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Fibromyalgia Community
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1184051 tn?1264435308

Fibromyalgia

Hi
I am new to this site, but my doctor said in I probably have fibromyalgia about a year ago.  I had an MRI done today and it came back negative.  My dr. had me have the MRI because of increasing fatigue, tingling body parts, headaches, major memory problems!  Now I have to go to a neurologist.  I just feel that I will have a bunch of tests and they will say they don't know or label me with fibromyalgia, but do they take it as a serious condition?  I'm glad they didn't find anything majorly wrong in my brain, I just want to feel better.  Does anyone else understand how I feel?
Coozy
11 Responses
Avatar universal
Yes, I totally understand.
1184051 tn?1264435308
I'm glad someone understands!  Sorry I put my info in twice, I'm not sure how to navigate around this forum or my own head!
483733 tn?1326798446
I've been having neuropathic issues like itching/burning/numbness/headaches/pins & needles.  I see a rheumatologist for Lupus &/or RA and when I told him my symptoms he said they were all due to fibromyalgia.  It really made me mad that he wouldn't take them seriously and didn't even want to treat me for fibro.  I'm going to press my family doctor to start a treatment regimen.
1184051 tn?1264435308
What kind of treatment regimen did you have?
1149046 tn?1264361586
Yes, I understand. Completely. I was diagnosed with Fibromyalgia about 4 years ago. My symptoms are Headaches, Fatigue, widespread pain, and sleep problems.  I had every test that you could think of. They all came back negative. Alot of doctors don't take fibromyalgia serious, but then on the plus side alot of them do. I have been lucky enough to find a doctor who takes fibromyalgia completely serious. I live in Kentucky, and I see a doctor in North Carolinia. With the correct treatment, you can feel better.

         - I hope everything works out. Good luck.
483733 tn?1326798446
I only found out a week and a half ago that I have fibromyalgia and my rheumatologist is not taking it seriously.  He considers it to just be an annoyance - he is more worried about the arthritis.  I am on Remeron depression med but want to see if my family doctor will try me on Neurontin and a muscle relaxant (thanks to Dustybrown for the recommendation!).
975514 tn?1324997938
Hello Coozy123,
I apologize it's taken me awhile to comment on your post and I am sorry to hear of your pain. I am glad that the group has been able to chime in and offer support to you. Welcome to the forum!

I have have a couple of questions for you. First, what type of doctors have you seen at this point? Have you been to a Rheumatologist who is "Fibro Friendly"? If you haven't found one yet, a good place to seek one out is by going to the National Fibromyalgia Association website. If you register with them (registration is free), they will allow you to search their database of heathcare providers in your state. I would go there and check it out. I found my doctor is on that site, plus there is a lot of useful information there: http://www.fmaware.org

You mentioned you had an MRI and it came back negative. Sometimes doctors will say there is nothing wrong with you, but they might be minimizing things. At least I've found this out with my own condition. You should really ask for a copy of the report and read it yourself, or if you don't understand what it says, feel free to come here for some guidance. Many of us spend a lot of time trying to decipher our own MRIs and tests results. We are not doctors, but we may be able to give you some insight. Also, what types of MRIs have you had- what parts of your body have been filmed??? Let us know when you get a moment. Thanks!
-Dusty
975514 tn?1324997938
You know what...I think I am suffering from "fibro fog" tonight...I am guessing they did an MRI of your brain right??? Also, are you suffering from body aches or pains in your body too, or just fatigue and headaches??? Let me know. Ok hun.
-Dusty
1184051 tn?1264435308
I suffer "fibro fog" 90% of my life!  I will check the MRI report. After the neuro visit I would like to see a rhematologist.  Oh I most certainly do suffer from more than just headaches and fatigue!  I have constant neck, shoulder all the way down my spine pain!  I just never put all these symptoms together.  The fatigue just was getting out of hand so I focused on that and than tingling down by body so that is why the doc sent me for MRI.  Thinking MS.  I have so much to learn, but with this site and continuing to seeks relief I do feel lighter.  Thank you all and will continue to come to this board!  
-Coozy
975514 tn?1324997938
I would definitely recommend seeing the Rheumatologist. Also you may want to consider an MRI of your cervical spine to see if something is going on there. Mention it to the Rheumy when you see him/her. Good luck and keep us updated.
-Dusty
Avatar universal
I have very similar symptoms.  I also had a brain and neck MRI.  They ruled out MS.  I have yet to be diagnosed with anything, but may be headed down the fibromyalgia road.

Good Luck.

Kristin
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