It's not CFS, it's Sjogren's Syndrome?

[SuzCat]

After 2 years of my doc insisting it's CFS plus something else yet-to-be-diagnosed, I went to an eye doc who said he's almost 100% certain it's Sjogren's Syndrome. This is an auto-immune disease whose symptoms include chronically dry eyes and mouth, terrible fatigue, pains in joints...sound familiar guys?

Of course, there's no cure. Oh whoopee-doo. Doesn't make much difference if they call it CFS or this. I'm still totally exhausted, in pain and stuck with it. Oh, and Sjogrens sufferers often get kidney and liver problems because their immune system attacks all moisture-producing cells in the body. And my doc has to be vigilant in regularly checking me for lymphoma symptoms, cos that's an increased risk, too. Guess it does make a difference what they call it then, doesn't it?

Sorry to be such a downer. I'm just so fed up with my broken down body. I'll be 35 in March. I'm meant to be hitting my prime, not hiding under my quilt!

[gkneez]

Did your ANA bloodtest come back positive?

I have FM/CFS. I also have Non-Sjogren's Sicca Syndrome. Basically its dry everything, eyes, mouth, etc. But it doesn't have the autoimmune problems.

Make sure they do the blood test.

[dustybrown]

Sorry to hear of your recent diagnosis. I don't know a lot about this disease. I've read a little about it, but how do they diagnose it?
-Dusty