When in the ER with a particularly bad flare-up that left me too weak to hold my head up, I experienced a sort of whole-body spasm. It was almost like a seizure, except that I was fully conscous and coherant. The ER doctor said it was part of my FMS. It's some sort of severe myoclonus that only occurs when I'm having a bad flare-up or over-tired. During those times, I'll spasm as frequently as 10 times a minute, or I'll have spasms that last up to 30 seconds and come every 2-3 minutes. It also happens when I fully relax. However, neither my rheumatologist or my neurologist has ever seen anything like it. I have to take Clonapin in order to be still enough to fall asleep at night, but I'd really like to know what is happening to my body! I'm working on tracking down the ER doctor, but until I find him, I'm just curious to know if this is something anyone else has experienced.