Hi, everyone. Have you noticed in the forum list there is nothing to indicate that this forum deals with CFS (ME in UK)? Whe i first joined there was a title on its own for CFS which I presumed to be ME. I had never heard of Fibro and would have just thought that my condition was not covered if I had looked at the title page now. This is the reason why there are so few posts from people with CFS.
With mega respect, i would not wish Fibro on the worst person in the Universe. I accept that they are related conditions and some poor souls have the double deluxe variety. However, my prof in charge has never mentioned that I have this. Some of us with CFS do have bad aches and pains but they are spasmodic and are easy to resolve with Paracetamol. It's all the other stuff which everyone knows, primarily the exhaustion, photophobia, short term memory probs, cognitive and neurological, like being 30 seconds behind in a conversation, forgetting words, weakness etc. etc.
Therefore, please would someone in charge please rectify this on the main list? I have been helped so much on this site and found some lovely friends with whom I can actually communicate and who don't say "Cheer yourself up, tell yourself a joke"
Please give others, who are equally isolated and misunderstood, a lifeline.
One more point: I feel so sorry for all the fibro sufferers out there and would love to reply to posts but I really don't know anything about their dreadful, unbearable pain and would not presume to advise.
Also, to all friends, contacts: Sorry haven't been around, my mum is very ill, prognosis very poor. So, millions of emotions + exhaustion. still love you all.