Sounds like you may be having some anxiety from the Neuro appt. The tuning fork that your dr. used is just to check for body sensation. It is to make sure you can feel the virbrations and coolness of the instrument on each side of the body which rules out things like stroke..etc.
What did the neuro say to you after examination? Did you bring up all your problems including epilepsy? The headaches may be a result of not managing your epilepsy correctly. For instance you could be having seizures all night and not even realize it if they occur in your sleep. I am sure you know that everytime you have a seizure you lose oxygen to the brain...therefore lower oxygen would definately result in these horrible headaches.
Finally, if the meds aren't working get off them and have the dr. try something else. It could be giving you muscle pain just as a symptom of the drugs not working well with your body. Good luck to you.
Hello , thank you for responding..
My last epilepsy attack was 15 year ago. I did not have any since then. I always woke up after my epilepsy attacks ( it was hard not to notice them my skin felt like it was crawling and it was like waking up from a horrabol dream).
The headaches stared after i fainted and hit my head ( I never fainted before that or since then)
The Neurological examination was an evaluation for National Insurance Institute so the dr did not tell me his finding. I never felt the feeling of vibrations in my body like that , his tests were very painful for me .I did not feel any coolness from the instrument .Just befor the tuning fork , the Dr. prest his thambs between space between the eyes to the eye sockets , were part of my headaches are located (i also have pain in my forhead that feels like pressure form inside my head and lightning pain on the sides of my head ) i don't think it was anxiety. I just felt extreme pain. He was not very gentle with his examination and the feeling vibrations & muscle twitching throughout my body came two hours after the examination when i was calm. My toes are still tingling a littel but the muscle twitching stoped. My feet and hands fall asleep a lot and tingl but it felt different and i never had twitching except in my eyelids from time to time.
I just started the new 150X2mg Lyrica dosage a week ago so i have to see if it work in five weeks but so far it's not helping the pain.
For some reson my body doesn't respond to pain medicasion at all.
I also deal with chronic pain. Mine is just a juvenile version of fibro. Medication have done nothing for me either. I am 19 and have had migraines since age 11. They also are daily and chronic. The best solution, in addition to meds (im on cymbalta, which has definitely helped me) is intense exercise. It is equivalent to torture at first, but it retrains the horrendous nerve patterns.
I went through a typical course of PT and OT at The Childrens Institute in Pittsburgh. During the therapy, I was put through was 5 to 7 hours of therapy a day including intensive physical, occupational and pool and/or yoga therapy. While it was often painful, such therapy helps to improve blood flow and break the pain cycle. The therapy usually lasts between 2–4 weeks before the child has the pain under control. This therapy is mostly to teach mind over body. Although I am still in pain, It is basically simple to explain what to do, to other adults who are mentally strong enough to do what seems completely irrational to get the final result.... less or no pain.
First, for the feeling of your skin being incredibly over sensitive in the way it does durring the flu, rub down the area(s) of skin most sensitive with a towel for 10-20 minutes twice or three times a day. This desensitizes the nerves and helps your skin to start reacting normally again.
Secondly, EXERCISE EXERCISE EXERCISE. Its the last thing you may want to do, but it is the number one thing you need to do. think cardio, stretching, and anything that will keep you moving. As long as there is no present injury, there is no reason to listen to your body screaming in pain. The longer the daily exercise schedule is kept to, the sooner your pain will decrease in severity. It took me about three weeks.
With daily exercise, by the end of the third week, I felt like my body had died and gone to heaven. Everybody's pain is different and tolerances are different. Results will be the same way, also, but exercise and I promise from the bottom of my heart that it works. The three best pieces of advice I can give are EXERCISE, ignore the pain, and make sure to see a phsycologist to help manage pain. The last one has for sure been just as beneficial to me as the exercise. At first I was weary of seeing a "shrink", but learning to live my life in the body I was born into is a skill that is worth while to master.
Blessings and Best wishes for better days ahead!