I have a few things I use for pain relief. Lyrica,Cymbalta, Ciprlex are the 3 main drugs. I also have IMS, massage and Osteopathic treatments done regularly. Have you tried any of these?
I am in the same boat. The savella side effects were so bad that I am afraid to try lyrica or cymbalta. I rely on one or two painkillers a day that I get from other sources besides my rheumy. He doesn't prescribe pain meds thanks to all of the stupid new laws in florida. I am going to see a new rheumy next week that can hopefully help me because I wake up in severe pain and it lasts all day. I am not comfortable with self medicating but I can"t live in total pain either. The oxycodone does wonders and I make sure I go a few days a week with taking nothing so as to not let my body get used to it. On those days I usually end up having a vodka or wine by late afternoon to take away some of the pain.
Anyway, I will let you know what my new doctor suggests next week! :)
I take gabapentin (similar to Lyrica but an older drug) and Flexeril. That combo works very well for me. The other thing that helped me that I wasn't convinced about at first is doing some light strength training). It hurt a LOT at first with the 5-pound weights, but after a couple of weeks, my pain level decreased tremendously. I hope you feel better soon!