Please do not give up!
we are all in different stages of our pain management from these diseases or episodic accidents....Realize some on these forums are obsessive...
I suffer from peripheral neuropathy, facet joint arthritis, ...autoimmune thyroiditis and kidney disease...
My severe pain issues happened 10 years after too much dental work at one time that damaged nerves in my face, 13 yrs after a fall crushing my tail bone, damaging pelvic floor, cracking ribs close to spine... ....
If you have not started keeping a diary please do so..
List meds prescriptions or vitamins or anything you take on a regular basis...
As u take daily..check off that u took them..not everything down..highlight, circle ahaaaaaaa moments!
If you hurt that day ..why?..what increased the pain..
when? Pain worse at a different time? ..
Of course next is where? Was the pain worse in what area?
Want to scream? Get under covers or in a hot Epsom salt bath and sing your favorite song!...t
Then back to the diary...did u sleep? Why not? when did you sleep? During day?
if you see a pain med doctor I pray he asks specific questions about bowel habits, any new prescriptions, med suggestions,new doctors? tests?
After a few weeks or months you will know a few new things about yourself that you did not realize!
....I found out I was not compliant with my meds, I was having withdrawal symptoms and didn't even know it! ..My sleep had never been "normal" and that prompted a sleep study which showed I get no rem sleep and I have narcolepsy!
Those are just a couple of things I found out!
that was a simple way I found out what questions to ask..
Every stage of our feeling bad all over has to be helped and I hope you can at least start to feel better by knowing that we are here to help...I pray..
You got some really good advice from icannot.
The only thing I would add is the varying illnesses that are "like" fibromaygia. They are CFS, lymes & other tick borne illnesses (Rocky Mountain Spotted Fever, and others.), lupus, MS, and vit D deficiency. Just be aware that the test they usually run for lymes is often wrong. The test you would need to ask for is IGENEX.
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
Common symptoms of bartonellosis include:
___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)
___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"
___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature
___Headaches, especially frontal (often confused with sinus) or on top of head
___Eye symptoms including episodes of blurred vision, red eyes, dry eyes
___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)
___Sore throats (recurring)
___Swollen glands, especially neck and under arms
___Anxiety and worry attacks; others perceive as "very anxious"
___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature
___Poor sleep (especially difficulty falling asleep); poor sleep quality
___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)
___Muscle pains especially the calves; may be twitching and cramping also
___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)
___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.
___Tremors and/or muscle twitching
___Heart palpitations and strange chest pains
___Episodes of breathlessness
___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins
___Gastrointestinal symptoms, abdominal pain and acid reflux
___Shin bone pain and tenderness
Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever." Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats). Bartonella can also be transmitted by ticks that transmit Lyme Disease. In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.
It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified. While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.
As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:
___Fatigue and often excessive sleepiness
___High fever at onset of illness
___Night sweats that are often drenching and profuse
___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)
___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"
___Episodes of breathlessness, "air hunger", and/or cough
___Decreased appetite and/or nausea
___Spleen and/or liver enlargement
___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)
___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
___Joint pain (more common with Lyme and Bartonella)
___Anxiety/panic (more common with Bartonella)
___Lymph gland swelling (more common with Bartonella and Lyme)
ROCKY MOUNTAIN SPOTTED TICK
Rash (occurs 2-5 days after fever, may be absent in some cases; see below)
Abdominal pain (may mimic appendicitis or other causes of acute abdominal pain)
Lack of appetite
Conjunctival injection (red eyes)
Thanks for all the information I have an appt next week and will ask questions. I am still waiting on my vitamin d results. I will deffiently keep you guys posted on what's happens at that appt! :0)