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In The New York Times Today (CFS)
New York Times: "CFS Finally Gaining Some Official Respect"
The article is online if any of you are interested in reading it. It took them awhile, but slowly and surely we are making progress !
My question is there a test to either confirm or deny cfs/ fibro. I have mutiple sysmptoms that continuely change and don't know where to go from here. I been to the Great Mayo clinic they said that it was stress and or deppression. I been taking cymbalta and gabapentin and realy can't tell that it has helped other than for the nerve pain near the joints.
That's the one ! Finally medical professionals are paying attention.... unfortunately though, CFS patients' require a great amount of attention and so many physicians' don't have the time or care to treat us. IMO....that is the next thing that the CDC needs to work on !
There was an article 'Chronic Fatigue No Longer Seen as ‘Yuppie Flu’ on the 17th. Is that the article you were refering to?
Wanna
Wanna
Did you follow the new information area on their site, where it was talking about this Dr. Hashimoto finding a powerful Neurotoxin in CFID's patients. Boy would that ever explain allot. Sounds like you mix in a bunch of Bacteria colonies, i.e. Marshall Protocol, toss in some ugly little Virus's you can't totaly get rid of like Epstein and then have this mess kicking out Neurotoxin on top of it all and there is plenty of rational for this mess.
I'm new to this forum & website. Interested in your post, I searched NYT online (archives) for the article title you gave. Didn't find it. Curiously, the 'puter search said "Do you mean "CF Finally Gaining Some Official Respect." It still returned nada (duh!), but 'tho I haven't read enuf here to know what folks here think betw. FM vs. CFS vs. CF ("Chronic Fatigue" not "Chronic Fatigue Syndrome") vs. ME (Myalgic Encephalomyelitis, not recogized in U.S.). Anyway, my 2-cts. (hope it's helpful to *someone*--but I apologize if it's stuff y'all are way on top of): the U.S. govmint (CDC & NIH) is NOT your friend. Neither is the once wunnerful CFIDS Association of America, which is now in bed w. the govmint (CDC) and using monies allocated by Congress & now the CDC *not* on research but to pay themselve$ and to proactively promote a DISinformation campaign to physicians and the public (basically that this disease is just "being tired" all the time, NOT the neurologic disease that Dr. Ramsey recognized in the 1950s).
I am a patient of 32 yrs. (misdiagnosed by hundreds of physicians, except for the 2 specialists I made it to, to this day); my interest is only as such. I highly recommend to all this only source of accurate info in the U.S. (Canada has the only accurate definition for diagnosing this disease): the National CFIDS Foundation. Run by *patients.* AND in only a few short years they have come up w. the CAUSE (discovered by researchers in the past but hidden by them) of CFIDS/ME and are now hoping to have a treatment within 2 years! http://ncf-net.org
I am a patient of 32 yrs. (misdiagnosed by hundreds of physicians, except for the 2 specialists I made it to, to this day); my interest is only as such. I highly recommend to all this only source of accurate info in the U.S. (Canada has the only accurate definition for diagnosing this disease): the National CFIDS Foundation. Run by *patients.* AND in only a few short years they have come up w. the CAUSE (discovered by researchers in the past but hidden by them) of CFIDS/ME and are now hoping to have a treatment within 2 years! http://ncf-net.org
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