Aa
I have always been a disbeliever in Fibromyalgia
I am a 29yr old female who was told 10 yrs ago that I had FMS, CFS, RLS, TOS, etc.... I was always athletic and had so much energy, but than it all stopped. I was in pain for years and every doctor dismissed me or told me i had one of the top issues. I ended up with severe depression. I truly think that FMS is just something they call because so many people are sick with no answers of why.
I really do think that the environment has a lot to do with it, hormones and by the way we eat. Eating wholegrains and all natural food is what should be eated. No sugar, no coffee, no dairy, just natural foods. Fresh organic food, if not organic at least eat fresh. No canned foods or take out.
I am sure that many people will disagree but i do believe that we live in a society now of new technology, for example the microwave.. Bad thing to have but useful. We live in an age where we live on the go and there is no time to prepare and eat. Its sad that we have come to that, but i do believe that if everyone ate better and I mean pretty much changing your whoel diet than we would have alot more healthy people.
I was once like that i never ate well and i do believe that food is the healer to diseases.
I really do think that the environment has a lot to do with it, hormones and by the way we eat. Eating wholegrains and all natural food is what should be eated. No sugar, no coffee, no dairy, just natural foods. Fresh organic food, if not organic at least eat fresh. No canned foods or take out.
I am sure that many people will disagree but i do believe that we live in a society now of new technology, for example the microwave.. Bad thing to have but useful. We live in an age where we live on the go and there is no time to prepare and eat. Its sad that we have come to that, but i do believe that if everyone ate better and I mean pretty much changing your whoel diet than we would have alot more healthy people.
I was once like that i never ate well and i do believe that food is the healer to diseases.
Sorry for popping in without having the time to read all the posts. I just wanted to comment that we would certainly all feel better and be healthier if we could eat like you say. You make very good points. However, there are other factors to consider also. It does run in families. My mother has had it for many years. My sister has it and I have it also. All of us are affected in different ways and handle our pain and our lives differently. I don't know if this means there are genetic components to this or not. It is just our lives.
Brenda
Brenda
Well, I'm certainly no expert, but I would have to say that your Igenex WB test results were "significant".
With those results, I would seek additional testing for common co-infections like Babesia, Bartonella, Ehrlichia, etc. and/or possible re-testing for Lyme.
Best of luck to you, Patsy. Come see us over at LymeNet if you need any additional info. There are some knowledgeable folks over there.
Tracy
With those results, I would seek additional testing for common co-infections like Babesia, Bartonella, Ehrlichia, etc. and/or possible re-testing for Lyme.
Best of luck to you, Patsy. Come see us over at LymeNet if you need any additional info. There are some knowledgeable folks over there.
Tracy
Hi again,
My rashes (3) were back in 1993. I got very sick then and did end up taking antibiotics for for a few months. I had to go out of state as the docs here laughed in my face when I told them what I thought I had. It took me about 5 years to recover and I have never been completely well. It all hit again with a vengeance in 2005 and I've been sick ever since. I have mostly neuro symptoms and muscle and nerve pain. All my neuro/MS tests are normal. I've had 3 WB through standard labs, negative. I had an Igenex WB last year. It should 30+, 39, 41 were IND. Some people say this is a positive result. I may seek treatment again as no one can give me a legitimate answer to my problems. My best to you. I'll never give up!
My rashes (3) were back in 1993. I got very sick then and did end up taking antibiotics for for a few months. I had to go out of state as the docs here laughed in my face when I told them what I thought I had. It took me about 5 years to recover and I have never been completely well. It all hit again with a vengeance in 2005 and I've been sick ever since. I have mostly neuro symptoms and muscle and nerve pain. All my neuro/MS tests are normal. I've had 3 WB through standard labs, negative. I had an Igenex WB last year. It should 30+, 39, 41 were IND. Some people say this is a positive result. I may seek treatment again as no one can give me a legitimate answer to my problems. My best to you. I'll never give up!
You go girl!!
You expressed my thoughts exactly.
Oh boy, bullseye rashes are a pretty definitive clinical sign of TBD exposure/infection, and for Lyme in particular. Even docs who don't know much about Lyme tend to pay attention to that.
I wish I could tell you that a simple, generic test is all you need to get an accurate answer, but that isn
You expressed my thoughts exactly.
Oh boy, bullseye rashes are a pretty definitive clinical sign of TBD exposure/infection, and for Lyme in particular. Even docs who don't know much about Lyme tend to pay attention to that.
I wish I could tell you that a simple, generic test is all you need to get an accurate answer, but that isn
Very well said and I also was not offended by what Ticked wrote. I agree with just about everything she said. I too have been diagnosed with fibro. I firmly believe it is being caused by "something". I did have bullseye rashes many years ago. I think physicians are way too quick to give this diagnosis. Several doctors told me I had it but never checked me for the tender points. I am certain I have an underlying disease process going on that just hasn't been found. I also think that once you get the diagnosis of cfs and or fms they just stop looking. You're labeled for life. I will not stop until I get an answer or at least until every single disease has been ruled out. I think many people just accept the fibro diagnosis. I won't do it. Nor will I spend my life masking symptoms by taking narcotic pain meds and antidepressants. Our health care works ok if you have a straight-forward disease like high cholesterol, high blood pressure or something like that. However, if it is something different or odd, forget it!
When I read Ticked's post, I was not at all offended because I understood what she was saying. In fact, when I was diagnosed with Fibro, then CFS later, I was mad about it becuase I've always felt that those labels are sort of "catch-all diagnoses" when doctors can't figure out what is really wrong with you. I always felt that there WAS a cause behind my Fibro/CFS, some kind of etiology that my doctors hadn't figured out yet.
In my case, I was right. But I had to figure it out myself. And thousands of other Fibro/CFS patients just like me have found that there is an underlying cause for their illness, so don't give up searching, please.
Ticked, when I read your screen name, I thought perhaps you chose that name because you are one of the Fibro/CFS sufferers like me who FINALLY found out they have Lyme Disease. Most people still believe that you have to have to live in a Lyme-endemic area and have a "tick" bite" and a rash in order to get Lyme Disease, but the research leads many Lyme experts to believe otherwise.
I won't go on and on here about Lyme Disease, but If you are one of those people who isn't particularly satisfied with the Fibro/CFS diagnosis, and you suspect there is more to the story, please keep searching for answers. If you want more info about Lyme Disease, go to someplace like the LymeNet website. DO NOT go to the CDC or NIH websites and expect to get the real story. There is much they are not reporting.
I'll shut up now!
Tracy
In my case, I was right. But I had to figure it out myself. And thousands of other Fibro/CFS patients just like me have found that there is an underlying cause for their illness, so don't give up searching, please.
Ticked, when I read your screen name, I thought perhaps you chose that name because you are one of the Fibro/CFS sufferers like me who FINALLY found out they have Lyme Disease. Most people still believe that you have to have to live in a Lyme-endemic area and have a "tick" bite" and a rash in order to get Lyme Disease, but the research leads many Lyme experts to believe otherwise.
I won't go on and on here about Lyme Disease, but If you are one of those people who isn't particularly satisfied with the Fibro/CFS diagnosis, and you suspect there is more to the story, please keep searching for answers. If you want more info about Lyme Disease, go to someplace like the LymeNet website. DO NOT go to the CDC or NIH websites and expect to get the real story. There is much they are not reporting.
I'll shut up now!
Tracy
Whether you believe in FMS or not is irrelevant. We are all sufferers. And this is a support group. So that's what we should be doing, supporting each other. As for support groups, I stopped going to my local FMS live support group as I was tired of the "I'm sicker than you" attitudes and didn't want to see anyone in wheel chairs or walkers. I've gone the walker route myself and refuse to live that way.
I was diagnosed with growing pains at 8 years of age and I'm 64 now, a lot of years of suffering. And the diagnosis continued long after I stopped growing. Last year I was diagnosed with sleep apnea, and I was thrilled. I assumed, based on the NIH studies of sleep deprivation, that my symptoms were related to my lack of REM cycle in my sleep pattern and using a c-pap machine would help. Well it helped with all of the other apnea symptoms, but not FMS. Now, I'm going to an environmental allergist who is administering high dose Vitamin C and other nutrients. I'm feeling much much better. I'm going to bring the info on the Marshall Protocal to him. I'm already on Benicar for other reasons, so maybe it would be an option.
I was diagnosed with growing pains at 8 years of age and I'm 64 now, a lot of years of suffering. And the diagnosis continued long after I stopped growing. Last year I was diagnosed with sleep apnea, and I was thrilled. I assumed, based on the NIH studies of sleep deprivation, that my symptoms were related to my lack of REM cycle in my sleep pattern and using a c-pap machine would help. Well it helped with all of the other apnea symptoms, but not FMS. Now, I'm going to an environmental allergist who is administering high dose Vitamin C and other nutrients. I'm feeling much much better. I'm going to bring the info on the Marshall Protocal to him. I'm already on Benicar for other reasons, so maybe it would be an option.
Let's just start all over again. I think you can understand why your subject line confused people. Many of the people w/ both CFS & Fibro have already heard physicians', friends or family say, "I don't think it is real". One thing I've learned is that we are all in this together and it is up to us, the patient, to keep up on the latest CFS or FIBRO research and share information with other people who have the same diagnosis. Not to mention, share the information with our physicians.
I also believe our healthcare "system" in the U.S. sucks as well. Physicians' only have 5 minutes to spend with their patients' and health insurance is becoming more and more expensive. Also, if you have a pre-existing condition and you let your health insurance lapse, then you are out of luck. Getting a diagnosis is a double-edged sword. If you have asthma now, your next health insurance provider may turn you down (if you've let your insurance lapse). If you lose your job from being disabled, you have to wait months - if not years, for long term disability benefits, if they approve you. And at the same time you are expected to pay for COBRA insurance, which is approximately $400 a month for one person. How can you do that if you aren't getting any disability checks? This is how people become homeless. = ( And this is precisely why we need to stick together & support each other... there is strength in numbers.
It wasnt you it was hityty she made a comment to me that go me mad. Than it seemed as though you jumped on that train as well. You are misunderstanding still about the title. I am not telling anyone that has FMS that the disease doesnt exsist. I just dont think dr's know and there is more to it than here is what the problem is move on now.... I am not angry in any way. If you read my first post again it wasnt in any anger until i asked hityty if she made that comment at me. I dont feel that i was out of line. True she made me mad and i should have let that go but it was rude. The reason i have the named ticked if anyone needs to know is not because I am angry I am ticked off at our health care system. I live in Canada and the system sucks. I have been on here since November 2005 in the ovarian cancer forum trying to find answers. I am ticked yes!! mad and angry no. I am just stating things that helped me and she took what i said in some other way and i think that is wrong. I also felt that you were sticking up for here so I based my comments to both of you. Sorry if you were offended but as you can plainly see it all seems to be an understanding and I am seriously not going to continue this because it is not what i wanted this thread to be about.
"I think that the two of you are way out of line and need to control the way you speak when people have an opinion other than yours."
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Still "ticked" ? Let's get some things straight here:
1. I don't necessarily disagree with your opinions. I agree that people with immune dysfunction syndrome are more sensitive to chemicals, pollution and stressors (physical and emotional). I also know that an estimated 65% of people are expected to have allergy problems (autoimmune) in the next 10 years. They didn't even mention the number of expected asthma cases.
2. You came here with a nic of "ticked" - stated that you were a "disbeliever in Fibromyalgia", knowing that this is a Fibromyalgia support group! You then stated that you have lost your life pretty much (C9) and then said, "I am just not going sit and feel sorry for myself and the more you do that the more you wont find anything that will help you. you dont help yourself than you will stay as you are". Do you think that people in this forum are feeling sorry for themselves? And if they do, isn't our job to be there to support them? You should know how awful fibromyalgia is. I don't have fibro, but do have CFS and often the symptoms overlap.
And then you tell me that I am out of control?? Which post? I just said that it appeared that you were angry. I still believe this. I just didn't know who you were ticked off at... now I think I know the answer to that. I am relaxed...btw = )
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Still "ticked" ? Let's get some things straight here:
1. I don't necessarily disagree with your opinions. I agree that people with immune dysfunction syndrome are more sensitive to chemicals, pollution and stressors (physical and emotional). I also know that an estimated 65% of people are expected to have allergy problems (autoimmune) in the next 10 years. They didn't even mention the number of expected asthma cases.
2. You came here with a nic of "ticked" - stated that you were a "disbeliever in Fibromyalgia", knowing that this is a Fibromyalgia support group! You then stated that you have lost your life pretty much (C9) and then said, "I am just not going sit and feel sorry for myself and the more you do that the more you wont find anything that will help you. you dont help yourself than you will stay as you are". Do you think that people in this forum are feeling sorry for themselves? And if they do, isn't our job to be there to support them? You should know how awful fibromyalgia is. I don't have fibro, but do have CFS and often the symptoms overlap.
And then you tell me that I am out of control?? Which post? I just said that it appeared that you were angry. I still believe this. I just didn't know who you were ticked off at... now I think I know the answer to that. I am relaxed...btw = )
and as for the "always been a disbeliever in FMS"" my word how else do you want me to put that... hmmmm lets see.
I dont beleive that drs know what the problems is so every patient that has these symptoms gets pegged as FMS
Oh wait a minuite!!!! that sounds exactly what my title
""" wondering what the problem is here""""""""
Seriously people need to grow up here. When i first had this problem i researched everywhere to find a cure. I didnt rule out anything. So if someone wrote this post and i read it, i would do some serious thinking. Its called opinions and everyone is allowed to have one. I didnt say that Marshall protacol is garbage and run off my mouth, i thought about it and will do some research. You both need to remember that other people have this disease and people are different and so are their bodies and if one thing doesnt work for you it could work for someone else, hense why this disease is not understood by many. Why you are arguing with me is pathetic. I am not angry and i think that you both need to relax.
I dont beleive that drs know what the problems is so every patient that has these symptoms gets pegged as FMS
Oh wait a minuite!!!! that sounds exactly what my title
""" wondering what the problem is here""""""""
Seriously people need to grow up here. When i first had this problem i researched everywhere to find a cure. I didnt rule out anything. So if someone wrote this post and i read it, i would do some serious thinking. Its called opinions and everyone is allowed to have one. I didnt say that Marshall protacol is garbage and run off my mouth, i thought about it and will do some research. You both need to remember that other people have this disease and people are different and so are their bodies and if one thing doesnt work for you it could work for someone else, hense why this disease is not understood by many. Why you are arguing with me is pathetic. I am not angry and i think that you both need to relax.
When I first started this conversation I was just stating that i dont believe that the whole FMS exsists because DR's dont even know what is going on with their patients, they are all sick and they cant help them. It is infuriating. I was stating that i believe that the way we live is a rational reason for all of it. you dont see the generation before us with these problems. They didnt grow up with microwaves, as many cars and pollution, tupperware that has chemicals in them when you microwave it etc the list goes on. I am not pretending that I am cured by the way i eat, what i am saying is that it helps and people dont realise how important food is to your body. I think that the two of you are way out of line and need to control the way you speak when people have an opinion other than yours. Depression also plays a factor in this disease as well along with any kind of abuse that happened earlier in life. I think that things have changed for women since womens lib, and that is why a majority of people with this disease are women. They work 8-10hrs a day full time than come home to cook clean and raise a family. To me that doesnt help. I dont appreciate you bombarding me because i state my opinion. You dont like what i say than move on. You twisted up everything that i said and I think that the way that you have talked is immature and you need to grow up. And as for the name ticked, again since you dont know me, it has many meanings doesnt mean angry so before you jump to conclusions you need to stop and think. I dont think that i have said anything wrong and you are getting defensive over nothing.
I don't think anyone here is feeling sorry for themselves. I certainly am not. I do everything that I can do.. including the Marshall Protocol, to try to make myself feel better and/or cure this syndrome. However, the reality is that this is a support forum and people at one time or another, are going to need support. Both fibromyalgia and CFS can make you disabled. In addition, both of these diseases aren't recognized by many people and there is no treatment. (although the MP may change all of that... there are many success stories) Therefore, most people who have CFS or fibro feel isolated. That is why we are all here... supporting one another.
I also agree that pollutants are bad for our health and that organic foods are better for our health. There have been studies that have proven this. However, I think CFS is caused by a virus, and this explains why there was an outbreak of CFS cases after a virus that was going around in New York. Of course the million dollar questions is, what caused these peoples immune systems to dysfunction after the virus ? The virus itself ?
You appear to have a lot of anger inside of you (hence the nic, "ticked") I also eat healthy, mostly organic foods, don't smoke and rarely drink, but I do have CFS like millions of people around the world and I've accepted it. It is a real illness, as you know, and that doesn't mean that it won't get any worse or any better for that matter. I don't understand why you are here. If you have opinions, that is fine, but you come across as a very angry person.
This is so true about our health care system, sad but true. But there are Drs. that practice preventive medicine, my Dr. does so I hate to tell her about different things that crop up with this dd because she wants every test in the book done. She chalks nothing up to fm if it is new probem.
My son works at power plant, he said they pollute the air all the time, DER comes in and the company pays the fine because it is cheaper than to shut the plant down and rectify the problems.
Hugs, Linda
My son works at power plant, he said they pollute the air all the time, DER comes in and the company pays the fine because it is cheaper than to shut the plant down and rectify the problems.
Hugs, Linda
actually i am not angry at all. I didnt say i still didnt have CFS i just live with it. I am just not going sit and feel sorry for myself and the more you do that the more you wont find anything that will help you. you dont help yourself than you will stay as you are
"Have you cut food out of your diet or even tried too?" Yes, for the last 10 years
"Processed foods?" Yes, for the last 4 years
"canned foods?" Yes, unless they're organic and with no other added ingredients
"junk food, take out????" Yes, I have been eating right for many years
"Have you tried eating natural/organic foods, all fresh??" Yes! I ONLY eat natural/organic foods and have for many years.
Thanks for asking.
You obviously just wanted to argue or you wouldn't have posted the subject that you did. Save the space for people who know how to use this board correctly. It wont be very long before the moderators delete this thread because its pointless.
I'm happy for you that you feel better, I am glad you are not wallowing in pity any more, that's never helpful. If you find yourself in need of support in the future, they have an anxiety forum here you may find helpful. PLEASE re-read my reply, you'll see that I agree with you on the whole food topic, & that the only anger I have is towards clueless people who spout off their uneducated opinions. Perhaps you are right, maybe you didn't really have FMS or CFS, maybe it WAS all in your head after all. Spare us the drama & leave this forum for those of us who do not wallow in pity or denial & who are here for support & advice because they want to feel better, not to argue if its a real disease or not!
Don't bother replying to me, I'm not going to read it. I don't have time to waste debating with little girls who don't know any better. But hey, thanks for the laugh!
"Processed foods?" Yes, for the last 4 years
"canned foods?" Yes, unless they're organic and with no other added ingredients
"junk food, take out????" Yes, I have been eating right for many years
"Have you tried eating natural/organic foods, all fresh??" Yes! I ONLY eat natural/organic foods and have for many years.
Thanks for asking.
You obviously just wanted to argue or you wouldn't have posted the subject that you did. Save the space for people who know how to use this board correctly. It wont be very long before the moderators delete this thread because its pointless.
I'm happy for you that you feel better, I am glad you are not wallowing in pity any more, that's never helpful. If you find yourself in need of support in the future, they have an anxiety forum here you may find helpful. PLEASE re-read my reply, you'll see that I agree with you on the whole food topic, & that the only anger I have is towards clueless people who spout off their uneducated opinions. Perhaps you are right, maybe you didn't really have FMS or CFS, maybe it WAS all in your head after all. Spare us the drama & leave this forum for those of us who do not wallow in pity or denial & who are here for support & advice because they want to feel better, not to argue if its a real disease or not!
Don't bother replying to me, I'm not going to read it. I don't have time to waste debating with little girls who don't know any better. But hey, thanks for the laugh!
First off, tone it down and take a pill.
Second of all, you dont know me so hush it. You have no idea what i have been through.
I stand firm on what i said an it seems you are the only one getting bent out of shape.
Have you cut food out of your diet or even tried too? Processed foods? canned foods? junk food, take out????
Have you tried eating natural/organic foods, all fresh??
If you havent tried that dont lash out at me. For the last 10 yrs all i have wanted was to be the way i was and I am not fully there but I tell you I am feeling almost 100% better. I dont really care what you beleive. I sat there and felt sorry for myself for too long. I have a child to think about and no matter what anyone else thought about this disease being untrue i was going to fight it. I was sick of living as if i were dead. So i quit smoking, eat healthy and it took over a year and i still feel sick sometimes but you know what? I am not going to lie down and be angry and blame the world for this. There is a reason why this is happened and i dont believe that it cant be cured. I think that its trial and error. I dont give up and wont.
You seem to have alot of anger and that is part of what adds to severity of FMS. Again who am I to tell you what does what because you seem to be the only one that is pain here no one else.
i wont live in pain and will do whatever it takes. People say they eat healthy but unless you know that truth about food and what it does to you than you will be a skeptic.
I dont know why you are so angry anyways. I wasnt trying to offend you just trying to offer up what i have been through. I used to be like you with all the anger and get offended thinking that someone doesnt understand, now i jsut dont care what people think. The best think for me was to pretend that I nothing was wrong with me and to stop obsessing about it, and the pain did go away not fully but i dont feel the pain I once did. That is all i thought about day and night. Why live that way?? To me that was 10 yrs to long and i wasnt wasting another 10.
Second of all, you dont know me so hush it. You have no idea what i have been through.
I stand firm on what i said an it seems you are the only one getting bent out of shape.
Have you cut food out of your diet or even tried too? Processed foods? canned foods? junk food, take out????
Have you tried eating natural/organic foods, all fresh??
If you havent tried that dont lash out at me. For the last 10 yrs all i have wanted was to be the way i was and I am not fully there but I tell you I am feeling almost 100% better. I dont really care what you beleive. I sat there and felt sorry for myself for too long. I have a child to think about and no matter what anyone else thought about this disease being untrue i was going to fight it. I was sick of living as if i were dead. So i quit smoking, eat healthy and it took over a year and i still feel sick sometimes but you know what? I am not going to lie down and be angry and blame the world for this. There is a reason why this is happened and i dont believe that it cant be cured. I think that its trial and error. I dont give up and wont.
You seem to have alot of anger and that is part of what adds to severity of FMS. Again who am I to tell you what does what because you seem to be the only one that is pain here no one else.
i wont live in pain and will do whatever it takes. People say they eat healthy but unless you know that truth about food and what it does to you than you will be a skeptic.
I dont know why you are so angry anyways. I wasnt trying to offend you just trying to offer up what i have been through. I used to be like you with all the anger and get offended thinking that someone doesnt understand, now i jsut dont care what people think. The best think for me was to pretend that I nothing was wrong with me and to stop obsessing about it, and the pain did go away not fully but i dont feel the pain I once did. That is all i thought about day and night. Why live that way?? To me that was 10 yrs to long and i wasnt wasting another 10.
Oh spare me!
Ticked, if you write an offensive post, you're going to get a defensive reply. Of COURSE I was directing my previous comment to you, who else? I agree w/everything you said about diet, etc, but your comments on FMS are out of line! I don't understand, you say you're a disbeliever of FMS, but you were diagnosed w/it, but you don't think its real, but you have it, but you cured yourself by eating healthy??? HUH? Denial doesn't cure sicknesses. We can't wish them away. You can't go into a support forum FOR FIBROMYALGIA, post about being a disbeliever OF FIBROMYALGIA & not expect to get negative responses. Do you realize how many people are sick but they CAN'T get a diagnosis? Scan the Undiagnosed symp's forum & see how many people need & ask for help here because their doctors are NOT diagnosing them, they are sick or in pain & they're being told they are fine. Do you know how that feels? I do! You got a diagnosis, whether you believe it or not is up to you, but there are people who DO believe it, HAVE it, & we don't need to hear opinions about how its not a real illness. If you just want the debate, go to the Cosmetic & Beauty forum & tell them you don't believe in lipstick. It would do more good then telling FMS sufferers that their illness isn't real because YOU don't believe it is. Its real, like it or not, its real!!!
You say you lost your quality of life? Then ask for help or support here. THAT I believe is what this forum is for. I'm all for us eating better, it DOES make a difference, & I truly hope it really has cured you, just watch how you word things in the future, please.
Ticked, if you write an offensive post, you're going to get a defensive reply. Of COURSE I was directing my previous comment to you, who else? I agree w/everything you said about diet, etc, but your comments on FMS are out of line! I don't understand, you say you're a disbeliever of FMS, but you were diagnosed w/it, but you don't think its real, but you have it, but you cured yourself by eating healthy??? HUH? Denial doesn't cure sicknesses. We can't wish them away. You can't go into a support forum FOR FIBROMYALGIA, post about being a disbeliever OF FIBROMYALGIA & not expect to get negative responses. Do you realize how many people are sick but they CAN'T get a diagnosis? Scan the Undiagnosed symp's forum & see how many people need & ask for help here because their doctors are NOT diagnosing them, they are sick or in pain & they're being told they are fine. Do you know how that feels? I do! You got a diagnosis, whether you believe it or not is up to you, but there are people who DO believe it, HAVE it, & we don't need to hear opinions about how its not a real illness. If you just want the debate, go to the Cosmetic & Beauty forum & tell them you don't believe in lipstick. It would do more good then telling FMS sufferers that their illness isn't real because YOU don't believe it is. Its real, like it or not, its real!!!
You say you lost your quality of life? Then ask for help or support here. THAT I believe is what this forum is for. I'm all for us eating better, it DOES make a difference, & I truly hope it really has cured you, just watch how you word things in the future, please.
I agree with you. Why does the U.S. lead the world in degenerative diseases? I truly believe its our environment and lifestyle. Japan is one of the healthiest places on Earth. Did you know that Japan's doctors only get paid if they are helping people get well? They also spend more $ on prevention than any other place. Totally opposite from the United States. The idea here is that we need more doctors and more hospitals, which means more another pill, another procedure, which always leads to another bill. Who benefits from that? Doctors, insurance companies, and pharmaceutical companies. What do we get out of it? Side effects from the prescriptions and more medical bills. Now, I'm not saying that doctors don't try to help but the challenge they have, is that people come to them with a problem and they doc tries to help, but once that person leaves there office they go back to the same habits and environment. Why have we let ourselves get this far off track?
We all need to take responsibility for our health. How many of you feel like you OWN your health? Does your doctor own your health? Chiropractor? Physical Therapist? When as a societ are we going to stop blaming others and start making a change. Our bodies our ment to heal themselves, if given the things that it needs. It has for centuries, so why are we having so many problems now? We need to go back to the basics. Good nutrition, water, air, exercize, good sleep, and taking time for ourselves. We have such fast paces lives that we have forgoten how to live life to the fullest. Ticked I believe you are on the right path. There is a website that as changed my life. www.5pillars.com go there and see what you think. I appreciated your comments. Keep researching, all we can do is keep learning.
Good Quote "All wishes are small compared to the desire for good health."
We all need to take responsibility for our health. How many of you feel like you OWN your health? Does your doctor own your health? Chiropractor? Physical Therapist? When as a societ are we going to stop blaming others and start making a change. Our bodies our ment to heal themselves, if given the things that it needs. It has for centuries, so why are we having so many problems now? We need to go back to the basics. Good nutrition, water, air, exercize, good sleep, and taking time for ourselves. We have such fast paces lives that we have forgoten how to live life to the fullest. Ticked I believe you are on the right path. There is a website that as changed my life. www.5pillars.com go there and see what you think. I appreciated your comments. Keep researching, all we can do is keep learning.
Good Quote "All wishes are small compared to the desire for good health."
I am hoping that you are not directing the comment "People should remember things like that before posting their opinions!
at me. I wrote what i wrote because I have FMS and CFS i just dont agree with it and i know there there is something more to it. I am sorry that i posted my opinion and you didnt like it. I didnt ask you too. I have been battling this for over 10yrs and it started in my teens so i have lost my life pretty much. so i know what its like.
at me. I wrote what i wrote because I have FMS and CFS i just dont agree with it and i know there there is something more to it. I am sorry that i posted my opinion and you didnt like it. I didnt ask you too. I have been battling this for over 10yrs and it started in my teens so i have lost my life pretty much. so i know what its like.
Oops... I meant google (instead of good) Must be the CFS brain fog ! ; ^ )
Your wife could also check out the Marshall Protocol website. There is actually a blood test that will check and see whether or not she would be a good candidate for the MP. The blood test doe not diagnose you, it only indicates whether or not you have Th1 inflammation.... which most CFS & fibro patients' do. I'm on the Marshall Protocol right now myself, thanks to two physicians who recommended it. Not all physicians are familiar with this protocol... because the protocol is still considered research, although the drugs they treat you with are not research medications. You can also google success stories from people who have been treated with the MP... google, "Marshall Protocol" + "success stories".
Hi,
I don't have fibromyalgia but my wife may have it. She had spinal fusion surgery last January and is only worse now and exhibits symptoms that seem to mimic fibromyalgia. I don't know much about it at all. I have hepatitis C and usually post below in that forum so have been around Med Help for about five years and have found it to be one of the best forums around.
I am curious if there are any tests, blood markers, etc. for the disease? I want her to go to the Mayo Clinic and wonder if that is warranted? I realize we have no doctor here but you folks know a lot more about this than I do. Any ideas, comments, anything would be most helpful. She's in a great deal of pain, taking Percocet and the pain breaks right through that medicine.
Thank you very much and best to all of you.
Scott
I don't have fibromyalgia but my wife may have it. She had spinal fusion surgery last January and is only worse now and exhibits symptoms that seem to mimic fibromyalgia. I don't know much about it at all. I have hepatitis C and usually post below in that forum so have been around Med Help for about five years and have found it to be one of the best forums around.
I am curious if there are any tests, blood markers, etc. for the disease? I want her to go to the Mayo Clinic and wonder if that is warranted? I realize we have no doctor here but you folks know a lot more about this than I do. Any ideas, comments, anything would be most helpful. She's in a great deal of pain, taking Percocet and the pain breaks right through that medicine.
Thank you very much and best to all of you.
Scott
"I am curious if there are any tests, blood markers, etc. for the disease?"
I know more about CFS.... but I do know that lab I mentioned earlier, Red Labs USA, does have a test for fibromyalgia. Good their name and you'll find their website. Unfortunately, they can't do a test on blood. They need spinal fluid from the patient and also, insurance won't cover this test. However, that should change.. hopefully real soon. I know the lab is working on getting their patent.
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