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Avatar universal

Is this Fibro? I need some help help.

Hello All:

I am looking for some answers for my current condition and I am hoping some of you great and knowledgable people here can help me.

I have been having muscular, connective tissue and nerve pain for several months now, waxing and waning but progressively getting worse.

It seemed to begin when I started treating my underactive thyroid.  I was doing great for a while on the synthroid until the doctors insisted I increase the dose to get into optimal range.  This triggered anxiety, boughts of insomnia and wierd burning sensations on my back as well as exercise intolerance.  Over time I believe the problem with the insomnia lead to the aches and pains.

Currently I experience the insomnia, pain in my muscles primarily in the legs.  It feels like my hamstrings are always pulled.  At time my legs feel like they are weak, limiting my mobility.  Pain especially around the knees and elbows, stiffness at times.

I had the run around with med doctors giving me all the possibilities, but no diagnosis.  Could be neuropathy, myopathy, metabolic/hormonal (thyroid), fibro, or maybe autoimmune (markers not high enough) etc.....  Treated Lyme disease aggresively w/ IV as I was symptomatic w/ spotty WB/Elisa labs.  No significant improvement.

Does this sound familiar? Could it be fibro?

I know lack of quality sleep has added to the mess.  

Your thoughts are appreciated.

7 Responses
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Avatar universal
I'm curious as to why you say you aren't ready to accept fibro as a dx?   How long were you receiving the IV treatment and did they follow-up with continued antibiotics afterwords?  Lyme can cause permanent damage, whether it's treated or not, unless it is caught in the very early stages.

Everything that you have written leans towards it; insomnia does have a great effect the way we feel since this would prevent one from reaching the degree of sleep that is restorative.  The muscle twitching is most likely Restless Leg Syndrome (which can effect you day or night and can also occur in other areas of the body).   It does wax and wane, getting better at times and then worse.  There is no set pattern for a flare...everyone seems to be individual in that respect.  

I hope you can find something that will help you with your pain.  You could try one of the drugs approved for fibro. and see if it helps.  Also, getting proper sleep is important so you may try seeking something to help you there as well.  

Get well soon and take care.
Helpful - 0
Avatar universal
I had the bullseye rash and then got very sick with fevers, neuro problems etc...it's a long story.  I saw a lyme specialist who told me there is no way to say for sure unless someone has a CDC positive test.  My test was not positive but I had 30+, 39,41 were IND on the IGM.  He did treat me and I got better.  It came back again though with a vengeance after surgery.  I was never completely well but I was ok.  When it came back I got treated again and improved again. So 2+2=4 in my book.  I'm not sure what is written in my chart though.  I have most of your symptoms but I don't have hypothyroid as far as I know.  My last test was in 2006.
Helpful - 0
606078 tn?1247264553
Hi there;
   By reading your symptoms, it definitely sounds like fibro. I am approaching the one year mark since I was diagnosed, and I my fibro has worsened  over that time. I was diagnosed as having severe fibromyalgia, and believe me it has been. My internist believes that mine was triggered by 3 major knee surgeries in 2007.
    I also had scarlet fever as a child, who knows. I started out by having really painful legs cramps, and lower back problems. The burning and twitching muscles and the insomnia are the worst. Although I do sleep fairly good now at night, but when I have a flare, sleep time is over.
    Have you seen a Rheumatologist? If not I would and try to find one that treats fibro. Do you take anything at all for the pain? I use Advil PM to help me sleep, I trade the Advil off with a sleeping pill, but I do manage to get sleep. I hope I helped a little.

gentle hugs
Angel
Helpful - 0
Avatar universal
Hey Patsy,

Do you have Lyme or have had it?  All of the symtoms overlap.  I'm not ready to accept fibro as a diagnosis but I know in my heart that the amount of ABX'sI put in my body, Lyme should be gone.  If anything I have Candida from it all.  

My liver does not need anymore stress from the meds.

Thanks both of you for quick replies, anyone else on board I would like to hear your thoughts.
Helpful - 0
Avatar universal
It could still be related to lyme.  Some people are never right despite treatment.  I have many of the symptoms you described.
Helpful - 0
Avatar universal
Hi Dave,

It certainly sounds like fibromyalgia. When I read "muscle twitching" and "burning" --- fibro is the first thing that comes to my mind. Also, many fibromyalgia patients have insomnia.

Are you taking magnesium ? If not, I would recommend it. If you could buy it in powered form, I would recommend that vs. the pills. Of course you should always discuss this with your physician first.

Please feel free to check out our Health Pages. We have tons of info on fibro and I'm sure some of our fibro members will be here shortly to chime in.

http://www.medhelp.org/health_pages/list?cid=39
Helpful - 0
Avatar universal
Forgot to mention that I also get tons of muscle twitching when I am in pain.. In the AM  I start out ok, but as the day progresses, it gets worse.

Thanks again
Helpful - 0
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