Thewritegirl, what you're saying and have concluded is reasonable, but only a doc can tell you whether it's SOD or not. Unfortunately concerning the medications, the only way to find out is trial-and-error. However some with SOD can handle Percocet. But narcotics in general raise the pressure within the common bile duct and cause miserable problems.
But the big thing is you need to consult with someone who is familiar with diagnosing and treating SOD. There are only a few docs and facilities across the country who fit those criteria, so don't work with 'just anyone' to try to figure this out. SOD isn't 'fun' as those who have it have found out.
CalGal, thanks for your response. I guess part of me is just happy to find something that makes so much sense and, fortunately, my bouts with pain are few and far between these days, especially if I stay away from medications and things that I know causes me pain. If I were having episodes frequently, I would be a basketcase. It is excruciating, to put it mildly. I will certainly be mentioning this to my GP as I think she will look into it objectively. My liver enzyme issues have been a puzzle to many different doctors including one of the best in the country at Emory in Atlanta. I have never really talked to them about these pain episodes, outside of telling them I was "allergic" to codeine and hydrocodone. I have never made the connection until I read about SOD. So, can SOD just be managed by not doing taking or eating things that aggravate it? I mean this all started with elevated liver enzymes when I was pregnant 19 years ago! The doctors thought once they took out my gall bladder, things would correct themselves. They did not. I continued to have gallbladder attack type pains that I wrote off to indigestion and they continued to freak over my elevated enzymes. And the roller coaster ride began. I went back and forth to Emory for awhile and doc was convinced i had to have hepatitus...but i tested negative to everything known to man....and when he did a liver biopsy he said i was a "strange duck" and that my liver cells were regenerating as fast as they were dying. I left there tired of the roller coaster and let docs continue to do regular bloodwork on me and just kind of ignored it, eventually stopping the bloodwork. Then a few years ago my doc did a full panel of bloodwork on me again and they were still elevated so she started doing it regularly again and finally insisted i go see a specialist again. I wound up with a local doc that does a lot of research and she did a host of tests on me and could not find answers. Did another liver biopsy to make sure I had not developed scarring in my liver for all these years of liver enzyme elevation. Biopsy came back fine and I ended my search, feeling that the elevated liver enzymes were just "me"...releived again that I had not done any damage over this 19 years and hopped off the roller coaster again. Now, when not even looking, it seems like I have found an answer. I don't want to have it, but I am a bit relieved to have possibly found a name and explanation.
Geez, I rambled in that last post....trying to put a 19 year rollercoaster ride in as few sentences as possible comes out kinda jumbled...ha ha...sorry.
I have had sod for allmost twenty years . I had ercp three times each time my pain got worse most doctors will not even admit that there is a probiem . davacet worked for years now its gone. sphincter of oddi dysfunction was just recently classified, clinical testing just recenly started testing will last three to five years. nothing works i have tried it all good luck
Wow. reading what you posted was like I was typing it myself.
Did you ever get a diagnosis? I just TODAY figured the same thing as you. I have SOD..
I see your post is months old, but you still might find this site helpful:
eHealthMe, enter Sphincter of oddi etc. and you will see 2 pages of drugs and fits. that may interact negatively. I was taking Hidrocodein for a ruptured disk and discovered that this was a BAD idea!
This pain when it hits is really terrible. You mention that an anti spasmodic seemed to help, should I try that do you think?
You are right in saying most Drs. don't have a clue about this.
Good luck, let me know if anything helps.
its your pancreas,,,and ecrp tests are synonomis with causing pancreatitis,,sounds like shronic pancreatitis to me
Levsinis the only thing that ever helped me when the spasms started. There is no pain meds that will help the spasms. All pain meds that contain opiates will cause the spasms. which includes all prescription pain meds even Tylenol 3. I have even had a mild attack with plan Tylenol. Nsaids are the only pain relievers I can tolerate and unfortunately they are bad for your stomach and esophagus. Alcohol is another trigger for the spasms, I havent had alcohol in 31 years, not even Nyquil.
My doctor suspects SOD. However when he went to do ERCP he saw too much inflammation in my stomach and decided it was too risky to get pressures or to "split the sphincter". I am in horrible pain and don't quite understand the "risks". Does anybody have any insight on this? Thanks in advance.
I had SOD horribly for months until I figured out that taking Magnesium Citrate completely got rid of ALL the attacks and found that ALL the triggers were no longer triggers. It gave me my life back!! It's simple, easy to try and I swear the magnesium calms the spasms. Ask your doctor about it.
what dosage of magnesium citrate do you take?
hi my brother had sever pains in his stomach constantly but sometimes they were a lot worse than others for at least 7 years, he was on quite a lot of different medication very strong pain killers the doctors were doing different tests to find out what was wrong with him but couldn't figure it out, they took his gol blader out but didn't help tried botox injections in bile duct and sphincter valves but he couldn't swallow for 3 days and still helped a little but not much he said he's never go for that again it wasn't worth it, he tried a tense machine but only helped slightly, he dies 2 weeks ago he was only 44, and I need answers since the doctors couldn't give him any, can anyone tell me if this is life threatning or any ideas atall that it could have been?