I'm curious as to why you say you aren't ready to accept fibro as a dx? How long were you receiving the IV treatment and did they follow-up with continued antibiotics afterwords? Lyme can cause permanent damage, whether it's treated or not, unless it is caught in the very early stages.
Everything that you have written leans towards it; insomnia does have a great effect the way we feel since this would prevent one from reaching the degree of sleep that is restorative. The muscle twitching is most likely Restless Leg Syndrome (which can effect you day or night and can also occur in other areas of the body). It does wax and wane, getting better at times and then worse. There is no set pattern for a flare...everyone seems to be individual in that respect.
I hope you can find something that will help you with your pain. You could try one of the drugs approved for fibro. and see if it helps. Also, getting proper sleep is important so you may try seeking something to help you there as well.
Get well soon and take care.
I had the bullseye rash and then got very sick with fevers, neuro problems etc...it's a long story. I saw a lyme specialist who told me there is no way to say for sure unless someone has a CDC positive test. My test was not positive but I had 30+, 39,41 were IND on the IGM. He did treat me and I got better. It came back again though with a vengeance after surgery. I was never completely well but I was ok. When it came back I got treated again and improved again. So 2+2=4 in my book. I'm not sure what is written in my chart though. I have most of your symptoms but I don't have hypothyroid as far as I know. My last test was in 2006.
Hi there;
By reading your symptoms, it definitely sounds like fibro. I am approaching the one year mark since I was diagnosed, and I my fibro has worsened over that time. I was diagnosed as having severe fibromyalgia, and believe me it has been. My internist believes that mine was triggered by 3 major knee surgeries in 2007.
I also had scarlet fever as a child, who knows. I started out by having really painful legs cramps, and lower back problems. The burning and twitching muscles and the insomnia are the worst. Although I do sleep fairly good now at night, but when I have a flare, sleep time is over.
Have you seen a Rheumatologist? If not I would and try to find one that treats fibro. Do you take anything at all for the pain? I use Advil PM to help me sleep, I trade the Advil off with a sleeping pill, but I do manage to get sleep. I hope I helped a little.
gentle hugs
Angel
Hey Patsy,
Do you have Lyme or have had it? All of the symtoms overlap. I'm not ready to accept fibro as a diagnosis but I know in my heart that the amount of ABX'sI put in my body, Lyme should be gone. If anything I have Candida from it all.
My liver does not need anymore stress from the meds.
Thanks both of you for quick replies, anyone else on board I would like to hear your thoughts.
It could still be related to lyme. Some people are never right despite treatment. I have many of the symptoms you described.
Hi Dave,
It certainly sounds like fibromyalgia. When I read "muscle twitching" and "burning" --- fibro is the first thing that comes to my mind. Also, many fibromyalgia patients have insomnia.
Are you taking magnesium ? If not, I would recommend it. If you could buy it in powered form, I would recommend that vs. the pills. Of course you should always discuss this with your physician first.
Please feel free to check out our Health Pages. We have tons of info on fibro and I'm sure some of our fibro members will be here shortly to chime in.
http://www.medhelp.org/health_pages/list?cid=39
Forgot to mention that I also get tons of muscle twitching when I am in pain.. In the AM I start out ok, but as the day progresses, it gets worse.
Thanks again