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Biliary Dyskinesia

Hi, I'm a 19 year old college freshman. Just a month ago I was diagnosed with Biliary Dyskinesia. It was a long and painful journey to say the least. It began as small stomach pains in late October of last year. The pain continued to get worse and in more frequent episodes. Eventually, just after thanksgiving break and a week before my finals, I had an attack so bad I had to be taken to the emergency room by my friends. They put me on some painkillers and stomach medication, but unfortunately it only dulled the pain a little. I was woozy and naseous, but I was thankful for the small amount of relief from that day. They ran bloodwork and an ultrasound of my gallbladder. They didn't find anything suspicious except for a strange liver number. I was put on medication for stomach ulcers. Two weeks later, the pain was only increasing and i went to a specialist. The first thing he did was look through my ER reports. He then did an endoscopy, because he thought for sure that I would have stomach ulcers. The only thing the test found was some gastritis. He put me on Aciphex for my gastritis, which i guess helps a little. He also put me on Duotabs? it helps with stomach cramps i guess? but i'm not sure if it helps or not.. any advice on that as well? anyway, A few days later i had some nuclear medicine, including the HIDA scan. That was painful, as i'm sure a lot of you can understand. My ejection fraction was at 17%, and I was officially diagnosed with biliary dyskinesia. I then had to have my examination and meeting with a surgeon for gallbladder removal, the only known remedy for this. The surgeon was concerned with my results. He said he didn't want to remove my gallbladder. He says i'm much too young to have these problems, and for it to be such a low ejection fraction for such a healthy young boy. He thinks other things may be affecting my gallbladder. My parents also strongly disagree with the removal surgery. I'm not sure how I feel about it yet. All i know is that there are days where I'm unsure of whether I have the strength to make it out of bed. My pain is bad but i have to go with my parents and doctor's advice. On top of that, I can't miss a week of school. The surgeon says i'll be bedwritten for at least two days, and he doesn't want me doing anything for a whole week. At best i'll be able to have the surgery spring break. I've also heard that the success rate is maybe 60%? I don't know if i like my odds. I don't want to have my gallbladder removed and then lingering symptoms to remain. I've read of people with similar ejection fractions who are handling their pain with relative ease, and i've also read about people who can barely make it out of bed. I'm losing sleep some nights, my grades are suffering, and i'm honestly not feeling well. For people who are dealing with this pain without surgery, can you give me advice? Should I get the surgery? How can I ease my pain? How can I get better sleep? any advice will be greatly appreciated.
3 Responses
168348 tn?1379357075
COMMUNITY LEADER
Hi,  Maybe if you get a few more opinions that will make your decision a bit easier for you . So sorry you are going through this. Please keep in touch!

C~
Avatar universal
hi

im having the same problem and exactly the same advice has been gven as im young and should be ok,

just wanted to ask, is it not dangerous to leave it like it is? if so why is it possibles specialist drs can ignore it?
Avatar universal
MEDICAL PROFESSIONAL
Hello and hope you are doing well.

Gallbladder dyskinesia, per say does not cause pain unless there is gall stone formation or inflammation of the gall bladder wall. The other causes could be gastritis, peptic ulcer disease and GERD. Disorders of the liver and colon could also cause pain. Kidney disorders too produce colicky and sharp pain. Sometimes anxiety with flatulence can cause this pain. Please discuss this with your doctor am sure he will provide further assistance.

Hope this helped and do keep us posted.
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