Nuvigil??

[Linda sue]

I was recently given samples of the new drug Nuvigil ...as i have so much trouble staying awake in the daytime... has anyone taken this ...and if so ...did you have a reaction to it ??
I thought it was doing ok ...but wasnt taking it every day. Well then I tried to remind myself to keep taking it ! I had noticed afew days that my head and eyes were itching like crazy...but thought nothing of it .then after the 4th straight day of it ....my head was really bad...and I mean it felt like I had put acid or something on it!! My eyes were feeling awful too and my voice was very hoarse. Anyhow ...I had a severe reaction and ended up in the ER. So I am wondering if anyone else has had a problem with the Nuvigil??
                     thanks...and have a hopeful day.....Linda

[looneytunes53]

Hello,
I have RA, OA, Depression, PTSD and Fibro.  The Fibro has been with me probably the longest.  Anyway, I am at the point now, for the last two years, of not being able to work outside the home.  The drowsiness and pain were awful.  The drowsiness was more predominant after I began a treatment plan of prescriptions such as OxyContin to relieve pain and biological drugs for the RA.  My Rheumatologist recommended Nuvigil.  Tried some samples of 150 MG.  It was the difference between night and day.  I was no longer falling asleep at the dinner table with a fork up to mouth!  I could talk intelligently again, and no more trouble word finding. My body got used to the dosage, which after doing research on the net, this apparently is common.  So Dr prescribed 250 MG and I seem to be getting used to it as well. But it has been six months.  I hate the feeling of drowsy eyes and the feeling of not wanting to do anything but crawl back in the covers and sleep my life away. I am taking one and half tab now til i see my Dr.  No problems sleeping at night.  So, I guess I have had no side effects.  But maybe in the future, there will be another med that works even better.  Keep hoping.

[Julie_F_S]

I have been on Savella for 2 months. I have FM and narcolepsy and Savella has not helped at all. I still fall asleep in front of people when entertaining and at the movies, when driving, no matter what I am doing I can suddenly fall asleep. I thought Savella would work since it said it would. It didn't. Now I am going to try Nuvigil and see what happens.

[Linda sue]

Hi....no the drug Nuvigil is for daytime sleepiness> I can sleep for 8-10 hrs. and be sooo sleepy again after being up only 2-3 hrs! So basically is is for narcolepsy!
The newest drug for the Fibro is called Savella. I have heard good results on it and cant wait until I can take it.( I have to wait 2 weeks until the side effects of the Nuvigil are gone)           thanks and hope all is well!!          Linda

[singerpoet]

Is Nuvigil supposed to be a drug for Fibro? you're saying?  I've been trying to find a new doctor for over a year since my old one left town, and I don't have my appointment until August, so I haven't heard of it yet.  I think I'd better write this one down is they're saying its for Fibro and you had such an adverse reaction.  
I also find that allergic reaction to meds or other things often, as in your case, affects my face and scalp (aren't we lucky....lol)
Hope you find something hyelpful.   Nortriptyline 40 mg (APO-Nortriptyline) at night has helped me a lot to calm down the supersensitivity when trying to lie down to sleep and has helped my sleep quality a lot, therefore everything else as well.  I've been taking it for a couple of years now and worked my way up to the 40 mg 10mg at a time over the first month.  It seems to enable my body to relax and I have had no known side effects.
The new doctor I'll be seeing in August actually said she had attended a conference on Fibro/CFS just a couple of weeks before she interviewed me to decide if she would take me as a patient.
Hope all goes well.