I know this girl who just started taking Topamax for headache relieve and in less than 2 months she has already lost 32 pounds.
I couldn't take the Lyrcia, beause i felt as though i wasn't breathing right on it, and my hands and feet swelled up so much like a balloon. it made me scared.
Hello and welcome,
I used to take Lyrica (an anti-seizure medication) for intense fibromyalgia and nerve pain and had very similar side effects that you speak of. I put on weight and became extremely lazy. I chose to switch to Topamax and have been taking it for over six months. I have lost about 25lbs since I quit taking Lyrica. (I did take Neurontin in between the two medications and lost about 5lbs when I switched to that one.)
There are a couple of major differences you should realize though before switching to Topamax though.
*It is FDA approved only for Migraines and Epilepsy, so if your doctor doesn't code the prescription correctly, your insurance may not cover it. If they try to code it for "chronic pain" or "Fibromyalgia" it could get rejected.
*It was first a very strong Epilepsy medication used to treat the worst types of seizures known as "grand mals" or tonic clonic," so the medication is very potent. Lyrica and Neurontin are anti-seizure medications too, but they are only useful as adjunct medications if used for Epilepsy, which means it has to be couple with something else to work on grand mal seizures.
What does this mean to you? It means that Topamax may have more initial side effects in the beginning of the therapy than Lyrica or Neurontin.
*Many doctors think that Topamax is just as tolerable as Lyrica, so they might start you at a high dose right off the bat, which is a HUGE mistake!!!! The typical dose for migraines is 100mg. The best dose for nerve and Fibromyalgia pain is between 150mg and 200mg, but you can't start at that dosage. Topamax must be increase in doses of no more than 25mg per week to avoid side effects. If this is done, the medication is a highly effective, highly tolerable option for migraines and pain and you want to let your body tell you where it is working at it's most optimal dosage too because everyone is different.
The most common side effects I had went away in about 6 weeks. They were insomnia, tingly fingers and toes, and loss of appetite. I also had a little bit of confusion for about 2 days on the days when I would increase my dose. This would pass quickly though. Also, soda tasted flat for about a month, but that too went away and now it tastes normal. I hope this information helps you. Feel free to ask any more questions you might have. Thanks.
Good information about the insurance coverage and Topamax. The neurologist hasn't decided to try Topamax as of yet, but since I have migraine disorder, he can certainly label its usage as such since that's what he is treating me for. That's not where he is headed yet, though.
I want to thank you for you information on Topamax. I sure hope that my doc puts me on it. I am so greatful for the help he has given to me already. It sure is hard to find someone that will take care of you these days. I went to a NL @ two months ago and he run a few test like a CT Scan of head and an MRI of Lumbar, also EMG's of ams and legs. In the CT it showed what was called a Venous Angioma, in which he said I was probably born with but it still creeps me out.
Hey guys I didn't realize the time, gotta go to see Dr. this afternoon. Got to get myself together. I will be back to continue our discussion.
' Thanks and always...GOD BLESS..Karen
There is one thing I should mention though. Not everyone loses mass quantities of weight on Topamax. Some people do not lose at all, but the nice thing is that most people do not gain while taking it. If you have healthy eating habits your likely to lose more. Good luck to you and let us know how things go.
Get off Lyrica, it's awful and that pain patch has so many side affects. Topamax is wonderful and a side affect is WEIGHT LOSS. With diet and exercise I've lost 20 pounds while on it. Being a chronic pain patient suffering years with FM I've not been able to lose any weight until topamax. I've taken Lyrica, fetanyl, and just about any other pain med you can think of. There is hope so hold on and take that topamax. Helps head aches, some nerve pain and great side affects.... Best of luck