biliary dyskinesia

[coba37]

I have biliary dyskinesia with an ejection fraction of 23%. I am on a very low fat diet and I eat very little dairy or wheat.I have become very skinny since this began-- about 2 years ago. My symptoms include stomach pain that moves all over my stomach area after almost every meal, but especially dinner, nausea, bloating, gas, intestinal pain, sore throat, sometimes a feeling of heaviness/pain at my sternum, but I do not have upper right quadrant pain. Isn't that the most common gallbladder problem symptom? The doctors suggest surgery, but I don't understand why it would be helpful to remove an at least partly functioning gallbladder? I understand why removing the gallbladder might help relieve pain in the gallbladder area if the gallbladder is irritated, but how will removal help with my symptoms? And, why will removing the gallbladder help reduce the the overabundance of acid in my stomach? Nobody has been able to answer these questions for me, and thus, I've refused surgery and have been getting acupuncture instead for the past 6 months. I'm flirting with the idea of surgery again because I'm not sure that acupuncture is going to be able to heal the problem. It hasn't so far, but it has helped to relieve some symtoms. I would be very grateful if you can help answer my questions, and I am open to any suggestions you have to offer.

Sincerly, amy

[Lenny3904]

For 8 months having upper right rib discomfort daily, sometimes stabbing. I have daily sudden nausea that comes and goes. I sometimes get woke up usually around 3 am grabbing my right side in pain then horrible sweating and i dont know if I'm going to throw up, pass out . a few times have had this horrible cramp in upper right rib that brings me to my knees until it goes away which is not too long. Have hade ultrasound w/no stones detected. Bloodwork only showed a high white count. Hida scan 74% no problem while testing but when i went to leave i almost got sick in the vehicle. felt sick all day and a little sore in right rib area. any suggestions ?

[consty]

Scheduled on November 12 for cholecystectomy.  Thank you for reassurance

[Draemarsh]

I feel your frustration. I would ask to see my results and have your doctor review everything with you. I've been told my Hida Scans (I've had 2) were normal, but have all the same symptoms of biliary dyskenisia. The surgeon won't even see me although my GI doctor wants my gallbladder removed. I requested a copy of all my scans....to my surprise the radiologist that read the report stated there was indeed a problem with my gallbladder. I am frustrated with the medical field and lack of care. Be persistent and ask as many questions about your care and future care. I will be changing insurance in January due to this matter. You are also right about your deductible starting over.....it's all a ploy. I wish you luck in this battle. You can also call daily to see if there are any cancellations . I'd bug them.

[wendya2J]

Hi Everyone!

My symptoms have been constant since August. They consist of pressure in my chest on the right from my ribs up to my shoulder and even my neck. Many times after I eat (no matter what I eat) I get a burning between my shoulder blades that then settles behind my right scapula. Burping is constant, and brings up food, sometimes all the way into my nose! In the beginning, I had a lot of diahrreah, but now that I hardly eat anything I am more constipated. I have lost 55lbs since August.

I have had an ultrasound(showed tiny gallstones, but nothing big), upper endoscopy(mild gastritis, esopheageal reflux, possible spasm of valve to the stomach), barium swallow study (normal, although it wasnt a modified, so didnt include any food), HIDA scan (just found out it came back at 8% with a diagnosis of bilary dyskinesia), CT scan (normal). I have been seeing both my family Dr and a GI Dr.

Although the HIDA was done 5 or so weeks ago, neither Dr thought it was my gallbladder at that time. Yesterday, back for followup at the GI Dr, and he said since I was not getting total relief from the Dexilant at the mega dose, that it may be my gallbladder afterall and referred me to a surgeon.

Huh???? I am so confused!!!! I called my family Dr, and he would like to meet with me. I am so tired of not feeling well, not eating (although I enjoy the weight loss, I dont think my nutrition is good at all), people asking me whats going on etc. My asthma has also been worse, and my asthma Dr has put me back on Advair and Singular plus generic Claratin and an albuteral inhailer as needed. Also wondering about possable anxiety - lol!! Although all this could cause that, right? I do remember several weekends since last February where I did not feel well - 2 times specifically were very bad. Could these have been gallbladder attacks? I currently have such a limited diet -small amounts of lettuce, corn chex, a slice of whole wheat bread, baked potato, slice of low fat american cheese, tiny bit of roasted chicken...not much more at all - and I still dont feel well after I eat - the symptoms get worse - I rarely feel symptom free......

What should I ask my familiy Dr? I dont know what he will say! The surgeon doesnt have an opening until 12/27 - which stinks because that means I will have to pay  my deductable again if I need surgery. I have no medical history with the exception of the astma at all!!! UGH!!! Any advice is greatly appreciated!!!

[Draemarsh]

Mrcp was normal. I have pressure and severe nausea. I've lost over 15 pounds and unable to eat any fat. I've been told this is most likely biliary dyskenisia?

[Christopher R Watters, MD]

It would be wise to have a MRCP before deciding on the gallbladder. Your study would imply that there is a problem downstream where the bile duct joins the duodenum.