Aa
officially diagnosed Monday, mixed feelings...
I had been expecting it...not prepared for it emotionally, but intellectually I knew it was coming. In addition to the original injury to my back, I have developed Fibromyalgia. My bodily system has changed in some unknown way as a response to trauma.
:(
i have really mixed feelings about this. on one hand, it is really nice to know that I am not crazy; That there are other people out there who have gone through the kind of pain I have, who have felt the ssame bizarre sensations, and had the same "mysterious" symptoms that I have.
On the other hand. It does feel a bit overwhelming. (okay, A LOT overwhelming, lol!) I feel kind of like I have just arrived in class to take big exam I forgot to study for, or arrived unprepared to an important business meeting.
Does anyone have any advice or experience to share as far as going about "accepting" that in addition to the sponsylothesis/osis, thoracic facet syndrome, and PTSD, I also have the effects of fibromyalgia to deal with?
In many ways it is also a weight of my shoulders to know that so many of the odd and bizarre things happening to my body are partially explained by something. It is extremely comforting to know that others have experienced the same things I have.
Anyway. the hardest part for me to deal with is that there is no cure, and the medical community seems to have no idea what causes fibromyalgia. I will be stuck with it for the rest of my life, even if my back injuries could somehow be "fixed", I have still been irrevocably altered by fibromyalgia. It is like having a life sentence of pain and torture being read to me. I had hoped to be able to one day get off of all my medications and have children. Now it seems impossible with the medications I have to be on, or the pain and symptoms I would have if I were to stop all my medications.
Any words of advice/encouragement?
:(
i have really mixed feelings about this. on one hand, it is really nice to know that I am not crazy; That there are other people out there who have gone through the kind of pain I have, who have felt the ssame bizarre sensations, and had the same "mysterious" symptoms that I have.
On the other hand. It does feel a bit overwhelming. (okay, A LOT overwhelming, lol!) I feel kind of like I have just arrived in class to take big exam I forgot to study for, or arrived unprepared to an important business meeting.
Does anyone have any advice or experience to share as far as going about "accepting" that in addition to the sponsylothesis/osis, thoracic facet syndrome, and PTSD, I also have the effects of fibromyalgia to deal with?
In many ways it is also a weight of my shoulders to know that so many of the odd and bizarre things happening to my body are partially explained by something. It is extremely comforting to know that others have experienced the same things I have.
Anyway. the hardest part for me to deal with is that there is no cure, and the medical community seems to have no idea what causes fibromyalgia. I will be stuck with it for the rest of my life, even if my back injuries could somehow be "fixed", I have still been irrevocably altered by fibromyalgia. It is like having a life sentence of pain and torture being read to me. I had hoped to be able to one day get off of all my medications and have children. Now it seems impossible with the medications I have to be on, or the pain and symptoms I would have if I were to stop all my medications.
Any words of advice/encouragement?
seeana, I am really concerned that your doctor put you on prednisone for fibromyalgia. Fibro does not respond to prednisone. If prednisone helped you it means you have some kind of auto-immune issue going on, not fibro. Have you seen a rheumatologist?
Hi look ....it can go away I have just posted on here read it.My Dr got rid of it for 4 yrs until I had another trauma happen to me which I think triggered it.
I will go back go back to get some treatment and hopefully will get rid of it again.
It seems to flare up in people that are under stress,and lack of sleep. I am on antidepressants so i think vulnerable to it as well
Listen my angel its not the end of the world... I was diagnosed 4yrs ago did not have a clue what it was.... my Doc made light of it so i did as well, put on prednisolone and it went away, is it the power of the mind hell knows.
Ok its not nice ,the nights are the worse for me as only get about 3to 4hrs sleep as my legs give me pain.But I will get rid of it again that is one thing I am sure of.
You are young and strong and when the going gets tough the tough get going.
Darling please try not to worry too much ....you have the rest of your life before you.
Everyone is different its all up to you if you dwell on it you will get worse. No its not in the mind it is real but you can help yourself just eat healthy and look after yourself dont let it take hold i am a lot older but very determined.
So go for it.xxxx
I will go back go back to get some treatment and hopefully will get rid of it again.
It seems to flare up in people that are under stress,and lack of sleep. I am on antidepressants so i think vulnerable to it as well
Listen my angel its not the end of the world... I was diagnosed 4yrs ago did not have a clue what it was.... my Doc made light of it so i did as well, put on prednisolone and it went away, is it the power of the mind hell knows.
Ok its not nice ,the nights are the worse for me as only get about 3to 4hrs sleep as my legs give me pain.But I will get rid of it again that is one thing I am sure of.
You are young and strong and when the going gets tough the tough get going.
Darling please try not to worry too much ....you have the rest of your life before you.
Everyone is different its all up to you if you dwell on it you will get worse. No its not in the mind it is real but you can help yourself just eat healthy and look after yourself dont let it take hold i am a lot older but very determined.
So go for it.xxxx
Well, I can't speak to the having children, but other than that...I was diagnosed about a month ago and I can totally relate to the feelings that you have. I was completely panicked at first; I live alone, I have dogs, I work in the fitness industry...what am I going to do?
Then I realized the answer was: do what you can. I still work, I still take care of my dogs, I still laugh. Sometimes (a lot of times) its harder, but I still get there in the end. And you never know, they may find a cure. No you can't count on it or plan for it, but it could happen.
You are altered, but pretty much any life experience has altered you. I can't even imagine having PTSD, plain old depression is bad enough for me. You are still in there keeping on, and you have much to be proud of.
Feel free to contact me any time you want to talk.
Then I realized the answer was: do what you can. I still work, I still take care of my dogs, I still laugh. Sometimes (a lot of times) its harder, but I still get there in the end. And you never know, they may find a cure. No you can't count on it or plan for it, but it could happen.
You are altered, but pretty much any life experience has altered you. I can't even imagine having PTSD, plain old depression is bad enough for me. You are still in there keeping on, and you have much to be proud of.
Feel free to contact me any time you want to talk.
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