Its all a pain in the butt for us is what it is! LOL.

My pain doc prescribes all of my FM medications. I go to a family doc to keep up with my bloodpressure meds.

I went to several different doctors before I landed on a doc who has sort of specialized in FM. He treated me for almost a year with no luck in getting my pain to a tolerable point so he FINALLY let me go to a pain doctor. I cannot begin to tell you what a relief that was. The first perscription I got for percocet, I nearly cried from relief!! The pain meds certainly dont solve all of my FM problems but they sure make it easier to endure. The meds Im on now cut the pain tremendously.

I tried the Fentanyl patches and they didnt work very well on me. I still hurt way too much. I have a weird system that is overly tolerable to medication.

The Lidoderm patches you are talking about, are just topical anisthetic. They just work on pain in that exact spot and if the pain is coming from very deep inside then they dont work at all.
230948 tn?1235844329
Hi

I have asked to be refered to a pain clinic so many times but my gp seems reluctant plus they all have at least a yr wait unless you travel to a out of area one which i did and they said they could not help me as i had tried all the drugs there were for fibro and i needed a cognective behaviour course but i didnt go as its pain relief i need i know about the diet and pacing and relaxation and how to get acceptance but i cant even sit in a 2 hr course if i dont have pain relief i cant sit there that long. I guess there is only so much they can do i went from 25 on the pain patches too 100 they would not let me go any less then that the baclofen help with the spasms abit. I too get tolerate to most meds quickly i am the same with alcohol too i can take alot lol just the way i am when i had a c section in 98 the spinal block wore off i felt the whole thing they had to put me under they thought they had not given me enough but i think it was my silly body on the next 2 c-section it was writtan to give me more then usual lol worked though i didnt feel a thing.

sam
Avatar universal
I am so sorry you are having such a hard time getting help for your pain. I really do understand what you are going through. I have been through it myself and it *****! I wish you could go to the doc I found here in Louisiana! LOL! Wonder how long it would take you to get here?? haha

I have had 3 surgeries and do you know, morphine does not work for me at all!! We have the strangest bodies dont we?? They have to give me some other stuff for after surgery pain and a lot of it.
1 Comments
Fibrohurts, hi!  What has your doctor in Louisiana done/what has he given you that’s so helpful?  I reside in Mississippi.  
Thank you, Elizabeth
Avatar universal
Hi, this is Cheryl, I too have a low tolerance to medicines.  My body metabolizes drugs quickly and I never realized that other people have the same problem as myself.  When I had to have a lot of dental work, he had to keep on giving me needles, because I still felt the drilling.  That is why iam so terrified to have any surgeries or medical procedures.  I have been having severe stomach issues, and my primary doctor wants me to have an endoscopy, but Iam afraid that whatever medicine they use will not numb me.  I do not know what to do.  I have tried Xanax for panic attacks and that has no affect on me whatsoever.  It is something else to worry about.  Iam still trying to find a pain management, but no luck.  Talk to you soon!
15721369 tn?1442507956
My DR, finally, after trying everything, put me on Low Dose Naltrexone, it is not a narcotic, in fact in full strength they use it to help people get off drugs and alcohol, because of this you cannot take it with narcotic pain meds. It has been a life saver for me, i haven't felt this close to normal in years, i still have flares, but not nearly as bad as they were. Google LDN for Fibromyalgia, you will find a Stanford University study, and other great info. Check it out, it is worth it. also you need to get it from a compounding pharmacy because as of now it is only made in 50mg capsules, the max dose for Fibro patients is 4.5 mg.
Avatar universal
Hi, I am currently on a trial drug medication that has helped my intense pain stop.  However,  I continue to get dull achy numbness nerve pain.  Have you tried or will try alternative mediation such as acupuncture or biofeedback??  I am going to because the research for the medication will  be over in June and I will not be on any medication, they alter you inside, not my style.
Avatar universal
I would definitely look to a doctor that can help with that. I had a friend that went to Spring Creek Medical in Logan Utah and they saw almost instant results. I'd try to find a clinic near you, or even call Spring Creek and ask if they have any suggestions or advice.
Avatar universal
I have fibromyalgia symptoms triggered by a mosquito borne illness. I use monolaurin (amazing!) to get rid of muscle pain, exercise regularly (walking, yoga, stretching) to get rid of joint pain and joint stiffness and quit refined sugar, gluten and dairy. I am now in remission. I still suffer from fatigue but nothing like it used to be! This seems to be the magic formula for me. Also, I take magnesium citrate at night for anxiety and sleep. I sleep through the night for the first time in my life.
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