This is why I refuse to take SSRI drugs.
I was once on them and they made my life miserable more than helping me. It took me 9 months to finally get to where I did not have to take any and two years before the brain zaps quieted down after withdrawal. I slowly weaned myself from them.
I still suffer from sometimes very intense pain in my back and neck nearly every day, especially after very stressful days. The pain in my back gets so intense that I feel like I want to pass out. My physician doesn't believe me. I think she doesn't want to help because I refuse most all medications she suggests simply because I am very, very afraid of them.
Right now she is making a big deal of my taking clonopin to minimize my anxiety. I take 0.5 mg and sometimes half of that, even though she prescribes that I can take 2 pills daily. That is a total of 1 lousy mg.
Today when I went to refill my medications, the pharmacy asked me if I knew that I was getting a controlled substance. I told her yeah. I've been taking these same medications for 20 years. She said well, we just had to ask. I'm thinking....you the first one to ask.
I am tired of the medical community treating me as if I am a drug addict because taking a very minimal dose of an anti anxiety medication is of a little help to me...to keep my muscles from tensing up so much.
One day I am going to find natural remedies and kick them all to the curb. They won't get my money except what we are forced to do under obamacare.
I feel sorry for anyone with fibromyalgia it is a living hell. I have had this disease for years and have been to physicians in my state that were paid researchers. I have been on Savella for four months. I now have sweats so.bad from it I sweat thru my clothing and it drips down my face. I thought it was my thyroid medication. I stopped that. Nope I took the Savella this morning and the terrible sweats are back. I have been having intense joint pain lately and have been trying to get into my specialist for that,maybe it's the Savella, I just don't know. By the way it's not menopause, I went through that five years ago. I have fibromyalgia pain do to multiple car accidents and surgery, low back and two on my neck in 2012. It is hell. I take lyric and pain meds. I use to take cymbalta but it made me a zombie and it made me fat. I will be follow up with my physician soon and will get off the Savella, too bad it was my last hope. I recommend swimming, I mean just floating in a pool and staying relaxed since stress of any kind makes it worse. I also recommend. Eating as healthy as possible, get lots of fresh air and try to walk or do some exercise everyday no matter how badly you hurts. My husband is a real rock thank God! Maybe in the forum we can share our tips and tricks until a cure is found.
I was on Savella 100 mg 2X a day. I was starting to get muscle twitching, sweats, and my resting heartbeat was over 100, couldn't sleep at night, couldn't go to the bathroom very much, so I started to swell up like a balloon, and also had brain fog. When I decided to get off it, I went cold turkey. I figured the withdrawal symptoms and the original fibromyalgia were better than the way I was feeling on it. Well about 10 days after getting off, my skin on my face started to peel...like I had a really bad sunburn. It was large pieces coming off. I think I shed three times and it's finally very manageable. It's been about three weeks that I went off it. I'm sleeping very well at night again, my heart rate is slowly coming down, I'm actually going to the bathroom normally again, I'm thinking much more clearly, and those awful twitches are subsiding. I know I have a way to go yet, but I am so glad I got off that stuff. These new drugs are brutal. I'll just take pain meds. At least I know the side effects from that.,
Good for you. And while you're at it, contact the Medical Board for your State to complain about the doctor.
Approximately a year ago my friend was prescribed Savella. This drug comes with the following warning "Withdrawal symptoms have been observed in clinical trials following discontinuation of milnacipran, as with other serotonin and norepinephrine re-uptake inhibitors (SNRIs) and selective serotonin re-uptake inhibitors (SSRIs). Patients should be monitored for these symptoms when discontinuing treatment. Savella should be tapered and not abruptly discontinued after extended use.
When my friend went to the pharmacy to get her first re-fill prescription, she was told that the pharmacy had none in stock. She later learned that the pharmacy did have 50 mg tablets in stock and the Rx was for 100 mg tablets. With one phone call to her physycian, the Rx could have been filled. However, the pharmacist did not fill the Rx and the withdrawal symptoms began. Several times on the way home she had to pull off the road so she could vomit. She was very sick for several days - until the Rx could be filled. When her doctor learned about the withdrawal, she apologized profusely and the pharmacy was instructed that Savella must be kept in stock.
It has happened again! My friend was 4 tablets short on her latest refill. The doctor did not write the prescription for sufficient medication to last until the refill date. My friend phoned the pharmacy on Friday, and asked them to call the doctor to request filling the Rx four days early. According to the pharmacist, the early refill was denied by the physician, the same physician who previously "apologized profusely". My friend called the clinic on Thursday. The prescribing physician was not in the clinic that day. Her duties were being handled by a Nurse Practitioner who claimed that the prescribing physician had instructed her NOT to give my friend any Savella. The NP refused to provide the Savella.
On Thursday my friend phoned me, sobbing. She had taken the last Savella tablet and was well aware of the misery she would suffer until the pharmacy would be allowed to refill the Savella Rx, supposedly on Monday. She has not been able to tolerate any food since Friday, has suffered constant cold sweats and severe heart palpitations. I am an RN. I asked if I could take her to the ER, but she declined, saying "They won't help me, They will call my "attending physician" who will again refuse to help.
The physician is deliberately causing my friend to suffer withdrawal!!!!
I have contacted an attorney.
I took Cymbalta for a few weeks. What I notice, is taking about 1/4 of the dosage stopped all the side effects. The standard was to much.I had many side effects on the standard dosage, but when I cut it back, it worked great, no pain, slept well at night, and had a very clear mind the next day.I have found over the years, not to always take the full dosage of any meds, but work my up until problems occur, then back the dosage down to a comfortable dosage, regardless of the meds. The reason I went off the Cymbalta, was gas, passing gas all the time, if you can live with that, this is a good med taken in lower dosages. I mean think about it, they give a 100 pound woman the same dosage as they give a very over weight man, say weighing over 250 Lbs. Doctors are not as smart as people think they are, the average doctor coming out of med school, is a grade average of a C-. If that's a clue for everyone, i do not know what is.
I pray for U !!!!Hope U have a good Dr, recomendation form DR can decide if they going to approve the disabilitie.I,am on SSD for 7 years and got it very fast like a month.But its so little money, hardly getting by.Good luck.
It is so hard to explain to family and friends. You don't want to talk about symptoms but you are asked why it us hard to do this or that and you wind up talking about the pain and that was the last thing yoju wanted to discuss. I always feel like a hypochondriac. This disease or syndrome makes me want to avoid people and explanations.
I am 39. I have moderate rheumatoid arthritis and FIbro since my teens, but I wasnt diagnosed until 29. My RA is a cakewalk compared to FIbro. I have no energy at all. My husband thinks I'm lazy. I am in constant pain if I'm awake. I can't sleep laying down. I have small children and I can't even sit on the floor and play with my daughter. This is killing me, literally. I work full time because I am the main breadwinner in my home. It takes all I have to go to work. It's not that I don't want to, it's that I'm getting to the point where I can't anymore. I have spent lots of time and money on doctors and medications.
I took ultram for two years then stopped.The withdrawals were awful from the ultram. For a year I still had withdrawals. Then my doc said to try savella. It worked very well for me. For months I was pain free. Then we stopped it due to my pregnancy. After the baby came, I restarted it.
Oh boy, I got all the side effects. All at once I was nauseated, vomiting, diarrhea, but by far the worst was the profuse sweating and chills.
And then I wanted to do harm to myself for no reason. I literally wanted to die. It was making me suicidal. I stopped taking it period. No tapering off. Please do not take this medication!!!! I wonder how many people have killed themselves while on this drug. This is horrible!
Imagine already being depressed due to a disease and then taking this crap on top of it. It should be off the market, really.
I will just suffer through my pain, like I have for ten years.
I love Savella I take for fibro as well as anxiety I really love it. My fibro had gotten so bad through my shoulders arms ribs and knees I was like
Bed bound taking a shower was a chore. I took cymbalta first and I loved it I was on a pink cloud until I realized the cymbalta was putting me I a long manic phase. So after they said that cymbalta was bad for me I was on lyrics and I liked lyrics for my siattica but not fibro all the time I was taking pain meds with
No relief and then Savella was recommended and I love it I don't cry trying to fall asleep or
Get woken up from the pain I think it works great
I am currently taking Savella 50mg twice daily for severe Fibromyalgia. This is my third attempt out of desperation, as I'm sure you all understand what I mean. I started this time taking a month to get up to present dose. I've now been taking Savella for a about six weeks. I am doing fairly well but have a couple of side effects that I am wondering if anyone else is experiencing. For one I am having chills, which is so not normal for me, and second , it is affecting my sinuses. I especially notice sinus discomfort when I try to increase my dosage. Also, my eyes get so tired and bloodshot and I feel like I could sleep forever( which I really can't sleep at all)! I notice when I do go to bed at night , I am so cold and restless even though I'm exhausted. I am going to try and figure out how to get second dose taken earlier in the evening.
Ugh Savella was a nightmare. It made me nutty. Sick everyday to my stomach, I stopped eating because I couldn't take the vomiting. It made me grind my teeth constantly, I felt nervous, and went 3 days at a time without sleeping. I had to stop taking it after 2 months.... during which I had ZERO relief from the Fibro.
After that experience, I do not take anything. I can't deal with the side effects and would rather deal with the pain than feeling sick constantly.
I have been suffering with fibro for several decades now but just recently began "official: treatment and a drug regimen. I was having terrible side effects so hitting bottom have started different dietary and supplement strategies and am documenting them on a blog. If you have experience or found remedies I'd love you to share. http://****.wordpress.com
I was given a sample of Savella. It made my heart pump out of my chest. I felt like a big knot in my stomach between my breasts and in my throat. I took my blood pressure anf it was sky high, 167/96, and my pulse was 127. I stopped immediately and called the doctor. It did help a little for the pain, but not worth the risk to me.
i have been on Savella since January, it was helping me at least be able to somewhat tolorate it more. (only 100 mg a day) for the last month, i have been getting way worse, cant sleep at night and much more pain. however, went to the doctor today and they are putting me up to 200mg a day. not sure if savella has just adapted way too much and now it doesnt work on my pain or if my pain is just getting worse. the pain is what depresses me!!! if you want to contact me, my email is ***@**** i am going out of my mind with all my body issues. wanna chat, my name is Tracy.
I WISH Vicodin would TOUGH my pain! Life would be so much simpler!
July 2011 I woke up one morning and couldn't walk. Both feet have swelled 3x their size and were red and could not be touched not even by a sheet. I have been in the restaurant biz for 10 years and now my life has turned upside down. I am now 26 and in 1 year have been diagnosed with sarcoidosis in my lymph nodes which has caused the side affect of RA and I thought for awhile all I needed to do was take prednisone to reduce the swelling and inflamation and have been on hydroxychlor for the RA....I wish that was all. I thought I had found a desk job working for hertz but I am washing and cleaning 8 to 10 cars daily and that's been since march. Starting in may I thought I just have to deal with the arthritis in my ankles and wrists but then I started having pain in my back, neck, shoulder blades, lower back, calves, quads, jaw and cheeks. I kept a 2 week diary of my where my pain was, what I ate that day, my activity level and pain level and gave it 2 my RA doc and he is now putting me on savella. I already have missed work from being in pain am I goin to miss work starting this med due 2 nausea? I'm wandering if I should go on short term disability from my job so I can deal with these symptoms and get some rest bc I could litterally sleep all night and day if I could. I'm only 26 I want to feel 26 and I want everyone who I talk to about it not look at me and say "you look fine" because I do not feel inside how I look outside. I just wanna know if its ok that I take time with short term disability just to get back on track. It makes me feel bad but I feel bad and my days are the never the same. I wish more than anything I could wake up one day feeling rested, happy and in no pain with no stiffness, I want that more than the lottery!
I'm a 62 yrs. old female that has had fibromyalgia for about 26 yrs. I started with stiffness in my neck and arms. Now as I get older it has gotten worse and worse. I have come to the point that I can't work and I'm in the process of trying to get my disability for the past 15 months. Since fibromyalgia is so hard to diagnose, I just found out from my disability hearing that you have to go to a fibromyalgia specialist to count how many points of pain areas that you have. If you are trying to get your disability make sure you go to a specialist before your hearing so the fibromyalgia is used. The judge immediately said that the fibromyalgia would not be used because I only had documentation from my PCP that I had it.
I was given Savella to try, however I am a person that researches all new medications that I am prescribed because I have so many allergic reactions to meds. When I read the insert that was in the sample, I saw that it raises blood pressure. I have HBP so I immediately knew that I couldn't take the med. I am so glad I found this website and read the side effects some people have endured. I'm not even going to try it because I had some bad side effects from Cymbalta. I used it for about 3 months and then I started having worst pains and chest pain.
The problem with trying all these different drugs is you pay for them and then you find out that you can't use them. That's money down the drain and you have to go back and buy something else. Maybe that med will work or it won't, now you have wasted more money if it doesn't. It's a shame you can't return meds that you have side effects from.
The pain from fibro gets worst as you get older so I don't know what I have to look forward as far as getting better or eleviating the pain. Unfortunately, you just have to suffer and look forward to your good days. If I didn't have my faith in the Heavenly Father, sometimes I don't know what I would do.
I have a great husband that is very patient with me, however I feel really bad because the pain causes me to have mood swings and to be inpatient.
While taking the Savella, try taking amino acid supplements, magnesmium with malic acid supplement and withdraw from refind sugar, caffeine in take and processed foods. Ive done this with great success for my FM.
Go to the extensive drug reviews on webmd. Many people said that Savella completely took away their fibromyalgia. Everyone is different. It caused me intense nausea--darnnit.
I was taking Lyrica, Cymbalta Flexaril, savella and voltaren all at the same time as prescribed by my MD. It was ok until the savella was added. While before I was tired after the savella was a night mare. I slept all the time, Was nauseated and bruised every where. and I coulnot think straight at times. If I got distracted from a task I often forgot all about it. This and the pain, mood swings with bouts of anger have almost cost me my job. I am now working with a rhuematologist who only left me on Cymbalta, which works for me, and Prednisone which we are in the process of tapering. Ifell great now although the sleep difficulties remain.. Stay as far away from savella as you can
Going through the same thing the doctor just put me on savella from cymatta because my insurance would not pay for it sense being on the new med i feel sick all the time and cry and hurt all the time some days i just can't get out of bed waiting on SSID to take a long time i will pray for anyone one who feel like i do.
I think that you said that very well.I'm on day 6 of Savella, The side effects aren't as bad as some meds i've been given to try since 1995. Then a lot of drs thought it was all mental. God bless the people that are proving it is real.
I was transitioned from cymbalta to savella in january..he never gave me a good reason why? I have been in hell ever since! I have had good blood pressure all my life and since taking savella my bp has been dangerously high running 180/135 at times with a pulse rate as high as 98 sitting down. I can't seem to catch my breath at times....I have soaking wet hot flashes that can last hours. So embarrassing.
I just had one of the most severe dizzy spells ever and that was laying down with my eyes shut..it felt like I was dying...like my heart had stopped.
I've got to get off of thiis asap but my husbands insurance doesn't kick in for 2 months and I can't find a rheumatologist who will take a cash customer....sooooo I just started trying to wean down on my own....frustrated!