First visit with Rheumo tommarow--I'm nervous

[1tiredchic]

Hello;

I haven't been on for a while.. But I finnaly have my first apt with the rheumo tommarow, and I am really nervous..

Not sure how he is going to be? Is he one of those docs that thinks "your too young" or " it's all in your head" or

the famous "you need to take time for yourself" you know we have all heard these before..

Chronic pain is in itself draining of all energy, it takes all you have just to function and work , then come home and

try to just get dinner ,dishes and maybe laundry forget any other kind of life.

Evreytime getting closer to a diagnosis something snags, I have no insurance right now, just lost my job, but

decided that I can't cancel this apt. I will just have to pay for it.. I need some answers! i'm only 38 mother of two

teenagers and need some help!!

Symptoms: joint pains,muscle pains,stiffness in joints,weakness in arms and legs,twitching in eyes and foot,sleep problems,pelvic pain,uterine prolapse,mitral valve prolapse,chest pain(feels as though i'm being squeezed)with weakness in arms..Pain is my hip bone,bleeding between periods,heavier periods, urine leakage,constant abdominal pain (right side mostly) pale stools,mucusy, etc etc Easy to sum up PAINNNNNNNNNNNNNN!!!!!

TESTS DONE: High sed rate,positive IgA with neg atypical Panca (told not chrohn's)low vitamin d, low calcium,low sodium,high bun/creatine level,low platelet, neg thyroid,neg lupus,neg lyme,neg RA,

Hope to find some answers..If anyone can give some advice as to what to say to the docter tommarow, so he can understand without thinking i'm nuts....

Thanks so much!!!!!!!

Jen

[1tiredchic]

Hello; I just got back from the Rheumo- and he says it is fibro...Finally a diagnose, at least getting closer to some help, will put me on some meds, and wants me to go to a pain management docter. I don't have insurance right now though :(    Wants me to retest esr and crp blood work.. the med is generic neurentin I don't know if it will help or not?? Well at least he listened... thanks for all your help and suggestions.....

[dustybrown]

Hello,
If the Rheumatologist you are going to see has been recommended to you as someone who sees many people with Fibro, you should not be worried. Usually they will talk with you run some blood tests, and set you up on a medication program.

Some Rheumatologists are no longer using the pressure point tests any longer because they are so subjective, so don't be surprised if the doctor doesn't press on you or touch you to see if you hurt. He/she might just ask you where you hurt or make you fill out paperwork where you have a diagram of a person and you circle all the places you hurt. If it fits the profile of Fibro, then they really don't need to touch you. Be ready to fill out paperwork though. Don't worry too much about it and be sure to come back and share your experiences with us here. Good luck to you.
-Dusty

[1tiredchic]

Sorry forgot to add I have also feelings of unsteadiness, and brain fog.. and sleep apnea, I also found I have two pea size lumps one in my upper leg and one on the other leg but on the side. I have mild scolosis. My family history is fibromyalgia, liver disease,heart disease,muscular dystrophy,diabetes etc.