From the CFIDS Association of America - they did a virtual lobby day this year, for those of us who couldn't possiblity make it all the way to D.C. ourselves.
It really does make a difference to send in these letters. When I've talked with Congress staff members during lobbying, some of them mention that they are receiving these. There's so much competing for their attention, so it matters if we make squeaky wheel noise, and stay in their minds.
So a email letter from the Association:
It's Not Too Late for Virtual Lobby Day!
The CFIDS Association of America's 5th Annual Lobby Day is still under way!
Five easy-to-complete activities are available at
http://capwiz.com/cfids/home/. In the past 12 days, advocates have
sent 3,487 messages to legislators, policymakers and the media
about the need for increased funding for and attention to CFS.
In 20 minutes or less, you can write to the two U.S. Senators who
represent you (Action #1), the Secretary for Health (Action #2), CDC
Director Dr. Julie Gerberding and NIH Director Dr. Elias Zerhouni
(Action #3), the member of the House of Representatives representing
your local community (Action #4) and your local media (Action #5).
Using our pre-written letter templates, it's easy!
There is power in numbers. Let's flex our advocacy muscle!
Thank you for participating in CFIDS advocacy!
K. Kimberly McCleary
President & CEO
The CFIDS Association of America
In case the link doesn't show when I post this, click on:
Thanks for making a difference for all of us!