Troubles at Work due to FMS

[SuperSunny]

Has anyone had trouble maintianing your career while suffering with Fibro/CFS?

My biggest problem right now is work.  While I love my full-time job, they are becoming less flexible.  As you all know, Fibros need flexibility due to the unpredictable nature of the beast.  I have a quite professional job in the pharmceuticals business (not a sales rep!).  I need to keep this job or we could lose our condo...  My manager has mentioned "demoting" me because of my absences from work.  I do have ADA notes from my doctors.  Since they can't fire me, they are looking at demoting. Kind of don't have any options here.  I do a high ranking in performance; it's the absences that are causing the problem.  This is not like the flu where it will go away in a week.  This is a life sentence, you know?  I have looked for part-time work and there just isn't anything comparable in salary.  I am willing to go from full to part time, but taking a 50% cut in hours AND hourly wage won't pay the bills.  Eventually, something will work out, but how do I deal with the inflexible boss?

ANY advice or experience sharing would be great.  Thank you for your time.
Super Sunny

[Totie]

This is a hard situation for BOTH you & your employer. I work because if I don't I will feel like I gave into it. I don't want to become housebound any earlier than I have to so for me I push through it. BUT that is just me.

Now I also understand my employers point of view as well. People depend on me at work and to get the job done, if not then YES they need to find someone who can do it.

[CakeisgoodFrostingisbetter]

It's hard I know all about it.  I had to quit my fulltime in 2007 because it wasn't fair to my cases and the people that relied on me daily.  I also had to quit because I just didn't have it in me to go 8 hours and have stamina throughout the entire shift.  There were times I actually took naps on my hr lunch break.  That is no way to live and it's hard when you have a boss that is not understanding and willing to work with you.  
The good news is that disability is an option and illnesses that were not approved in the past, are now being accepted.  The number of people with these diseases must be rising and finally people are seeing that it would just be not physically possible and also unhealthy for people suffering with a chronic illness to push themselves and struggle through a work day.  It's just no way to live.  
Taking the paycut seems like the best option for you.  Is there any option to transfer to a different location where maybe management would be hopefully more understanding.  
Check out this link from MSNBC that talks about this specific issue.  You may find it helpful
http://www.msnbc.msn.com/id/32363933/ns/business-careers/