Tender scalp anyone?

[Bev707]

Hi all
I have yet to be diagnosed with Fibro but have many symptoms - I have Hashi`s and arthritis in my neck.  Does anyone with Fibro have a really tender scalp?  It feels like the similar tenderness that I have in my elbows and other places when I touch them.  It`s usually just from the very top of my head all the way down toward my neck.
Thanks!
Bev

[Pattinich]

I also get this painful scalp sometimes as well as stiff neck and migraine. It seems to be a blockage of the neck.
I have a very good chiropractor who also understands natural healing and Fibromyalgia.   Usually visit him once a week or whenever these symptoms appear.   He adjusts my neck gently and uses light therapy..goodbye symptoms until the neck moves out again.  When we have chronic conditions our bodies react by blocking energy and the spine jams up.   Personally, over the last 12yrs I have had much success with chiropractic care.   If you can find one who understands Fibromyalgia it may help you.    We are unfortunately all different so good luck.  

[CathyLane]

Can you update us on you taking LDN?  I'm very interested in knowing if this helped you.  This week is a really bad one for my fibro.  Found your info when searching about painful scalp. I seem to have a really bad round this time and was looking to see if it was fibro related.  Seems as tho it is. Could you write about your experience with this drug? Did it help? Do u still take? If so, what dose are u at now. Thanks. Hope your doing well.
Cathy

[Bev707]

I posted that comment years ago!  I have since been offically diagnosed with Fibro so it`s no surprise all the weird tenderness and aches and pains.
I`m about to start taking LDN (low dose NALTREXONE) - my husband has MS and has been taking it for 6 years and is in great heath.  There was a very small clinical trial at Stanford using LDN for Fibro with very sucessful results.  But you do have to get it "off label" as the original high dose Naltrexone is used for something else.  Taken at a dose of between 1.5mg and 4.5mg is perfect for autoimmune people like us.  Googe LDN and start reading all the info and then will come the hard part of getting your doctor to write the script - it`s an FDA approved drug but many doctors feel uncomfortable writing scripts off label.  My husband`s neuro has been prescribing his for years and I now have an open minded doctor. There is a huge online community of people that use LDN for fibro, MS, Crohns disease and many more.  It`s affordable too since it`s generic and the patent has expired so big pharma cant push the price up like most of the other drugs.
Good luck everyone.

[Jikitty]

Yes My scalp is tender too I just started realizing it! Of course one more thing! I even get a little dizzy if I push down on my head for a few sec.

[fred466]

I have scalp tenderness as well as same all over whole body, including the eyelids, etc. What part of the body is NOT affected by FM? My neck cracks and squeaks every time I move it. My jaw cracks every time I move it. It hurts to go to the bathroom. It hurts to speak or breathe or write. I wish there was something that did NOT hurt.

[FurballsMom]

Yes, I definitely have the tender scalp issues.  On top of that, chronic migraine disorder to go along with the FMS.

[blue_violet]

Yes, we (try) and joke about it in my family.... We know it's a bad day when even my hair hurts!

Sometimes you have to have a sense of humor about these things... Otherwise they'll drive you nuts!

Hope everyone is having a pain-free-as-possible-day!

[S99q]

If you also have muscle or/and joint pains you may want to consider Various Polymyalgia Rheumatism and its evil cousin Temporal Arteritis. Both are treatable but the second one has the potential for doing more damage. Look them up on Google

[Bev707]

Thanks!  Just wanted to make sure it was one think "not in my mind" - until you have a definite diagnoses you sometimes think that it`s just impossible that everything could hurt quite so much all the time!
Bev

[patsy10]

Yes, and I have had a cervical spine fusion.

[Ree4tu]

Yes, sometimes my scalp is tender to the touch just like other areas of my body.  It comes and goes. I do not have arthritis in my neck, but I have a stiff neck from tight muscles which has pulled my vertebrae out of alignment.  Usually people with fibro have a stiff neck which relates to the tenderpoints in the neck and have other tenderpoints throughout the body.  

Ree4tu