The big PROBLEM is if I refuse any kind of treatment I can be cut off of my disability. Which means I would have to file bankruptcy, which I do not want to do.
Funny, my doc. hasn't tried to get me to have them since I lost my insurance. When I first started going to him, he ordered test after test. I understood he was trying to find out what was wrong but I often wondered if he was just doing it to make a buck for himself. Since I haven't had insurance I haven't had ANY lab work. When I go on the 21st, I am going to get him to do a lab work up since its been so long, I will just have to pay what I can when I can.
If the injections are not working, I would quit taking them.
I have had no relief. First two months I was getting them once a week. Then when I went off of work I have been getting them once a month as I have to travel 2 hours each way to get them & my husband has to take the day off to take me. Every where I read about them it says they take about 30 minutes at the doc office not 50 sec. And when I go to see about nerve block injections it says an anethesiologist gives them not a rheumy. I am going to see if I can get any answers for the Rheumatology Association. I will keep you posted.
Several years ago my doctor wanted to do these injections everytime I had a visit. I guess they help with the muscle pain but I was never comfortable with it. Honestly I wondered how necessary they were, I felt like the pushed them on me and didn't really want to discuss anything before injecting me. I've since moved to another state and seen 2 other Rheumatologist who haven't tried or offered this treatment. Sometimes it's hard to tell if they are trying to help you or trying to make another $. I think the injections are fairly common, just not sure how effective they are.
My doctor suggested it to me but since I have needle phobia and would probably hit him, I wouldn't take them. I have heard of people taking them and nobody that I have read about or talked to has had any luck with them. I also hear they are not too good for you either. I didn't think they could give you that many.
With I could offer more info but that's all I have.