involuntary jerking & shaking- anyone exp? I am scared.

[jennifer567]

Anyone with FM have involuntary jerking or shaking? This has just started for me. I am waiting for new insurance to get tested for Lupus or MS. I was just curious if anyone else has this? I also have numbness in arms, hands and feet. I also got the strangest rash on my arm yesterday. I don't know whats going wrong with my body!! I feel very alone and scared. I see my Internal Med. doc Thursday, but I am worried...

Any advice or comments are greatly appreciated.

Thanks in advance.

[crystalsunflowers]

I have had fibro for 30 years, diagnosed 22 years ago, and recently confirmed.  I also am jerking badly, and it looks very much like full body seizures at times. They seemed to ease for awhile, and just started up a few days ago, and now thanks to reading this realized I am out of magnesium.  I also tend to forget a lot.  I seriously  think that the magnesium helped and am going to get some today.  I'll post if it helps.  I also was taking B12, but not as diligently, as I should have.  

Thank you for this topic.

[Mozzey_Mojo]

I have all those symptoms except the rash but i understand thats normal for fm too. I know how you feel. I have a huge fam n most of them dont understand. I feel like no one believes me :-( but im told this is normal too. Im still waiting for my symptoms to peak, (for want of a better word) av least that way i'll be able to begin to accept i have this life changing syndrome ..

[Mozzey_Mojo]

I have jerking and twitching most days. Its a symptom that ive had for a few months now. I keep hoping my symptoms will stop getting worse, so i can finally accept i have this life changing syndrome.

[midwestmomma]

I have FM and have researched for a long time my symptoms and haven't hit on anyone similar to me.  I am wondering if I have something on top of having the Fibro. I can't walk for long periods of time.  My legs become extremely sore and the pain burns deep into my upper thigh tissue.  Any light touching of my upper thigh (which makes me thinks it's the FM) is excruciating.  The part I wonder about is the extreme leg weakness that follows.  I sometimes can't even feel my upper thighs.  It's as if they disappeared and I will fall over.  The muscles just evaporated.  If it gets too bad (all I did was run a few errands last night that required walking) I can feel an electrical impulse run through my body and the legs begin to jerk while I sit on the couch and watch t.v.  Anybody out there have anything similar?

[Little_Cara]

I have the same problem, my thighs or knees get extremely sore the more i walk, which effects my job. I have restless leg syndrome at night and can't lay on one thigh long without extreme pain. My dr at the start of my diagnosis put me on lyrica and i couldn't function, but it didn't help with the pain. My new dr put me on gabapentin and it really helps with most symtoms. I can walk longer now,I have some bad days, but most are bearable now. I am still learning all the symptoms of fm and how to deal with them.

[Jax1964]

I also have the spasms, they start when im relaxed in bed, my legs do little jerks, and my knees, then i'll have a couple in my buttocks, sometimes my arms jerk too, when my head jerkes,it feels like its coming from my neck, this goes on for hrs.
Ive been suffering with FMA for 3yrs but was only diagnoised June 09, so im still quite new to it really. the only way im learning about this condition is through this MedHelp Site because my doctors are oxoxox. its really good to know im not alone, but i am sorry that everybody who suffers from FMA are in so much extreme pain, this condition is THE PITS!
It keeps disabling me, i have injections every 4mnth, im not too bad for 4wks after, but then 3 to 4mnth im crippled with the pain. Sorry for going on, ive just realised. sorry.
Thankyou!
Jax(",)xXx

[A0M]

I get it allot too, more at night than during the day. My doctor tryed to explane it, but I don't remember exactly what was said. It is frustrating and gets in the way of what little sleep I get, wich ***** becuse I am 16 and want to have energy to do stuff.  But I do know that a change of temp. can be caused by blood vesles tightening in responce to pain. Normaly the reaction is due to bleeding, but the brains signals are off and misinterpret the pain.

As for the muscle spasms, drink Tonic Water, it contains Quinine which helps stop them.